NCT03117881

Brief Summary

The purpose of this study is to compare the effects of two delivery models of an evidence-based complementary alternative medicine (CAM) program that combines neurorehabilitative (functional) exercise, yoga, and Pilates for adults age 18-70 with multiple sclerosis (MS). CAM will be delivered as a 12-week program through two different delivery forms: On-site at a clinic (DirectCAM) and telerehabilitation (TeleCAM). Participants will be randomly assigned to one of these two groups. \*\*On March 16th, 2020, the University of Alabama at Birmingham halted all onsite non-essential research in response to the Covid-19 pandemic. Since then, the study has begun to conduct all testing remotely through videoconferencing technology. In addition, another study group, remote DirectCAM (rDirectCAM), has been incorporated into the study to continue the 12-week program delivery for newly recruited participants via videoconferencing technology.\*\*

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
911

participants targeted

Target at P75+ for not_applicable multiple-sclerosis

Timeline
Completed

Started Jan 2018

Longer than P75 for not_applicable multiple-sclerosis

Geographic Reach
1 country

40 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

April 5, 2017

Completed
13 days until next milestone

First Posted

Study publicly available on registry

April 18, 2017

Completed
9 months until next milestone

Study Start

First participant enrolled

January 8, 2018

Completed
3.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 30, 2021

Completed
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

October 30, 2022

Completed
2.1 years until next milestone

Results Posted

Study results publicly available

December 11, 2024

Completed
Last Updated

December 11, 2024

Status Verified

December 1, 2024

Enrollment Period

3.8 years

First QC Date

April 5, 2017

Results QC Date

April 1, 2024

Last Update Submit

December 7, 2024

Conditions

Keywords

Multiple SclerosisYogaPilatesTelerehabilitationPhysical activity

Outcome Measures

Primary Outcomes (5)

  • Change in Pain

    Pain was measured by 36-Item Short Form Survey (SF-36). The score ranges from 0 to 100, with a higher score indicating less pain. The change was estimated at Month 12 compared to baseline for DirectCAM and TeleCAM, and at Month 3 compared to baseline for rDirectCAM. The mean difference and 95% confidence interval of this outcome were reported based on mixed models analyzed using intent-to-treat approach, including all available baseline data for the outcome. Please note that while some participants completed baseline, not all outcome measures were completed. As a result, the sample size for rDirectCAM reported in this outcome was lower than the sample size reported in the Participant Flow Overview section.

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Fatigue

    Fatigue was measured by Modified Fatigue Impact Scale (MFIS). The total score range is 0 to 84, with a higher score indicating more fatigue. The change was estimated at Month 12 compared to baseline for DirectCAM and TeleCAM, and at Month 3 compared to baseline for rDirectCAM. The mean difference and 95% confidence interval of this outcome were reported based on mixed models analyzed using intent-to-treat approach, including all available baseline data for the outcome. Please note that while some participants completed baseline, not all outcome measures were completed. As a result, the sample size for each arm reported in this outcome was lower than the sample size reported in the Participant Flow Overview section.

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Quality of Life (Physical Component)

    The physical component of quality of life was measured by the 36-Item Short Form Survey (SF-36) Physical Component score. The score ranges from 0 to 100, with higher scores indicating better quality of life in the physical component. The change was estimated at Month 12 compared to baseline for DirectCAM and TeleCAM, and at Month 3 compared to baseline for rDirectCAM. The mean difference and 95% confidence interval of this outcome were reported based on mixed models analyzed using intent-to-treat approach, including all available baseline data for the outcome. Please note that while some participants completed baseline, not all outcome measures were completed. As a result, the sample size for each arm reported in this outcome was lower than the sample size reported in the Participant Flow Overview section.

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Quality of Life (Mental Component)

    The mental component of quality of life was measured by the 36-Item Short Form Survey (SF-36) Mental Component score. The score ranges from 0 to 100, with higher scores indicating better quality of life in the mental component. The change was estimated at Month 12 compared to baseline for DirectCAM and TeleCAM, and at Month 3 compared to baseline for rDirectCAM. The mean difference and 95% confidence interval of this outcome were reported based on mixed models analyzed using intent-to-treat approach, including all available baseline data for the outcome. Please note that while some participants completed baseline, not all outcome measures were completed. As a result, the sample size for each arm reported in this outcome was lower than the sample size reported in the Participant Flow Overview section.

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Physical Activity

    Measured by the Godin Leisure Time Exercise Questionnaire (GLTEQ). The score ranges from 0 to 119, with higher scores indicating more physical activity. The change was estimated at Month 12 compared to baseline for DirectCAM and TeleCAM, and at Month 3 compared to baseline for rDirectCAM. The mean difference and 95% confidence interval of this outcome were reported based on mixed models analyzed using intent-to-treat approach, including all available baseline data for the outcome. Please note that while some participants completed baseline, not all outcome measures were completed. As a result, the sample size for each arm reported in this outcome was lower than the sample size reported in the Participant Flow Overview section.

