NCT03110471

Brief Summary

Lay Summary: The investigators have shown in randomised controlled trials and observation studies that structured nurse-led medicines' monitoring using the WWADR Profile benefits patients, for example, by reducing pain and sedation and identifying high risk cardiovascular conditions. The investigators now aim to understand what is needed to sustain implementation of the WWADR Profile in routine practice and explore future directions. The participants of the investigators previous research, 5 newly recruited care homes, and stakeholders - care home managers, carers, healthcare professionals, and service users - will be asked to contribute interviews, observations and reflective diaries/ accounts. The investigators are interested in their experiences of medication use, medication management, adverse effects and barriers and facilitators of medicine monitoring, and how electronic devices can enhance nurse-led monitoring.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
60

participants targeted

Target at P25-P50 for all trials

Timeline
Completed

Started Mar 2017

Geographic Reach
1 country

10 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 1, 2017

Completed
21 days until next milestone

First Submitted

Initial submission to the registry

March 22, 2017

Completed
21 days until next milestone

First Posted

Study publicly available on registry

April 12, 2017

Completed
12 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 30, 2018

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

March 30, 2018

Completed
2.2 years until next milestone

Results Posted

Study results publicly available

June 24, 2020

Completed
Last Updated

June 24, 2020

Status Verified

June 1, 2020

Enrollment Period

1.1 years

First QC Date

March 22, 2017

Results QC Date

September 16, 2019

Last Update Submit

June 11, 2020

Conditions

Keywords

Cognitive impairmentantipsychoticsantidepressants

Outcome Measures

Primary Outcomes (1)

  • Number of Participants With Adverse Drug Reactions (ADRs) Treated

    ADRs (adverse drug reactions) (as listed in the British National Formulary and manufacturers' datasheets) where actions are taken to correct the problem.

    6 months

Secondary Outcomes (5)

  • Time for ADRe Administration (Including Interruptions) in Minutes

    up to 1 hour

  • Number of Problems Identified Per Resident

    up to 1 hour

  • Number of Changes to Care by Nurses Identified Per Resident

    up to 4 weeks

  • Number of Pharmacist Recommendations for Prescription Review Per Resident

    up to 4 weeks

  • Number of Drug Interactions Per Resident

    up to 4 weeks

Study Arms (10)

Glangarnant Care Home

This is a 'before and after' observational study involving 10 care homes, listed below as groups. The investigators will observe the changes in detection and management of adverse drug reactions between usual care and with administration of the West Wales ADR Profile. Usual care will be provided before and during the intervention period.

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Fieldbay Care Homes

All groups are having identical intervention, so the above text applies to all.

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Neuadd Drymmau Care Home

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Monkstone House,

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Danygraig House

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Ty Coch

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Swn y mor

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Hengoed court

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Hengoed park

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Cefn Lodge care home

As above

Behavioral: West Wales Adverse Drug Reaction (WWADR) ProfileBehavioral: usual care

Interventions

Nurse-led medicines' monitoring in care homes: a process evaluation of the impact and sustainability of the West Wales Adverse Drug Reaction (WWADR) Profile and pharmacist involvement

Cefn Lodge care homeDanygraig HouseFieldbay Care HomesGlangarnant Care HomeHengoed courtHengoed parkMonkstone House,Neuadd Drymmau Care HomeSwn y morTy Coch
usual careBEHAVIORAL

usual care

Cefn Lodge care homeDanygraig HouseFieldbay Care HomesGlangarnant Care HomeHengoed courtHengoed parkMonkstone House,Neuadd Drymmau Care HomeSwn y morTy Coch

Eligibility Criteria

Age18 Years - 105 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

The investigators will work with healthcare professionals and service users involved in care homes in South West Wales. The target population for nurse-led medicines' monitoring is care home service users receiving at least one of: antipsychotics, anti-epileptics/ mood stabilisers, antidepressants, anxiolytics or hypnotics (benzodiazepines or Z drugs). Up to 3 service users per care home will be observed. Care homes will be invited to participate in the pilot work with pharmacists.

You may qualify if:

  • Willing to use the WWADR monitoring Profile in routine practice

You may not qualify if:

  • Resident at the care home and expected to continue to be for 1 year;
  • Currently taking one of antipsychotics, anti-epileptics/ mood stabilisers, antidepres-sants, benzodiazepines, Z drugs;
  • Diagnosis of dementia, or dementia related condition, recorded; permanent local authority funding for dementia care; permanent cognitive impairment, but no diagnosis in care home notes.
  • Willing and able to give informed, signed consent themselves, or where capacity is lacking, a consultee who is willing to give advice
  • Not well enough to participate, as screened by their nurses;
  • Aged \<18;
  • Receiving active palliative care.
  • Professionals
  • Involved in the provision of care for service users described above
  • Willing to participate in the study
  • Not involved with service users in care homes
  • Unwilling to consent to participation

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (10)

Llys Gywn Residential Home

Cardiff, Cardiff, Wales, CF33 4PN, United Kingdom

Location

Monkstone House

Cardiff, Wales, CF36 3HU, United Kingdom

Location

Danygraig House

Cardiff, Wales, CF36 5SR, United Kingdom

Location

Neuadddrymmau care home

Swansea, Wales, SA10 6NR, United Kingdom

Location

Cefnlodge Care Home

Swansea, Wales, SA10 6YR, United Kingdom

Location

Swn-y-mor care home

Swansea, Wales, SA12 7PH, United Kingdom

Location

Glangarnant care home

Swansea, Wales, SA18 1UF, United Kingdom

Location

Fieldbay Ltd

Swansea, Wales, SA79LA, United Kingdom

Location

Three Cliffs Care Home

Swansea, SA3 2HQ, United Kingdom

Location

Glais Care Home

Swansea, SA79EN, United Kingdom

Location

Related Publications (18)

  • Schork NJ. Personalized medicine: Time for one-person trials. Nature. 2015 Apr 30;520(7549):609-11. doi: 10.1038/520609a. No abstract available.

