NCT03301493

Brief Summary

There is no evidence available about which molecular profiling methods are currently used for cancer patients in Austrian clinical practice. The construction of the registry proposed as a completely independent research endeavor, will be helpful for scientific evaluation and the establishment of highly credible data.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,500

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Mar 2017

Longer than P75 for all trials

Geographic Reach
1 country

11 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 30, 2017

Completed
6 months until next milestone

First Submitted

Initial submission to the registry

September 22, 2017

Completed
12 days until next milestone

First Posted

Study publicly available on registry

October 4, 2017

Completed
6.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2023

Completed
11 months until next milestone

Study Completion

Last participant's last visit for all outcomes

November 30, 2024

Completed
Last Updated

April 10, 2025

Status Verified

April 1, 2025

Enrollment Period

6.8 years

First QC Date

September 22, 2017

Last Update Submit

April 9, 2025

Conditions

Outcome Measures

Primary Outcomes (3)

  • Types of:molecular profiling methods

    To describe types of:molecular profiling methods used in the Austrian registry centres

    3 years

  • Types of cancer, for which comprehensive molecular profiling is used

    To describe types of cancer, for which comprehensive molecular profiling is used

    3 years

  • Timing of molecular profiling

    To describe the timing of molecular profiling in relation to stage of the disease (e.g. at diagnosis, after surgery, radiation therapy, after first/second/third/late line)

    3 years

Secondary Outcomes (4)

  • Number of patients with mutations identified

    3 years

  • Quality standards

    3 years

  • Treatment decisions

    3 years

  • Outcome of treatment

    3 years

Interventions

Genomic profiling, indicated as assessed by the medical need and as deemed appropriate by the physician according to routine practice

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodProbability Sample
Study Population

A cohort of oncology patients who received or plan to receive comprehensive genomic testing anytime on or after January 1, 2016. Patient medical, testing and treatment information will be obtained through extraction of data from existing patient medical charts. Longitudinal follow-up data, including survival and tumor progression, will also be extracted from patient medical charts. This patient follow-up data will be obtained until patient death or loss to follow-up.

You may qualify if:

  • This registry will include cancer patients for which broad genomic profiling is indicated as assessed by the medical need and as deemed appropriate by the physician, for example
  • cancer with high mutational load and suspicion of regular or frequent formation of neoantigens
  • skin, lung, stomach, esophagus, colorectum, bladder, uterus, cervix, liver, head and neck, kidney, breast
  • lymphoma B-cell
  • any other neoplastic disease where molecular targeting is performed but treatment fails
  • cancer of unknown primary origin (CUP)
  • planned or already carried out comprehensive genomic testing as of Jan 1, 2016 note: this registry will not initially register patients who are tested for only 1-5 mutations by conventional means, but patients undergoing genomic profiling based on NGS)
  • a patient´s signed informed consent
  • Patients ≥ 18 years of age

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (11)

IIIrd Medical Department, Private Medical University Hospital Salzburg

Salzburg, Salzburg, 5020, Austria

Location

Innere Medizin II, LKH Feldkirch

Feldkirch, 6807, Austria

Location

Medizinische Universitaet Graz, Univ.-Klinik f. Innere Medizin, Onkologie

Graz, A-8036, Austria

Location

Medizinische Universität Innsbruck

Innsbruck, 6020, Austria

Location

Universitätsklinikum Krems

Krems, 6500, Austria

Location

BHS Linz: Interne I: Internistische Onkologie, Hämatologie und Gastroenterologie

Linz, A-4020, Austria

Location

Universitätsklinikum St. Pölten

Sankt Pölten, 3100, Austria

Location

Medizinische Universität Wien

Vienna, 1090, Austria

Location

Salzkammergut-Klinikum Vöcklabruck

Vöcklabruck, 4840, Austria

Location

Klinikum Wels-Grieskirchen GmbH

Wels, 4600, Austria

Location

St. Vinzenz Krankenhaus Betriebs GmbH

Zams, 6511, Austria

Location

Related Publications (1)

  • Heregger R, Huemer F, Hutarew G, Hecht S, Cheveresan L, Kotzot D, Schamschula E, Rinnerthaler G, Melchardt T, Weiss L, Greil R. Sustained response to brigatinib in a patient with refractory metastatic pheochromocytoma harboring R1192P anaplastic lymphoma kinase mutation: a case report from the Austrian Group Medical Tumor Therapy next-generation sequencing registry and discussion of the literature. ESMO Open. 2021 Aug;6(4):100233. doi: 10.1016/j.esmoop.2021.100233. Epub 2021 Aug 7.

MeSH Terms

Conditions

Neoplasms, Unknown PrimaryStomach NeoplasmsHead and Neck NeoplasmsSkin NeoplasmsLung NeoplasmsColonic NeoplasmsEsophageal NeoplasmsUrinary Bladder NeoplasmsUterine NeoplasmsUterine Cervical NeoplasmsCarcinoma, HepatocellularKidney NeoplasmsBreast NeoplasmsHematologic Neoplasms

Interventions

Genetic Profile

Condition Hierarchy (Ancestors)

Neoplasm MetastasisNeoplastic ProcessesNeoplasmsPathologic ProcessesPathological Conditions, Signs and SymptomsGastrointestinal NeoplasmsDigestive System NeoplasmsNeoplasms by SiteDigestive System DiseasesGastrointestinal DiseasesStomach DiseasesSkin DiseasesSkin and Connective Tissue DiseasesRespiratory Tract NeoplasmsThoracic NeoplasmsLung DiseasesRespiratory Tract DiseasesColorectal NeoplasmsIntestinal NeoplasmsColonic DiseasesIntestinal DiseasesEsophageal DiseasesUrologic NeoplasmsUrogenital NeoplasmsFemale Urogenital DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital DiseasesUrinary Bladder DiseasesUrologic DiseasesMale Urogenital DiseasesGenital Neoplasms, FemaleUterine DiseasesGenital Diseases, FemaleGenital DiseasesUterine Cervical DiseasesAdenocarcinomaCarcinomaNeoplasms, Glandular and EpithelialNeoplasms by Histologic TypeLiver NeoplasmsLiver DiseasesKidney DiseasesBreast DiseasesHematologic DiseasesHemic and Lymphatic Diseases

Intervention Hierarchy (Ancestors)

Genetic BackgroundGenetic Phenomena

Study Officials

  • Richard Greil, MD

    IIIrd Medical Department, Private Medical University Hospital Salzburg

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
OTHER
Time Perspective
OTHER
Target Duration
1 Year
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 22, 2017

First Posted

October 4, 2017

Study Start

March 30, 2017

Primary Completion

December 31, 2023

Study Completion

November 30, 2024

Last Updated

April 10, 2025

Record last verified: 2025-04

Locations