NCT03807206

Brief Summary

The aim of this study is to gain insight in patients' experiences regarding do not resuscitate conversations and decisions. A multicentre flash mob investigation will be conducted in which data will be obtained over the course of two weeks using electronic questionnaires that patients will fill out. General demographic data and a brief quality of life assessment (EQ-5D) will be collected. Whether a DNR converstation has taken place will be noted, along with patients' experiences with this conversation. Lastly the patient will be asked about his/her expectations of survival after cardiopulmonary resuscitation.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,136

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Jan 2019

Shorter than P25 for all trials

Geographic Reach
1 country

12 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

January 1, 2019

Completed
6 days until next milestone

First Submitted

Initial submission to the registry

January 7, 2019

Completed
9 days until next milestone

First Posted

Study publicly available on registry

January 16, 2019

Completed
22 days until next milestone

Primary Completion

Last participant's last visit for primary outcome

February 7, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

February 7, 2019

Completed
Last Updated

July 16, 2019

Status Verified

July 1, 2019

Enrollment Period

1 month

First QC Date

January 7, 2019

Last Update Submit

July 14, 2019

Conditions

Outcome Measures

Primary Outcomes (1)

  • Prevalence of DNR-orders

    Percentage of DNR-orders in the total cohort as noted in the electronic patient file

    1 day

Secondary Outcomes (4)

  • DNR-order discussion prevalence

    1 day

  • DNR-order discussion experience

    1 day

  • DNR-order discrepancy

    1 day

  • Quality of life

    1 day

Other Outcomes (1)

  • General demographic data

    1 day

Study Arms (1)

Flashmob 2019

Patients from the following hospitals will receive a questionnaire/structured intereview: Erasmus MC, Franciscus Gasthuis \& Vlietland, Ikazia, Haaglanden Medisch Centrum, Albert Schweitzer ziekenhuis, Jeroen Bosch ziekenhuis, Rijnstate ziekenhuis, Amphia ziekenhuis, Tergooi klinieken, Medisch Spectrum Twente, Reinier de Graaf gasthuis. Pending: Maasstad ziekenhuis

Behavioral: Questionnaire

Interventions

QuestionnaireBEHAVIORAL

Patient questionnaire

Also known as: structured interview
Flashmob 2019

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

The base population consists of all adult patients admitted to all the participating hospitals. These consist of one academic centre and 10 general hospitals. The sampling is based on non-probability as it does not represent the entire population (i.e. inhabitants of the Netherlands), however it is based on probability sampling when the population is solely patients admitted to hospital.

You may qualify if:

  • All patients admitted to the participating hospitals with a planned admission \>24 hours at the moment this study takes place.

You may not qualify if:

  • Refusal to participate
  • \<18 years of age
  • Admitted in outpatient clinic and day treatment centres (e.g. haemodialysis)
  • Admitted \<24 hours, as defined by not sleeping overnight in hospital
  • No reliable proxy in the following situations:
  • Unable to answer questions (e.g. unconscious, cognitively impaired, delirious)
  • Language barrier (with no interpreter or family member)
  • The following hospital departments are excluded:
  • Intensive care unit
  • Coronary/acute cardiac care unit
  • Obstetrics
  • Paediatrics
  • Stroke unit
  • Dialysis (outpatient dialysis)
  • Day-care wards/short-stay (i.e. \<1 day)
  • +1 more criteria

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (12)

Jeroen Bosch ziekenhuis

's-Hertogenbosch, Netherlands

Location

Rijnstate

Arnhem, Netherlands

Location

Amphia

Breda, Netherlands

Location

Reinier de Graaf gasthuis

Delft, Netherlands

Location

Albert Schweitzer ziekenhuis

Dordrecht, Netherlands

Location

Medisch Spectrum Twente

Enschede, Netherlands

Location

Tergooi ziekenhuizen

Hilversum, Netherlands

Location

Erasmus MC

Rotterdam, 3015CE, Netherlands

Location

Franciscus Gasthuis & Vlietland

Rotterdam, Netherlands

Location

Ikazia

Rotterdam, Netherlands

Location

Maasstad

Rotterdam, Netherlands

Location

Haaglanden Medisch Centrum

The Hague, Netherlands

Location

MeSH Terms

Conditions

Heart Arrest

Interventions

Surveys and Questionnaires

Condition Hierarchy (Ancestors)

Heart DiseasesCardiovascular Diseases

Intervention Hierarchy (Ancestors)

Data CollectionEpidemiologic MethodsInvestigative TechniquesHealth Care Evaluation MechanismsQuality of Health CareHealth Care Quality, Access, and EvaluationPublic HealthEnvironment and Public Health

Study Officials

  • Robert Jan Stolker, MD PhD

    Erasmus Medical Center

    PRINCIPAL INVESTIGATOR
  • Monique van Dijk, MD PhD

    Erasmus Medical Center

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
principal investigator/medical doctor

Study Record Dates

First Submitted

January 7, 2019

First Posted

January 16, 2019

Study Start

January 1, 2019

Primary Completion

February 7, 2019

Study Completion

February 7, 2019

Last Updated

July 16, 2019

Record last verified: 2019-07

Data Sharing

IPD Sharing
Will not share

Because of the personal nature of data (reg. age, sex, religion, eductional level) we will not make it available.

Locations