NCT03691168|Unknown
Multi-center Observation of the Natural Course of Inherited Retinal Dystrophies
RID
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RID
Sponsor study identifier
observational
500
1 country
1
Study Start
June 1, 2018
Actual (reported)Primary Completion
May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
May 30, 2023
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Based on a clinical multi-center study of the natural course of inherited retinal dystrophies in Chinese population, screening fundus imaging indicators for patients with Chinese inherited retinal dystrophies, describing the clinical features of Chinese patients with inherited retinal dystrophies, and establishing a diagnosis of hereditary retinal diseases - Follow-up norms; establish a network-based multi-center diagnosis and follow-up platform; obtain a biological sample library of hereditary retinal diseases mainly in China. The research will further improve and enrich the genotype, phenotypic characteristics and natural course of Chinese inherited retinal dystrophies, in order to promote the clinical evaluation of clinical inherited retinal dystrophies and the standardization of genetic diagnosis. It is also the evidence for the best timing for future gene therapy, to obtain the best therapeutic effect, and to provide a theoretical basis for achieving precise treatment.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
May 30, 2023
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
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Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
June 1, 2018
Actual (reported)September 28, 2018
Actual (reported)October 1, 2018
Actual (reported)May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
May 30, 2023
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Visual acuity
A typical Snellen chart that if frequently used for visual acuity testing
60 months
Patients with inherited retinal dystrophies
Shanghai General Hospital
Shanghai, Shanghai Municipality, 200080, China
Blood
XiaoDong Sun, PHD
Shanghai General Hospital, Shanghai Jiao Tong University School of Medicine
First Submitted
September 28, 2018
First Posted
October 1, 2018
Study Start
June 1, 2018
Actual (reported)Primary Completion
May 30, 2019
Estimated (date passed)Contact the study team to confirm eligibility.
This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
May 30, 2023
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Last Updated
October 1, 2018
Record last verified: 2018-09
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Source: ClinicalTrials.gov.
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