NCT03634033

Brief Summary

Main study: Nearly half of older adults report problems with function, which can lead to difficulty with activities of daily living and nursing home placement. Thus, there is a need to implement evidence-based models of care to improve function and those factors that support function in older adults living in the community. One such model is CAPABLE (Community Aging in Place Advancing Better Living for Elders), a person-centered, nurse and occupational therapy intervention supported by assistive devices and home modifications. The investigators build on prior work that translated CAPABLE and conducted preliminary testing of a package of implementation strategies. This R15 application will test site-level adoption and sustainability after deploying a package of implementation strategies (readiness assessment, training, facilitation, champions, coalition building, and audit and feedback). Sites will be randomized to internal facilitation alone or internal facilitation plus external facilitation. This work will impact implementation science by testing two approaches to implementation of an evidence-based intervention to improve outcomes among older adults in a Medicaid Waiver program. ADMINISTRATIVE SUPPLEMENT We extend the Parent Trial by addressing a problem found while deploying CAPABLE with beneficiaries with Alzheimer's disease (AD) or dementia. There are 39.8 million informal caregivers in the US and 16.3 million who care for someone with AD or dementia; and 1,500 of those are in the Michigan waiver. Most beneficiaries with those conditions did not accept CAPABLE as they were unable to receive instruction. Interventions that improve caregiver knowledge, confidence, and self-efficacy improve care they provide. Thus, the goal is to extend provision of CAPABLE to beneficiaries with AD or dementia via the engagement of their informal caregivers. This work is significant as there are 1,500 beneficiaries with AD or dementia in the waiver who could benefit from CAPABLE yet many did not, as they were to receive instructions. To date, CAPABLE has only been designed to be used directly with the individuals without caregiver involvement. In the waiver, beneficiaries are required to have a designated caregiver, therefore, modifying the toolkit for use by caregivers could aid in deploying CAPABLE to beneficiaries with AD or dementia.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
7,777

participants targeted

Target at P75+ for not_applicable

Timeline
Completed

Started Jun 2019

Typical duration for not_applicable

Geographic Reach
1 country

18 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

August 9, 2018

Completed
7 days until next milestone

First Posted

Study publicly available on registry

August 16, 2018

Completed
10 months until next milestone

Study Start

First participant enrolled

June 6, 2019

Completed
2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 15, 2021

Completed
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

June 30, 2022

Completed
5 months until next milestone

Results Posted

Study results publicly available

November 30, 2022

Completed
Last Updated

November 30, 2022

Status Verified

November 1, 2022

Enrollment Period

2 years

First QC Date

August 9, 2018

Results QC Date

May 26, 2022

Last Update Submit

November 9, 2022

Conditions

Keywords

Implementation ScienceAdoptionSustainabilityAlzheimers DiseaseDementiaCAPABLERandomized Controlled TrialInterventionFeasibilityAcceptability

Outcome Measures

Primary Outcomes (1)

  • Main Study: Effect of MiCAP With IF Alone Versus MiCAP With IF+EF on Site-level Outcomes of Adoption and Sustainability of CAPABLE

    Adoptions and sustainability of the intervention using the Stages of Implementation Completion (SIC) at a site (18). SIC is a tool that tracks achievement of key activities when implementing an evidence-based intervention. SIC has 6 stages with multiple implementation activities; each activity had an assigned numeric value and when a activity was completed, a score was assigned. The \*total\* SIC score ranges from 0-100. Stage 1 score range 0-12. Stage 2 0-16. Stage 3 0-24. Stage 4 0-16. Stage 5 0-16. Stage 6 0-16. The \*total\* score was calculated by summing the points of each stage. The higher the \*total\* score, the more implementation activities were completed. For the below reported \*total\* score, each waiver site had their \*total\* SIC score numerically calculated. Then, the mean and standard deviation were calculated by group/arm.

