The Impact of a Diagnosis of Parkinson's on Work

NCT03905954 | Completed

• 1 other identifier: MOReS-EPTC-EPDA
• Study Type: observational
• Target: 696
• Locations: 1 country
• Sites: 1

Brief Summary

Parkinson's disease leads to loss of employment on average within less than 10 years of disease onset and has been found to be associated with an increased absence from work. This combined with hospitalisation; use of secondary health services; drug usage; and caregivers needing to give up work contributed to the costs associated with the conditions. It has been estimated that early support for working age newly diagnosed would cost the government about 1.5 million Euro in the UK but might lead to a potential cost saving of over half a billion over 5 years. The study will explore the impact of a Parkinson diagnosis on employment. The study will be survey based and will include demographic questions: age, age at diagnosis of PD, educational level, and Nationality; questions pertaining to employment type, history, and reasons for leaving if this happened; and also general health.

Conditions

Parkinson Disease

Keywords

employment; work; diagnosis; early support

Outcome Measures

Primary Outcomes (1)

• Main occupation in the last 7 days

  Questions asks: 'Which of these descriptions applies to your main occupation in the last seven days? and has the following options. 'In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired Student

  baseline only (cross sectional)

Secondary Outcomes (9)

• Type of Work

  baseline only (cross sectional)

• Symptom Severity-Distress

  baseline only (cross sectional)

• Symptom Severity-Pain

  baseline only (cross sectional)

• Symptom Severity-Fatigue

  baseline only (cross sectional)

• Symptom Severity-Depression

  baseline only (cross sectional)

Study Arms (1)

Parkinson's Diagnosis

Usual care

Other: Usual care

Interventions

Usual care OTHER

For this cross sectional survey, participants will be receiving usual care according to there health care systems

Parkinson's Diagnosis

Eligibility Criteria

• Age: 18 Years - 99 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

A (European) community based convenience sample. The survey will be available to the European Parkinson's Disease Association (EPDA) network using the Members' forum and website and will be sign posted through ongoing Member Outreach communication channels.

You may qualify if:

• Diagnosis of Parkinson

You may not qualify if:

• None

Sponsors & Collaborators

• Oxford Brookes University: lead
• European Parkinson's Therapy Centre: collaborator

Study Sites (1)

Oxford Brookes University

Oxford, Oxfordshire, OX3 0SB, United Kingdom

Location

MeSH Terms

Conditions

Parkinson Disease; Disease

Condition Hierarchy (Ancestors)

Parkinsonian Disorders; Basal Ganglia Diseases; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Movement Disorders; Synucleinopathies; Neurodegenerative Diseases; Pathologic Processes; Pathological Conditions, Signs and Symptoms

Study Design

• Study Type: observational
• Observational Model: ECOLOGIC OR COMMUNITY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Senior Clinical Research Fellow

Study Record Dates

• First Submitted: April 4, 2019
• First Posted: April 8, 2019
• Study Start: April 11, 2019
• Primary Completion: November 4, 2019
• Study Completion: November 4, 2019
• Last Updated: March 3, 2020

Record last verified: 2020-03

Locations

GB (1)