NCT03405480

Brief Summary

This project aims to evaluate a rehabilitation program as treatment and uncover potential pathophysiological mechanisms of a newly identified chronic condition named "Post Pulmonary Embolism Syndrome" (PPS).

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
209

participants targeted

Target at P75+ for not_applicable

Timeline
Completed

Started Jan 2018

Longer than P75 for not_applicable

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

January 11, 2018

Completed
9 days until next milestone

Study Start

First participant enrolled

January 20, 2018

Completed
3 days until next milestone

First Posted

Study publicly available on registry

January 23, 2018

Completed
4.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 30, 2022

Completed
1.6 years until next milestone

Study Completion

Last participant's last visit for all outcomes

March 30, 2024

Completed
Last Updated

November 3, 2023

Status Verified

November 1, 2023

Enrollment Period

4.6 years

First QC Date

January 11, 2018

Last Update Submit

November 2, 2023

Conditions

Keywords

Pulmonary embolismDyspneaPost Pulmonary Embolism SyndromePPSRehabilitationCardiac magnetic resonance imaging (CMR)

Outcome Measures

Primary Outcomes (1)

  • ISWT

    Change in "Incremental Shuttle Walk Test" will be primary endpoint for interventional part of the study

    ISWT wil be performed at 12 weeks and 36 weeks after baseline

Secondary Outcomes (8)

  • mMRC

    12 weeks and 36 weeks after inclusion

  • Sensewear

    12 weeks and 36 weeks after baseline

  • HRQoL by EQ-5d

    12 weeks and 36 weeks after baseline

  • HRQoL by PEmb-QoL

    12 weeks and 36 weeks after baseline

  • Long term effect of physical capacity

    6 months after completing rehabilitation

  • +3 more secondary outcomes

Other Outcomes (1)

  • Myocardial fibrosis evaluated by cardiac MRI

    At baseline

Study Arms (2)

Rehabilitation

EXPERIMENTAL

Physiotherapist-supervised outpatient rehabilitation program 2 times a week for a total of 8 weeks.

Other: Rehabilitation

No rehabilitation

NO INTERVENTION

Patients will receive usual care, including information pamphlets with information on the disease and the general importance of exercise.

Interventions

Rehabilitation

Rehabilitation

Eligibility Criteria

Age18 Years - 75 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Persistent dyspnea defined as modified Medical Research Council (mMRC) breathlessness scale \>= 1 that has appeared or worsened after the diagnosis of PE (eligibility criteria for randomization)

You may not qualify if:

  • Significant pulmonary disease (COPD GOLD \>= 2, restrictive pulmonary disease, lung cancer or pleural disease.
  • Heart failure (either HFrEF, HFmrEF or HFpEF as defined in ESC guidelines)
  • Significant valvular heart disease
  • Chronic thromboemboli pulmonary hypertension (CTEPH)
  • Patients unfit for rehabilitation or walking tests du to old age, physical disability or disease
  • Patients with a history of poor compliance or any condition that would interfere with the ability to comply with the study protocol e.g. history of drug abuse, excessive alcohol beverage consumption, cognitive dysfunction or severe psychiatric disease
  • Active malignancy
  • Life expectancy less than 3 months
  • Pregnancy

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

The hospital of Østfold, Kalnes

Grålum, 1714, Norway

Location

Related Publications (4)

  • Dhayyat A, Stavem K, Jervan O, Hilde JM, Rashid D, Gleditsch J, Ghanima W, Steine K. Stress Echocardiography to Detect Exercise Pulmonary Hypertension in Patients With Chronic Thromboembolic Pulmonary Disease. Pulm Med. 2026 Jan 28;2026:4127338. doi: 10.1155/pm/4127338. eCollection 2026.

  • Jervan O, Haukeland-Parker S, Gleditsch J, Tavoly M, Klok FA, Steine K, Johannessen HH, Spruit MA, Atar D, Holst R, Astrup Dahm AE, Sirnes PA, Stavem K, Ghanima W. The Effects of Exercise Training in Patients With Persistent Dyspnea Following Pulmonary Embolism: A Randomized Controlled Trial. Chest. 2023 Oct;164(4):981-991. doi: 10.1016/j.chest.2023.04.042. Epub 2023 May 5.

  • Fabyan KD, Holley AB. Postpulmonary embolism syndrome. Curr Opin Pulm Med. 2021 Sep 1;27(5):335-341. doi: 10.1097/MCP.0000000000000789.

  • Haukeland-Parker S, Jervan O, Johannessen HH, Gleditsch J, Stavem K, Steine K, Spruit MA, Holst R, Tavoly M, Klok FA, Ghanima W. Pulmonary rehabilitation to improve physical capacity, dyspnea, and quality of life following pulmonary embolism (the PeRehab study): study protocol for a two-center randomized controlled trial. Trials. 2021 Jan 6;22(1):22. doi: 10.1186/s13063-020-04940-9.

MeSH Terms

Conditions

Pulmonary EmbolismDyspnea

Interventions

Rehabilitation

Condition Hierarchy (Ancestors)

Lung DiseasesRespiratory Tract DiseasesEmbolismEmbolism and ThrombosisVascular DiseasesCardiovascular DiseasesRespiration DisordersSigns and Symptoms, RespiratorySigns and SymptomsPathological Conditions, Signs and Symptoms

Intervention Hierarchy (Ancestors)

AftercareContinuity of Patient CarePatient CareTherapeuticsHealth ServicesHealth Care Facilities Workforce and Services

Study Officials

  • Waleed Ghanima, MD. Assoc.Prof

    Hospital of Østfold, Kalnes

    STUDY DIRECTOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

January 11, 2018

First Posted

January 23, 2018

Study Start

January 20, 2018

Primary Completion

August 30, 2022

Study Completion

March 30, 2024

Last Updated

November 3, 2023

Record last verified: 2023-11

Locations