    9 months

Secondary Outcomes (7)

  • Main Study: Beneficiary's ADLs Summed Score

    Exit (9-months)

  • Main Study: Beneficiary's IADLs

    Exit (9-months)

  • Main Study: Beneficiary's Pain

    Exit (9-months)

  • Main Study: Beneficiary's Depression

    Exit (9-months)

  • Main Study: Beneficiary's Fall Rate

    Exit (9-months)

  • +2 more secondary outcomes

Other Outcomes (7)

  • Main Study: Clinician Attitude Towards Evidence Based Practice Use

    Exit (9-months)

  • Main Study: Clinician Self-efficacy

    Exit (9-months)

  • Administrative Supplement: Feasibility of Use of Intervention With Clinicians, Caregivers and Beneficiaries.

    Recruitment period of 9-months.

  • +4 more other outcomes

Study Arms (2)

MiCAP with IF (Main Study)

EXPERIMENTAL

MiCAP with Internal Facilitation will receive MiCAP (implementation strategies). Internal facilitators will be waiver site clinicians with exemplary clinical practice and/or supervisory experience, who are expected to be early adopters of CAPABLE; and will be selected by their supervisors.

Behavioral: MiCAP with IF (Main Study)Behavioral: MiCAP with IF and Caregiver Engagement (Administrative Supplement)

MiCAP with IF and EF (Main Study)

EXPERIMENTAL

MiCAP with Internal Facilitation and External Facilitation will receive MiCAP (implementation strategies) and the addition of external facilitation. The external facilitators will be Super-Champion waiver program site clinicians from prior work who were trained and early adopters of CAPABLE; and will be selected by the research team to perform external facilitation.

Behavioral: MiCAP with IF (Main Study)Behavioral: MiCAP with IF and EF (Main Study)

Interventions

Sites will conduct MiCAP strategies described as follows. Relationship Building; Assess readiness to implement of the site; Internal Facilitator (IF) Champion Coalition Building, which will include IFs training in CAPABLE and facilitation and online IF coalition meetings; Facilitation by the IF, which will include training the clinicians, reviewing home visits with the clinician to assure CAPABLE was provided; IF developing a clinical team for implementation of CAPABLE and leading interdisciplinary coordination of individual beneficiary care; Intervention and implementation strategy fidelity data will be placed in a dashboard for audit and provided to IFs. IFs will use the data to provide feedback to clinicians; and develop action plans for improvement in training or care. CAPABLE is a multi-component intervention used to enhance older adults ability to function at home independently.

Also known as: CAPABLE
MiCAP with IF (Main Study)MiCAP with IF and EF (Main Study)

Sites will conduct MiCAP strategies described above in "MiCAP with IF" with an addition of External Facilitation. Centralized Oversight will be conducted by External Facilitators. External Facilitators will train in facilitation. The work of the External Facilitators will be tailored (i.e., type of discipline) to each site's needs. Intervention and implementation strategy fidelity data will be placed in a dashboard and will be provided to External Facilitators. External Facilitators will use the data to provide feedback to Internal Facilitators; and develop action plans for improvement in site clinician training or beneficiary care as needed. CAPABLE is a multi-component intervention used to enhance older adults ability to function at home independently.

Also known as: CAPABLE
MiCAP with IF and EF (Main Study)

A pilot study to examine use of informal caregiver engagement to provide CAPABLE to beneficiaries with Alzheimer's Disease or other Dementia using MiCAP with Internal Facilitation (implementation strategies from the (Main Study). External facilitator will be Champion, clinician, and an early adopters of CAPABLE.

MiCAP with IF (Main Study)

Eligibility Criteria

Age21 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)

You may not qualify if:

  • ADMINISTRATIVE SUPPLEMENT (all in main trial plus below):

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (18)

Northeast Michigan Community Service Agency (NEMCSA)

Alpena, Michigan, 49707, United States

Location

Region 3B Area Agency on Aging/CareWell Services Southwest

Battle Creek, Michigan, 49017, United States

Location

Region VII Area Agency on Aging

Bay City, Michigan, 48706, United States

Location

Region 2 Area Agency on Aging

Brooklyn, Michigan, 49230, United States

Location

Macomb-Oakland Regional Center Home Care, Inc.

