NCT03315130

Brief Summary

The purpose of the study is to evaluate the safety and efficacy of RA101495 in patients with generalized Myasthenia Gravis (gMG). Subjects will be randomized in a 1:1:1 ratio to receive daily SC doses of 0.1 mg/kg RA101495, 0.3 mg/kg RA101495, or matching placebo for 12 weeks.

Trial Health

90
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
45

participants targeted

Target at P25-P50 for phase_2

Timeline
Completed

Started Oct 2017

Typical duration for phase_2

Geographic Reach
2 countries

30 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

October 11, 2017

Completed
5 days until next milestone

First Submitted

Initial submission to the registry

October 16, 2017

Completed
3 days until next milestone

First Posted

Study publicly available on registry

October 19, 2017

Completed
1.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 10, 2018

Completed
1.9 years until next milestone

Study Completion

Last participant's last visit for all outcomes

November 19, 2020

Completed
1.6 years until next milestone

Results Posted

Study results publicly available

June 27, 2022

Completed
Last Updated

July 27, 2022

Status Verified

July 1, 2022

Enrollment Period

1.2 years

First QC Date

October 16, 2017

Results QC Date

May 31, 2022

Last Update Submit

July 26, 2022

Conditions

Outcome Measures

Primary Outcomes (1)

  • Main Portion: Change From Baseline to Week 12 in Quantitative Myasthenia Gravis (QMG) Score

    The QMG is a standardized and validated quantitative strength scoring system that was developed specifically for myasthenia gravis (MG). The scale consists of 13 individual assessments, each scored on a 0-3 point scale (i.e., 0=none, 1=mild, 2=moderate, and 3=severe). The total score is the sum of the individual scores with a range of 0-39. Higher scores are representative of more severe impairment.

    From Baseline to Week 12

Secondary Outcomes (12)

  • Main Portion: Change From Baseline to Week 12 in the Myasthenia Gravis - Activities of Daily Living (MG-ADL) Scale

    From Baseline to Week 12

  • Main Portion: Change From Baseline to Week 12 in the Myasthenia Gravis - Quality of Life 15r (MG-QOL15r) Survey

    From Baseline to Week 12

  • Main Portion: Change From Baseline to Week 12 in the MG Composite Scale Total Score

    From Baseline to Week 12

  • Main Portion: Percentage of Participants With >= 3-point Reduction in QMG Total Score at Week 12

    Week 12

  • Main Portion: Percentage of Participants Who Required Rescue Therapy Over the 12-week Treatment Period

    Up to Week 12

  • +7 more secondary outcomes

Study Arms (3)

0.1 mg/kg zilucoplan (RA101495)

EXPERIMENTAL
Drug: zilucoplan (RA101495)

0.3 mg/kg zilucoplan (RA101495)

EXPERIMENTAL
Drug: zilucoplan (RA101495)

Placebo

PLACEBO COMPARATOR
Drug: Placebo

Interventions

Daily subcutaneous (SC) injection

0.1 mg/kg zilucoplan (RA101495)0.3 mg/kg zilucoplan (RA101495)

Daily subcutaneous (SC) injection

Placebo

Eligibility Criteria

Age18 Years - 85 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Diagnosis of gMG \[Myasthenia Gravis Foundation of America (MGFA) Class II-IVa\] at Screening
  • Positive serology for acetylcholine receptor (AChR) autoantibodies
  • QMG score ≥ 12 at Screening and Randomization
  • No change in corticosteroid dose for at least 30 days prior to Randomization or anticipated to occur during the 12-week Treatment Period
  • No change in immunosuppressive therapy, including dose, for at least 30 days prior to Randomization or anticipated to occur during the 12-week Treatment Period

You may not qualify if:

  • Thymectomy within 6 months prior to Randomization or scheduled to occur during the 12 week Treatment Period
  • History of meningococcal disease
  • Current or recent systemic infection within 2 weeks prior to Randomization or infection requiring intravenous (IV) antibiotics within 4 weeks prior to Randomization

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (30)

