NCT03884608

Brief Summary

The purpose of this registry is to prospectively assess outcomes of device-treated ventricular tachyarrhythmias and all-cause mortality in non-ischemic cardiomyopathy patients indicated for ICD or CRT-D implantation for the primary prevention of sudden cardiac death. Differences in outcomes will be evaluated by sex and by device type.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,000

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started May 2019

Longer than P75 for all trials

Geographic Reach
1 country

49 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

March 18, 2019

Completed
3 days until next milestone

First Posted

Study publicly available on registry

March 21, 2019

Completed
2 months until next milestone

Study Start

First participant enrolled

May 9, 2019

Completed
5.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 19, 2024

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

November 19, 2024

Completed
Last Updated

November 22, 2024

Status Verified

November 1, 2024

Enrollment Period

5.5 years

First QC Date

March 18, 2019

Last Update Submit

November 20, 2024

Conditions

Outcome Measures

Primary Outcomes (1)

  • Evaluation of the combined risk of all-cause mortality and treated ventricular tachycardia (VT) or ventricular fibrillation (VF) events

    Evaluate the combined risk of all-cause mortality and treated ventricular tachycardia (VT) or ventricular fibrillation (VF) events by sex and by implanted device type

    3 years post-implant

Secondary Outcomes (5)

  • Rate of all-cause mortality

    3 years post-implant

  • Rate of treated ventricular tachycardia (VT) or ventricular fibrillation (VF) events

    3 years post-implant

  • Rate of cardiac death

    3 years post-implant

  • Rate of sudden cardiac death

    3 years post-implant

  • Comparison of the Seattle Proportional Risk Model (SPRM) predicted incidence of sudden death to the observed incidence of death

    3 years post-implant

Other Outcomes (5)

  • Evaluation of cardiovascular and diabetes medication use and dosage during the study

    3 years post-implant

  • Assessment of left ventricular reverse remodeling by echocardiography at 12 months for CRT-D patients

    12 months post-implant

  • Rate of inappropriate ICD therapy

    3 years post-implant

  • +2 more other outcomes

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients selected for participation should be from the investigator's general patient population according to the inclusion and exclusion criteria.

You may qualify if:

  • Patient meets current guideline-defined indication for de novo, primary prevention ICD or CRT-D implantation
  • Patient has non-ischemic etiology of cardiomyopathy
  • Patient is successfully implanted with a de novo BIOTRONIK ICD or CRT-D device and commercially available leads no more than 30 days prior to consent or is scheduled for de novo implantation of a BIOTRONIK ICD or CRT-D device no more than 30 days post consent
  • Patient is able to understand the nature of the study and provide informed consent
  • Patient is available for standard of care follow-up visits to occur at least yearly at the study site for to the expected 3 years of follow-up
  • Patient is willing to utilize BIOTRONIK Home Monitoring® via CardioMessenger
  • Patient age is greater than or equal to 18 years

You may not qualify if:

  • Patient meets secondary prevention ICD indication
  • Patient has ischemic etiology of cardiomyopathy
  • Patient is enrolled in any investigational cardiac device or drug trial that might significantly affect the studied outcomes
  • Patient is expected to receive heart transplantation or ventricular assist device within 1 year
  • Patient life expectancy is less than 1 year
  • Patient reports pregnancy at the time of consent

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (49)

Southview Cardiovascular Associates

Birmingham, Alabama, 35205, United States

Location

Cardiology Associates of Mobile

Fairhope, Alabama, 36532, United States

Location

Eisenhower Desert Cardiology

Rancho Mirage, California, 92270, United States

Location

UC Davis Medical Center

Sacramento, California, 95817, United States

Location

Cardiology Associates Medical Group

Ventura, California, 93003, United States

Location

Cardiovascular Institute of North Colorado

Greeley, Colorado, 80631, United States

Location

University of Florida

Gainesville, Florida, 32610, United States

Location

AdventHealth Orlando

Orlando, Florida, 32803, United States

Location

Orlando Health, Inc.