Clinton Township, Michigan, 48038, United States

Location

Detroit Area Agency on Aging

Detroit, Michigan, 48207, United States

Location

UPCAP

Escanaba, Michigan, 49829, United States

Location

Valley Area Agency on Aging

Flint, Michigan, 48502, United States

Location

Area Agency on Aging of Western Michigan, Inc.

Grand Rapids, Michigan, 49525, United States

Location

Senior Services

Kalamazoo, Michigan, 49001, United States

Location

Tri-County Office on Aging

Lansing, Michigan, 48911, United States

Location

Senior Resources

Muskegon, Michigan, 49444, United States

Location

A&D Home Health Care, Inc.

Saginaw, Michigan, 48603, United States

Location

Region IV Area Agency on Aging

Saint Joseph, Michigan, 49085, United States

Location

The Information Center

Taylor, Michigan, 48180, United States

Location

Northern Lakes Community Mental Health/Northern Health Care Management

Traverse City, Michigan, 49684, United States

Location

Area Agency on Aging of Northwest Michigan

Traverse City, Michigan, 49696, United States

Location

The Senior Alliance

Wayne, Michigan, 48184, United States

Location

Related Publications (3)

  • Spoelstra SL, Schueller M, Sikorskii A. Testing an implementation strategy bundle on adoption and sustainability of evidence to optimize physical function in community-dwelling disabled and older adults in a Medicaid waiver: a multi-site pragmatic hybrid type III protocol. Implement Sci. 2019 Jun 13;14(1):60. doi: 10.1186/s13012-019-0907-1.

    PMID: 31196137BACKGROUND
  • Spoelstra SL, Schueller M, Dorn E, Sikorskii A. Measuring Organizational Readiness for Change in Michigan's Home and Community-based Services Program: Instrument Adaptation and Psychometric Testing. Home Health Care Serv Q. 2022 Jul-Sep;41(3):255-266. doi: 10.1080/01621424.2022.2077161. Epub 2022 May 18.

  • Spoelstra SL, Schueller M, Basso V, Sikorskii A. Results of a multi-site pragmatic hybrid type 3 cluster randomized trial comparing level of facilitation while implementing an intervention in community-dwelling disabled and older adults in a Medicaid waiver. Implement Sci. 2022 Aug 26;17(1):57. doi: 10.1186/s13012-022-01232-5.

MeSH Terms

Conditions

Alzheimer DiseaseDementia

Interventions

CAPABLE protocol

Condition Hierarchy (Ancestors)

Brain DiseasesCentral Nervous System DiseasesNervous System DiseasesTauopathiesNeurodegenerative DiseasesNeurocognitive DisordersMental Disorders

Limitations and Caveats

Main Study: we were unable to collect data on fidelity to intervention (CAPABLE) use in the electronic health record during the trial as COVID Pandemic minimal documentation standards were in effect due to short staffing which limited data entry by clinicians.

Results Point of Contact

Title
Dr. Sandra Spoelstra
Organization
Grand Valley State University

Study Officials

  • Sandra Spoelstra, PhD

    Grand Valley State University

    PRINCIPAL INVESTIGATOR

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
PARALLEL
Model Details: Main Study: Randomized 2-Arms. Administrative Supplement: Cohort (Pilot) Study.
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 9, 2018

First Posted

August 16, 2018

Study Start

June 6, 2019

Primary Completion

June 15, 2021

Study Completion

June 30, 2022

Last Updated

November 30, 2022

Results First Posted

November 30, 2022

Record last verified: 2022-11

Data Sharing

IPD Sharing
Will not share

Locations