The Living Experience of Hong Kong Chinese Adolescents With CHD.

NCT03677232 | Completed

• 1 other identifier: UW 17-290
• Study Type: observational
• Target: 30
• Locations: 1 country
• Sites: 1

Brief Summary

This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD. Hong Kong Chinese adolescents with CHD are having reduced psychological well-being and quality of life than their healthy counterparts. Qualitative study is therefore needed to explore how CHD may impact on the adolescents' psychological well-being and quality of life.

Conditions

Congenital Heart Disease; Psychological Well-being; Quality of Life; Adolescent; Chinese

Keywords

Congenital Heart Disease, Hong Kong, Adolescent

Outcome Measures

Primary Outcomes (1)

• living experience of adolescents with CHD

  Participants were asked to describe their living experiences with CHD and how has CHD affected their quality of life and psychological well-being during the semi-structure interview.

  1 day

Study Arms (1)

Hong Kong Chinese adolescents with CHD

Hong Kong Chinese adolescents with CHD aged 12-18 who are able to read and write chinese

Eligibility Criteria

• Age: 12 Years - 18 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64)
• Sampling Method: Non-Probability Sample

Study Population

Hong Kong Chinese adolescents with CHD, aged 12 to 18, who are able to read and write Chinese, and are attending the outpatient clinic of Department of Pediatric Cardiology.

You may qualify if:

• Hong Kong Chinese adolescents
• aged 12 to 18
• able to read and write Chinese
• attending outpatient clinic of Department of Pediatric Cardiology

You may not qualify if:

• adolescents with non-structural heart disease
• with developmental delay or comorbid medical conditions

Sponsors & Collaborators

• The University of Hong Kong: lead

Study Sites (1)

University of Hong Kong

Hong Kong, Hong Kong

Location

MeSH Terms

Conditions

Heart Defects, Congenital; Psychological Well-Being

Condition Hierarchy (Ancestors)

Cardiovascular Abnormalities; Cardiovascular Diseases; Heart Diseases; Congenital Abnormalities; Congenital, Hereditary, and Neonatal Diseases and Abnormalities; Personal Satisfaction; Behavior

Study Officials

• William Li, PhD

  The University of Hong Kong

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Target Duration: 1 Day
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Associate Professor

Study Record Dates

• First Submitted: September 5, 2018
• First Posted: September 19, 2018
• Study Start: August 11, 2017
• Primary Completion: August 31, 2018
• Study Completion: August 31, 2018
• Last Updated: September 19, 2018

Record last verified: 2018-09

Data Sharing

• IPD Sharing: Will not share

Locations

HK (1)