NCT03775174

Brief Summary

Individual patient expanded access requests may be considered for patients who have no other treatment options

Trial Health

Trial Relationships

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Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

December 11, 2018

Completed
2 days until next milestone

First Posted

Study publicly available on registry

December 13, 2018

Completed
Last Updated

January 12, 2026

Status Verified

January 1, 2026

First QC Date

December 11, 2018

Last Update Submit

January 8, 2026

Conditions

Keywords

Expanded AccessCompassionate Use

Interventions

Also known as: UX003, recombinant human beta-glucuronidase, rhGUS, vestronidase alfa

Eligibility Criteria

Sexall
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Related Links

MeSH Terms

Conditions

Mucopolysaccharidosis VII

Interventions

vestronidase alfa

Condition Hierarchy (Ancestors)

MucopolysaccharidosesCarbohydrate Metabolism, Inborn ErrorsMetabolism, Inborn ErrorsGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesLysosomal Storage DiseasesMucinosesConnective Tissue DiseasesSkin and Connective Tissue DiseasesMetabolic DiseasesNutritional and Metabolic Diseases

Central Study Contacts

Study Design

Study Type
expanded access
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

December 11, 2018

First Posted

December 13, 2018

Last Updated

January 12, 2026

Record last verified: 2026-01