NCT03877965

Brief Summary

This is a prospective, multi-center, open-label, PK and safety profile study of enteral digoxin in children \<6 months old at time of enrollment, post-surgical or hybrid stage 1 palliation, but prior to surgical stage 2 palliation.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
50

participants targeted

Target at P25-P50 for all trials

Timeline
Completed

Started Aug 2019

Typical duration for all trials

Geographic Reach
1 country

11 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

March 14, 2019

Completed
4 days until next milestone

First Posted

Study publicly available on registry

March 18, 2019

Completed
5 months until next milestone

Study Start

First participant enrolled

August 5, 2019

Completed
1.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

July 13, 2021

Completed
6 months until next milestone

Study Completion

Last participant's last visit for all outcomes

January 17, 2022

Completed
Last Updated

October 12, 2022

Status Verified

October 1, 2022

Enrollment Period

1.9 years

First QC Date

March 14, 2019

Last Update Submit

October 10, 2022

Conditions

Outcome Measures

Primary Outcomes (1)

  • Plasma concentrations of digoxin

    The primary outcome measures are plasma concentrations of digoxin measured using a validated bioanalytical assay at a central laboratory.

    Approximately 7 months

Secondary Outcomes (10)

  • Number of adverse events related to study procedures and serious, unexpected, suspected adverse reactions related to digoxin

    Approximately 7 months

  • Tachyarrthmias

    Approximately 7 months

  • Number of participants with second and third degree atrioventricular conduction block

    Approximately 7 months

  • Number of participants with sinus bradycardia

    Approximately 7 months

  • Number of participants with need for temporary or permanent pacing

    Approximately 7 months

  • +5 more secondary outcomes

Other Outcomes (25)

  • Plasma concentration of NT-proBNP

    Approximately 7 months

  • Plasma concentration of MR-proANP

    Approximately 7 months

  • Right ventricular or left ventricular end diastolic volume

    Approximately 7 months

  • +22 more other outcomes

Study Arms (1)

Children with single ventricle congenital heart disease

Receiving digoxin per standard of care during the interstage period

Drug: Digoxin

Interventions

Drug administered per standard of care, with a dosing regimen within the labeled dose range of 7.5-20 mcg/kg/day divided in 2 or 3 equal doses

Children with single ventricle congenital heart disease

Eligibility Criteria

AgeUp to 6 Months
Sexall
Age GroupsChild (0-17)
Sampling MethodProbability Sample
Study Population

Up to 48 infants diagnosed with single ventricle congenital heart disease, receiving digoxin per standard of care during the interstage period

You may qualify if:

  • Diagnosis of single ventricle congenital heart disease
  • Status post-surgical or hybrid stage 1 palliation but prior to surgical stage 2 palliation
  • Age ≤ 30 days of life at time of stage 1 palliation
  • Age \< 6 months at time of enrollment
  • Require treatment with enteral digoxin per their treating medical provider if their planned maintenance treatment dosing regimen is within the labeled dose range of 7.5 - 20 mcg/kg/day divided in 2 or 3 equal doses
  • Informed consent from parent(s) or legal guardian(s)

You may not qualify if:

  • Serum creatinine \> 2 mg/dL at enrollment
  • Diagnosis of second degree or higher atrioventricular conduction block at enrollment
  • Diagnosis of clinically significant sinus bradycardia requiring intervention at enrollment
  • Known hypersensitivity to digoxin or other forms of digitalis
  • Extracorporeal life support (i.e., ECMO, dialysis, ventricular assist device) at enrollment
  • Received digoxin prior to enrollment
  • Received or anticipated to receive a loading dose of digoxin.
  • Any condition that would make the participant, in the opinion of the investigator, unsuitable for the study

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (11)

Mattel Children's Hospital at UCLA

Los Angeles, California, 90095, United States

Location

Rady Childrens Hospital and Health Center

San Diego, California, 92123, United States

Location

The Children's Hospital Colorado

Aurora, Colorado, 80045, United States

Location

Alfred I. DuPont Hospital for Children

Wilmington, Delaware, 19803, United States

Location

Nicklaus Children's Hospital

Miami, Florida, 33155, United States

Location

St. Louis Children's Hospital

St Louis, Missouri, 63110, United States

Location

Morgan Stanley Children's Hospital of New York Presbyterian

New York, New York, 10032, United States

Location

Duke University Medical Center

Durham, North Carolina, 27710, United States

Location

Cincinnati Childrens Hospital Medical Center

Cincinnati, Ohio, 45229-3039, United States

Location

Medical University of South Carolina

Charleston, South Carolina, 29425, United States

Location

Children's Memorial Hermann Hospital

Houston, Texas, 77030, United States

Location

Biospecimen

Retention: SAMPLES WITHOUT DNA

Blood samples will be collected to assess pharmacokinetic and biomarker levels

MeSH Terms

Conditions

Heart Defects, Congenital

Interventions

Digoxin

Condition Hierarchy (Ancestors)

Cardiovascular AbnormalitiesCardiovascular DiseasesHeart DiseasesCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Intervention Hierarchy (Ancestors)

Digitalis GlycosidesCardenolidesCardiac GlycosidesCardanolidesSteroidsFused-Ring CompoundsPolycyclic CompoundsGlycosidesCarbohydrates

Study Officials

  • Christoph Hornik, MD

    Duke University

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR INVESTIGATOR
PI Title
Associate Professor of Pediatrics

Study Record Dates

First Submitted

March 14, 2019

First Posted

March 18, 2019

Study Start

August 5, 2019

Primary Completion

July 13, 2021

Study Completion

January 17, 2022

Last Updated

October 12, 2022

Record last verified: 2022-10

Data Sharing

IPD Sharing
Will not share

Locations