Orlando, Florida, 32806, United States

Location

BayCare Medical Group Cardiology

Safety Harbor, Florida, 34695, United States

Location

AdventHealth Tampa

Tampa, Florida, 33613, United States

Location

Saint Alphonsus Heart Care

Boise, Idaho, 83704, United States

Location

University of Chicago

Chicago, Illinois, 60637, United States

Location

University of Iowa

Iowa City, Iowa, 52242, United States

Location

Baptist Health Lexington

Lexington, Kentucky, 40503, United States

Location

University of Kentucky

Lexington, Kentucky, 40536, United States

Location

Massachusetts General Hospital

Boston, Massachusetts, 02114, United States

Location

University of Michigan

Ann Arbor, Michigan, 48109, United States

Location

Traverse Heart and Vascular

Traverse City, Michigan, 49684, United States

Location

Metro Health Hospital

Wyoming, Michigan, 49519, United States

Location

Michigan Heart

Ypsilanti, Michigan, 48197, United States

Location

Cardiology Associates Research

Tupelo, Mississippi, 38801, United States

Location

Mercy Clinic Heart and Vascular

St Louis, Missouri, 63141, United States

Location

Logan Health Research

Kalispell, Montana, 59901, United States

Location

NYP Brooklyn Methodist Hospital

Brooklyn, New York, 11215, United States

Location

Trinity Medical WNY

Buffalo, New York, 14215, United States

Location

Weill Cornell Medicine

New York, New York, 10021, United States

Location

Lenox Hill Hospital

New York, New York, 10075, United States

Location

University of Rochester

Rochester, New York, 14642, United States

Location

Montefiore Medical Center

The Bronx, New York, 10467, United States

Location

Westchester Medical Center

Valhalla, New York, 10595, United States

Location

Sanger Heart and Vascular

Charlotte, North Carolina, 28210, United States

Location

East Carolina University Physicians

Greenville, North Carolina, 27834, United States

Location

Heart Rhythm Associates

Greenville, North Carolina, 27834, United States

Location

Cape Fear Heart Associates

Wilmington, North Carolina, 28401, United States

Location

Novant Health Winston Salem Cardiology

Winston-Salem, North Carolina, 27103, United States

Location

Wake Forest Baptist Health

Winston-Salem, North Carolina, 27157, United States

Location

Sanford Medical Center

Fargo, North Dakota, 58102, United States

Location

University of Cincinnati

Cincinnati, Ohio, 45267, United States

Location

Ohio State University

Columbus, Ohio, 43210, United States

Location

ProMedica Physicians Cardiology

Toledo, Ohio, 43615, United States

Location

Penn State Health Milton S Hershey

Hershey, Pennsylvania, 17033, United States

Location

Geisinger Heart and Vascular Center

Scranton, Pennsylvania, 18510, United States

Location

Upstate Cardiology

Greenville, South Carolina, 29607, United States

Location

Carolina Heart Specialists

Lancaster, South Carolina, 29720, United States

Location

Carolina Arrhythmia Consultants

Mt. Pleasant, South Carolina, 29464, United States

Location

Cardiology Consultants

Spartanburg, South Carolina, 29303, United States

Location

University of Tennessee Erlanger Cardiology

Chattanooga, Tennessee, 37403, United States

Location

University of Washington

Seattle, Washington, 98195, United States

Location

Related Publications (1)

  • Kutyifa V, Di Biase L, Prasad KV, Torres V, Hesselson A, McCotter CJ, Harris G, Cox K, Schleede S, Heist EK, McNitt S, Brown MW, Miller C, Beck CA, Poole J; BIO-LIBRA Investigators. Contemporary medical therapy, sex-specific characteristics, and outcomes of patients with non-ischemic cardiomyopathy: a prespecified interim analysis of the BIO-LIBRA study. EClinicalMedicine. 2025 Jul 13;86:103337. doi: 10.1016/j.eclinm.2025.103337. eCollection 2025 Aug.

MeSH Terms

Conditions

CardiomyopathiesCoitus

Condition Hierarchy (Ancestors)

Heart DiseasesCardiovascular DiseasesSexual BehaviorBehavior

Study Officials

  • Valentina Kutyifa, MD, PhD

    University of Rochester

    PRINCIPAL INVESTIGATOR
  • Jeanne Poole, MD

    University of Washington

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
3 Years
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

March 18, 2019

First Posted

March 21, 2019

Study Start

May 9, 2019

Primary Completion

November 19, 2024

Study Completion

November 19, 2024

Last Updated

November 22, 2024

Record last verified: 2024-11

Data Sharing

IPD Sharing
Will share

De-identified participant level data collected within the study will be shared for approved requests of subsidiary studies not specifically pre-planned within the protocol.

Shared Documents
STUDY PROTOCOL, SAP
Time Frame
The data will be available beginning no later than 12 months and ending no earlier than 3 years following publication.
Access Criteria
Proposals should be directed to BIOTRONIK Clinical Studies (BIOTRONIK Inc., Attn: Clinical Studies, 6024 Jean Road, Lake Oswego, OR; 1-800-547-0394). The Principal Investigator and Co-Principal Investigator, in consultation with BIOTRONIK, will review and critique subsidiary requests for scientific merit, fiscal feasibility, and logistical feasibility. They will additionally consider if the proposed publication fits into the overall BIO-LIBRA publication plan. If approved, the data requestors will need to sign a data use/access agreement prior to obtaining the data and agree to have the Principal Investigator and Co-Principal Investigator as co-authors.

Locations