NCT03282903

Brief Summary

The PREdiCCt Study: This is a major study that is now being launched. This is the first study of its kind and is specifically directed toward understanding how environmental factors and the gut microorganisms influence IBD flare and recovery. For the PREdiCCt study, the investigators hope to recruit 3100 people in remission from Crohn's disease or ulcerative colitis (illness under control) from 28 inflammatory bowel disease clinics across the UK. The investigators hope to conduct the study in the following stages;-

  1. 1.Patients with Crohn's disease, ulcerative colitis or inflammatory bowel disease unclassified (IBDU) in clinical remission (under control) will be approached in gastroenterology clinics across the country and invited to take part in the PREdiCCt study. Alternatively they will express their interest in the study after seeing PREdiCCt promotional leaflets/posters/videos/social media.
  2. 2.Participants will attend a clinic visit for routine tests and also to complete several questionnaires with a research nurse.
  3. 3.At home over the next week participants will complete detailed questionnaires assessing their environment and diet. Participants will also collect a stool and saliva sample and send this to our laboratories (the investigators have developed easy ways of doing this reliably by post). The stool sample is to analyse the microorganisms in the participant's gut and the saliva is used to analyse their DNA. In addition to this the participants are asked to complete a 4-day weighed food diary. The food diary is sent to the University of Aberdeen for analysis.
  4. 4.Investigators will then follow patients' progress over 24 months. They will be asked to complete a short questionnaire every month with a longer questionnaire after 12 months and culminating in a final questionnaire 24 months after their initial clinic visit.
  5. 5.If a participant experiences a flare, investigators will collect an additional stool sample; but most importantly investigators will look to see how the environmental and microorganism factors recorded at the beginning differ for those that flare up versus those that don't.
  6. 6.Finding out the environmental and dietary factors for patients to avoid because they trigger flare.
  7. 7.Finding out behaviours for patients to adopt because they bring about remission.
  8. 8.Finding out what the microorganisms that predict flare look like.
  9. 9.Gaining information which helps future studies aimed at finding better diets for IBD sufferers.
  10. 10.Developing ways of gathering information online from IBD patients about their well-being that doctors can routinely use.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
2,629

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Nov 2016

Longer than P75 for all trials

Geographic Reach
1 country

41 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

November 1, 2016

Completed
11 months until next milestone

First Submitted

Initial submission to the registry

September 12, 2017

Completed
2 days until next milestone

First Posted

Study publicly available on registry

September 14, 2017

Completed
2.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 20, 2020

Completed
2 years until next milestone

Study Completion

Last participant's last visit for all outcomes

March 20, 2022

Completed
Last Updated

May 20, 2024

Status Verified

May 1, 2024

Enrollment Period

3.4 years

First QC Date

September 12, 2017

Last Update Submit

May 17, 2024

Conditions

Outcome Measures

Primary Outcomes (1)

  • Clinical flare

    Patients will be asked to answer a monthly follow up, providing details of their IBD over the last month. A clinical flare will be determined by a patient answering "no" to the following question in the monthly follow up: "Do you think your disease has been well controlled in the past 1 month?"

    Up to 2 years

Secondary Outcomes (1)

  • Hard clinical flare

    Up to 2 years

Study Arms (2)

Crohn's disease patients

1550 Crohn's disease patients who are symptomatically controlled.

Ulcerative Colitis patients

1550 Ulcerative Colitis patients who are symptomatically controlled.

Eligibility Criteria

Age6 Years+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

IBD patients with a confirmed diagnosis of Crohn's Disease, Ulcerative Colitis or IBD unspecified, who are in clinical remission, \>6 since diagnosis, \>2 months since any change in therapy for Crohn's disease, ulcerative colitis or IBDU, aged 6 or over at study entry and who informed consent can be obtained from (or parent/guardian).

You may qualify if:

  • \- Confirmed Crohn's disease or ulcerative colitis or IBDU (Lennard-Jones/Porto criteria).
  • Clinical remission (see definition Section 3.2 of protocol) \>6 months since diagnosis with Crohn's disease, ulcerative colitis or IBDU \>2 months since any change in therapy for Crohn's disease, ulcerative colitis or IBDU Aged six years or over at study entry Written informed consent obtained from patient or parent / guardian

You may not qualify if:

  • \- Patient unwilling to take part in all aspects of the study Unable to obtain written informed consent Systemic corticosteroids (oral or intravenous) within the last two months Thiopurines / methotrexate / biologic therapy started in the preceding two months

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (41)