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

Secondary Outcomes (6)

  • Change in Balance (Berg Balance Scale)

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Balance (Five Times Site to Stand)

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Endurance

    48 weeks for DirectCAM and TeleCAM.

  • Change in Gait (Timed Up and Go)

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Gait (Timed 25-Foot Walk)

    48 weeks for DirectCAM and TeleCAM.

  • +1 more secondary outcomes

Other Outcomes (4)

  • Change in Outcome Expectations for Exercise

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Exercise Self-Efficacy

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • Change in Social Support for Exercise

    48 weeks for DirectCAM and TeleCAM and 12 weeks for rDirectCAM.

  • +1 more other outcomes

Study Arms (3)

DirectCAM

EXPERIMENTAL

The DirectCAM arm receives the intervention content via therapists at participating clinics.

Behavioral: DirectCAM

TeleCAM

EXPERIMENTAL

The TeleCAM arm receives the intervention content at home using pre-loaded tablets and Interactive Voice Response (IVR) system technology.

Behavioral: TeleCAM

rDirectCAM

EXPERIMENTAL

The rDirectCAM arm is being implemented in response to Covid-19. The rDirectCAM arm receives the intervention content delivered remotely in real-time by therapists via videoconferencing technology.

Behavioral: rDirectCAM

Interventions

DirectCAMBEHAVIORAL

The intervention consists of a 60-minute Complementary Alternative Medicine (CAM) program that includes yoga, Pilates and dual-functioning exercises, which is delivered 2 times per week for the first 8 weeks and 1 time per week for the following 4 weeks at a clinic with a therapist. At the end of week 12, participants will be asked to continue the program in their home for up to 1 year post-intervention using handouts.

DirectCAM
TeleCAMBEHAVIORAL

The intervention consists of a 60-minute Complementary Alternative Medicine (CAM) program that includes yoga, Pilates and dual-functioning exercises, which is delivered 2 times per week for the first 8 weeks and 1 time per week for the following 4 weeks at home via videos. At the end of week 12, participants will be asked to continue the program in their home for up to 1 year post-intervention using the videos.

TeleCAM
rDirectCAMBEHAVIORAL

The intervention consists of a 60-minute Complementary Alternative Medicine (CAM) program that includes yoga, Pilates and dual-functioning exercises, which is delivered 2 times per week for the first 8 weeks and 1 time per week for the following 4 weeks by a therapist via videoconferencing technology. At the end of week 12, participants will be asked to continue the program in their home for up to 1 year post-intervention using handouts.

rDirectCAM

Eligibility Criteria

Age18 Years - 70 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Physician permission to participate in the study
  • Mild to moderate disability (i.e., ambulate with/without assistive device, Patient-Determined Disease Steps \[PDDS\] 0 - 7
  • Able to use arms/legs for exercise

You may not qualify if:

  • Significant visual acuity that prevents seeing a tablet screen to follow home exercise program
  • Cardiovascular disease event within the last six months, several pulmonary disease, and/or renal failure
  • Active pressure ulcers
  • Currently pregnant
  • Within 30 days of receiving a rehabilitation program
  • Already meeting physical activity guidelines (GLTEQ \> 24)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (40)

Upstream Rehabilitation Inc.

Athens, Alabama, 35613, United States

Location

Upstream Rehabilitation Inc.

Bessemer, Alabama, 35022, United States

Location

Tanner Foundation

Birmingham, Alabama, 35209, United States

Location

Upstream Rehabilitation Inc.

Calera, Alabama, 35040, United States

Location

Upstream Rehabilitation Inc.

Cullman, Alabama, 35058, United States

Location

Southeast Alabama Medical Center Rehabilitation Services

Dothan, Alabama, 36301, United States

Location

Gulf Coast Therapy

Fairhope, Alabama, 36532, United States

Location

Gulf Coast Therapy

Foley, Alabama, 36536, United States

Location

Encore Rehabilitation

Fort Payne, Alabama, 35967, United States

Location

Upstream Rehabilitation Inc.

Gadsden, Alabama, 35906, United States

Location

Therapy Achievements

Huntsville, Alabama, 35801, United States

Location

Upstream Rehabilitation Inc.

Jacksonville, Alabama, 36265, United States

Location

Upstream Rehabilitation Inc.

Jasper, Alabama, 35501, United States

Location

Gulf Coast Therapy

Mobile, Alabama, 36607, United States

Location

Montgomery East Physical Therapy

Montgomery, Alabama, 36117, United States

Location

Upstream Rehabilitation Inc.