Diagnostic and Medical Clinic - Mobile

Mobile, Alabama, 36604, United States

Location

The Research Center of Southern California

Carlsbad, California, 92011, United States

Location

UCLA Medical Center

Los Angeles, California, 90095, United States

Location

University of California Irvine Health ALS and Neuromuscular Center

Orange, California, 92868, United States

Location

Yale University

New Haven, Connecticut, 06520, United States

Location

George Washington University

Washington D.C., District of Columbia, 20052, United States

Location

University of Florida

Jacksonville, Florida, 32209, United States

Location

University of South Florida

Tampa, Florida, 33620, United States

Location

Rush University Medical Center

Chicago, Illinois, 60612, United States

Location

University of Kansas Medical Center

Kansas City, Kansas, 66160, United States

Location

University of Maryland

Baltimore, Maryland, 21201, United States

Location

Massachusetts General Hospital

Boston, Massachusetts, 02114, United States

Location

Lahey Hospital and Medical Center

Burlington, Massachusetts, 01805, United States

Location

Wayne State University

Detroit, Michigan, 48202, United States

Location

Michigan State University

East Lansing, Michigan, 48864, United States

Location

University of Buffalo

Buffalo, New York, 14260, United States

Location

Hospital for Special Surgery

New York, New York, 10021, United States

Location

Mount Sinai Hospital

New York, New York, 10029, United States

Location

University of North Carolina at Chapel Hill

Chapel Hill, North Carolina, 27599, United States

Location

Ohio State University

Columbus, Ohio, 43210, United States

Location

Allegheny Neurological Associates

Pittsburgh, Pennsylvania, 15212, United States

Location

Wesley Neurology Clinic

Cordova, Tennessee, 38018, United States

Location

University of Texas Southwestern

Dallas, Texas, 75390, United States

Location

University of Utah

Salt Lake City, Utah, 84132, United States

Location

University of Vermont

Burlington, Vermont, 05405, United States

Location

Center for Neurological Disorders

Milwaukee, Wisconsin, 53215, United States

Location

University of Alberta Hospital

Edmonton, Alberta, T6G 2B7, Canada

Location

London Health Sciences Centre University Hospital

London, Ontario, N6A 5A5, Canada

Location

Toronto General Hospital

Toronto, Ontario, M5G 2C4, Canada

Location

Montreal Neurological Institute and Hospital

Montreal, Quebec, H3A 2B4, Canada

Location

Related Publications (1)

  • Howard JF Jr, Nowak RJ, Wolfe GI, Freimer ML, Vu TH, Hinton JL, Benatar M, Duda PW, MacDougall JE, Farzaneh-Far R, Kaminski HJ; Zilucoplan MG Study Group; Barohn R, Dimachkie M, Pasnoor M, Farmakidis C, Liu T, Colgan S, Benatar MG, Bertorini T, Pillai R, Henegar R, Bromberg M, Gibson S, Janecki T, Freimer M, Elsheikh B, Matisak P, Genge A, Guidon A, David W, Habib AA, Mathew V, Mozaffar T, Hinton JL, Hewitt W, Barnett D, Sullivan P, Ho D, Howard JF Jr, Traub RE, Chopra M, Kaminski HJ, Aly R, Bayat E, Abu-Rub M, Khan S, Lange D, Holzberg S, Khatri B, Lindman E, Olapo T, Sershon LM, Lisak RP, Bernitsas E, Jia K, Malik R, Lewis-Collins TD, Nicolle M, Nowak RJ, Sharma A, Roy B, Nye J, Pulley M, Berger A, Shabbir Y, Sachdev A, Patterson K, Siddiqi Z, Sivak M, Bratton J, Small G, Kohli A, Fetter M, Vu T, Lam L, Harvey B, Wolfe GI, Silvestri N, Patrick K, Zakalik K, Duda PW, MacDougall J, Farzaneh-Far R, Pontius A, Hoarty M. Clinical Effects of the Self-administered Subcutaneous Complement Inhibitor Zilucoplan in Patients With Moderate to Severe Generalized Myasthenia Gravis: Results of a Phase 2 Randomized, Double-Blind, Placebo-Controlled, Multicenter Clinical Trial. JAMA Neurol. 2020 May 1;77(5):582-592. doi: 10.1001/jamaneurol.2019.5125.

MeSH Terms

Conditions

Myasthenia Gravis

Interventions

zilucoplan

Condition Hierarchy (Ancestors)

Paraneoplastic Syndromes, Nervous SystemNervous System NeoplasmsNeoplasms by SiteNeoplasmsParaneoplastic SyndromesAutoimmune Diseases of the Nervous SystemNervous System DiseasesNeurodegenerative DiseasesNeuromuscular Junction DiseasesNeuromuscular DiseasesAutoimmune DiseasesImmune System Diseases

Results Point of Contact

Title
UCB
Organization
Cares

Study Officials

  • UCB Cares

    001 844 599 2273 (UCB)

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
GT60
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 2
Allocation
RANDOMIZED
Masking
QUADRUPLE
Who Masked
PARTICIPANT, CARE PROVIDER, INVESTIGATOR, OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 16, 2017

First Posted

October 19, 2017

Study Start

October 11, 2017

Primary Completion

December 10, 2018

Study Completion

November 19, 2020

Last Updated

July 27, 2022

Results First Posted

June 27, 2022

Record last verified: 2022-07

Data Sharing

IPD Sharing
Will not share

Locations