Aberdeen Royal Infirmary

Aberdeen, United Kingdom

Location

Bronglais General Hospital

Aberystwyth, United Kingdom

Location

NHS Lanarkshire

Airdrie, United Kingdom

Location

Ulster Hospital

Belfast, BT16 1RH, United Kingdom

Location

Bristol Royal Infirmary

Bristol, United Kingdom

Location

West Suffolk NHS Foundation Trust

Bury St Edmunds, United Kingdom

Location

Cambridge Addenbrooke's Hospital

Cambridge, United Kingdom

Location

Glangwili General Hospital

Carmarthen, United Kingdom

Location

University Hospital Coventry & Warwickshire

Coventry, United Kingdom

Location

Darlington Memorial Hospital

Darlington, United Kingdom

Location

Ninewells Hospital

Dundee, DD2 1UB, United Kingdom

Location

Eastbourne General Hospital

Eastbourne, United Kingdom

Location

Western General Hospital

Edinburgh, EH4 2XU, United Kingdom

Location

Royal Hospital for Sick Children,Edinburgh

Edinburgh, EH9 1LF, United Kingdom

Location

Royal Devon and Exeter Hospital

Exeter, United Kingdom

Location

Queen Elizabeth Hospital

Gateshead, United Kingdom

Location

Glasgow Royal Infirmary

Glasgow, G4 0SF, United Kingdom

Location

Queen Elizabeth University Hospital

Glasgow, G51 4TF, United Kingdom

Location

Royal Hospital for Children, Glasgow

Glasgow, G51 4TF, United Kingdom

Location

Withybush General Hospital

Haverfordwest, United Kingdom

Location

Raigmore Hospital

Inverness, IV2 3UJ, United Kingdom

Location

Kettering General Hospital NHS Foundation Trust

Kettering, United Kingdom

Location

Queen Elizabeth King's Lynn

Kings Lynn, United Kingdom

Location

Kingston Hospital

Kingston upon Thames, United Kingdom

Location

NHS Fife

Kirkcaldy, United Kingdom

Location

NHS Forth Valley

Larbert, United Kingdom

Location

Royal Liverpool and Broadgreen University Hospitals NHS Trust

Liverpool, United Kingdom

Location

St John's Hospital

Livingston, EH54 6PP, United Kingdom

Location

Guy's and St Thomas' NHS Foundation Trust

London, United Kingdom

Location

Royal Free Hospital

London, United Kingdom

Location

Royal London Hospital (Barts Health)

London, United Kingdom

Location

Newcastle Royal Victoria Hospital

Newcastle, United Kingdom

Location

Nottingham University Hospitals NHS Trust

Nottingham, United Kingdom

Location

Royal Berkshire Hospital

Reading, United Kingdom

Location

Salford Royal Hospital

Salford, United Kingdom

Location

Sandwell and West Birmingham Hospitals NHS Trust

Sandwell, United Kingdom

Location

Buckinghamshire Healthcare NHS Trust

Stoke Mandeville, United Kingdom

Location

Musgrove Park Hospital

Taunton, United Kingdom

Location

Pinderfield General Hospital

Wakefield, United Kingdom

Location

Warrington and Halton NHS FT

Warrington, United Kingdom

Location

Royal Hampshire Hospital

Winchester, United Kingdom

Location

Related Publications (1)

  • Constantine-Cooke N, Gros B, Plevris N, Williams LJ, Jones GR, Kyle J, Kennedy NA, Velasco-Pardo V, Rudge A, Alexander D, Anderson CA, Brusco de Freitas M, Derr LM, Derikx LA, Gilchrist S, Henderson P, Horgan GW, Irving P, Lamb CA, Jostins-Dean L, Lindsay JO, MacDonald J, Mowat C, Murray C, Parkes M, Siakavellas SI, Vallejos CA, Gaya DR, Rhodes JM, Johnstone AM, Weir CJ, Lees CW; PREdiCCt study group. Associations between demographic, clinical and dietary factors and flares in inflammatory bowel disease: the PRognostic effect of Environmental factors in Crohn's and Colitis (PREdiCCt) prospective cohort study. Gut. 2026 Jan 19:gutjnl-2025-337846. doi: 10.1136/gutjnl-2025-337846. Online ahead of print.

Biospecimen

Retention: SAMPLES WITH DNA

Stool sample (for microbiome analysis) Saliva sample (for genomic analysis) Blood sample (for biochemical, haematological and genomic analysis)

MeSH Terms

Conditions

Inflammatory Bowel DiseasesCrohn DiseaseColitis, Ulcerative

Condition Hierarchy (Ancestors)

GastroenteritisGastrointestinal DiseasesDigestive System DiseasesIntestinal DiseasesColitisColonic Diseases

Study Officials

  • Charlie Lees

    University of Edinburgh

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 12, 2017

First Posted

September 14, 2017

Study Start

November 1, 2016

Primary Completion

March 20, 2020

Study Completion

March 20, 2022

Last Updated

May 20, 2024

Record last verified: 2024-05

Data Sharing

IPD Sharing
Will not share

Anonymised data will be shared with collaborators to allow analysis. Only aggregate level data will be published.

Locations