Muscle Shoals, Alabama, 35674, United States

Location

Encore Rehabilitation

Phenix City, Alabama, 36867, United States

Location

Upstream Rehabilitation Inc.

Tuscaloosa, Alabama, 35046, United States

Location

Cornerstone Rehabilitation

Batesville, Mississippi, 38668, United States

Location

Upstream Rehabilitation Inc.

Byram, Mississippi, 39272, United States

Location

Upstream Rehabilitation Inc.

Canton, Mississippi, 39046, United States

Location

Upstream Rehabilitation Inc.

Columbus, Mississippi, 39702, United States

Location

Upstrem Rehabilitation

Forest, Mississippi, 39074, United States

Location

Upstream Rehabilitation Inc.

Fulton, Mississippi, 38843, United States

Location

River City Rehabilitation

Greenville, Mississippi, 38703, United States

Location

Encore Rehabilitation

Grenada, Mississippi, 38901, United States

Location

Upstream Rehabilitation Inc.

Hattiesburg, Mississippi, 39402, United States

Location

Methodist Rehabilitation Center

Jackson, Mississippi, 39216, United States

Location

Encore Rehabilitation

Ocean Springs, Mississippi, 39564, United States

Location

North Sunflower Medical Center

Ruleville, Mississippi, 38771, United States

Location

Cornerstone Rehabilitation

Southaven, Mississippi, 38671, United States

Location

Upstream Rehabilitation Inc.

Starkville, Mississippi, 39759, United States

Location

Upstream Rehabilitation Inc.

Tupelo, Mississippi, 38801, United States

Location

Cornerstone Rehabilitation

Water Valley, Mississippi, 38965, United States

Location

Upstream Rehabilitation Inc.

Bristol, Tennessee, 37620, United States

Location

Upstream Rehabilitation Inc.

Cool Springs, Tennessee, 37067, United States

Location

Upstream Rehabilitation Inc.

Gordonsville, Tennessee, 38563, United States

Location

Upstream Rehabilitation Inc.

Knoxville, Tennessee, 37931, United States

Location

Upstream Rehabilitation Inc.

Newport, Tennessee, 37821, United States

Location

Upstream Rehabilitation Inc.

Winchester, Tennessee, 37398, United States

Location

Related Publications (3)

  • Tracy TF, Young HJ, Lai B, Layton B, Stokes D, Fry M, Mehta T, Riser ES, Rimmer J. Supporting successful recruitment in a randomized control trial comparing clinic and home-based exercise among adults with multiple sclerosis. Res Involv Engagem. 2022 Jul 29;8(1):35. doi: 10.1186/s40900-022-00366-6.

  • Lai B, Chiu CY, Pounds E, Tracy T, Mehta T, Young HJ, Riser E, Rimmer J. COVID-19 Modifications for Remote Teleassessment and Teletraining of a Complementary Alternative Medicine Intervention for People With Multiple Sclerosis: Protocol for a Randomized Controlled Trial. JMIR Res Protoc. 2020 Jul 3;9(7):e18415. doi: 10.2196/18415.

  • Rimmer JH, Thirumalai M, Young HJ, Pekmezi D, Tracy T, Riser E, Mehta T. Rationale and design of the tele-exercise and multiple sclerosis (TEAMS) study: A comparative effectiveness trial between a clinic- and home-based telerehabilitation intervention for adults with multiple sclerosis (MS) living in the deep south. Contemp Clin Trials. 2018 Aug;71:186-193. doi: 10.1016/j.cct.2018.05.016. Epub 2018 May 30.

MeSH Terms

Conditions

Multiple SclerosisMotor Activity

Condition Hierarchy (Ancestors)

Demyelinating Autoimmune Diseases, CNSAutoimmune Diseases of the Nervous SystemNervous System DiseasesDemyelinating DiseasesAutoimmune DiseasesImmune System DiseasesBehavior

Limitations and Caveats

Our study had some limitations, which include: 1) limitations in reimbursement for onsite clinic services; 2) apprehension and competency in using technology; 3) difficulty in following participants residing in low resource communities over time; 4) challenge in identifying rural clinic sites, resulting in less than 10% of our participants from rural areas; 5) much higher percentage of female participants.

Results Point of Contact

Title
Dr. Tapan Mehta
Organization
University of Alabama at Birmingham

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Purpose
OTHER
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Principal Investigator

Study Record Dates

First Submitted

April 5, 2017

First Posted

April 18, 2017

Study Start

January 8, 2018

Primary Completion

October 30, 2021

Study Completion

October 30, 2022

Last Updated

December 11, 2024

Results First Posted

December 11, 2024

Record last verified: 2024-12

Data Sharing

IPD Sharing
Will not share

Locations