    PMID: 25925459BACKGROUND
  • Hakkarainen KM, Andersson Sundell K, Petzold M, Hagg S. Prevalence and perceived preventability of self-reported adverse drug events--a population-based survey of 7099 adults. PLoS One. 2013 Sep 4;8(9):e73166. doi: 10.1371/journal.pone.0073166. eCollection 2013.

    PMID: 24023828BACKGROUND
  • NICE Medicines and Prescribing Centre (UK). Medicines Optimisation: The Safe and Effective Use of Medicines to Enable the Best Possible Outcomes. Manchester: National Institute for Health and Care Excellence (NICE); 2015 Mar. Available from http://www.ncbi.nlm.nih.gov/books/NBK305021/

    PMID: 26180890BACKGROUND
  • Aitken M. & Valkova S. (2013). Avoidable costs in US Healthcare. IMS Institute for Healthcare Informatics, Parsippany, NJ, USA

    BACKGROUND
  • Jordan S. Managing adverse drug reactions: an orphan task. J Adv Nurs. 2002 Jun;38(5):437-48. doi: 10.1046/j.1365-2648.2002.02205.x.

    PMID: 12028277BACKGROUND
  • Jordan S, Tunnicliffe C, Sykes A. Minimizing side-effects: the clinical impact of nurse-administered 'side-effect' checklists. J Adv Nurs. 2002 Jan;37(2):155-65. doi: 10.1046/j.1365-2648.2002.02064.x.

    PMID: 11851783BACKGROUND
  • Gabe ME, Murphy F, Davies GA, Russell IT, Jordan S. Medication monitoring in a nurse-led respiratory outpatient clinic: pragmatic randomised trial of the West Wales Adverse Drug Reaction Profile. PLoS One. 2014 May 5;9(5):e96682. doi: 10.1371/journal.pone.0096682. eCollection 2014.

    PMID: 24798210BACKGROUND
  • Jones R, Moyle C, Jordan S. Nurse-led medicines monitoring: a study examining the effects of the West Wales Adverse Drug Reaction Profile. Nurs Stand. 2016 Nov 30;31(14):42-53. doi: 10.7748/ns.2016.e10447.

    PMID: 27902153BACKGROUND
  • Jordan S, Gabe M, Newson L, Snelgrove S, Panes G, Picek A, Russell IT, Dennis M. Medication monitoring for people with dementia in care homes: the feasibility and clinical impact of nurse-led monitoring. ScientificWorldJournal. 2014 Feb 23;2014:843621. doi: 10.1155/2014/843621. eCollection 2014.

    PMID: 24707218BACKGROUND
  • Jordan S, Gabe-Walters ME, Watkins A, Humphreys I, Newson L, Snelgrove S, Dennis MS. Nurse-Led Medicines' Monitoring for Patients with Dementia in Care Homes: A Pragmatic Cohort Stepped Wedge Cluster Randomised Trial. PLoS One. 2015 Oct 13;10(10):e0140203. doi: 10.1371/journal.pone.0140203. eCollection 2015.

    PMID: 26461064BACKGROUND
  • Yang S, Chen YC, Nicolini L, Pasupathy P, Sacks J, Su B, Yang R, Sanchez D, Chang YF, Wang P, Schnyer D, Neikirk D, Lu N. "Cut-and-Paste" Manufacture of Multiparametric Epidermal Sensor Systems. Adv Mater. 2015 Nov 4;27(41):6423-30. doi: 10.1002/adma.201502386. Epub 2015 Sep 23.

    PMID: 26398335BACKGROUND
  • Francis, R. (2013) Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry. London: The Stationery office. http://www.midstaffspublicinquiry.com/report.

    BACKGROUND
  • Andrews J, Butler M. Trusted to Care: An independent Review of the Princess of Wales Hospital and Neath Port Talbot Hospital at Abertawe Bro Morgannwg University Health Board People, Dementia Services Development Centre, the People Organisation. 2014. Available at: http://wales.gov.uk/docs/dhss/publications/140512trustedtocareen.pdf

    BACKGROUND
  • Flynn M. 2015 In Search of Accountability. Welsh Government, Cardiff, OGL Crown copyright 2015 WG25658 ISBN 978 1 4734 4027 2

    BACKGROUND
  • Older People's Commissioner for Wales. A Place to Call Home. Older people's Commissioner for Wales, Cardiff. 2014. Available at: http://www.olderpeoplewales.com/Libraries/Uploads/A_Place_to_Call_Home_-_A_Review_into_the_Quality_of_Life_and_Care_of_Older_People_living_in_Care_Homes_in_Wales.sflb.ashx

    BACKGROUND
  • Jordan S, Knight J, Pointon D. Monitoring adverse drug reactions: scales, profiles, and checklists. Int Nurs Rev. 2004 Dec;51(4):208-21. doi: 10.1111/j.1466-7657.2004.00251.x.

    PMID: 15530161BACKGROUND
  • Jordan S, Banner T, Gabe-Walters M, Mikhail JM, Round J, Snelgrove S, Storey M, Wilson D, Hughes D; Medicines Management Group. Nurse-led medicines' monitoring in care homes study protocol: a process evaluation of the impact and sustainability of the adverse drug reaction (ADRe) profile for mental health medicines. BMJ Open. 2018 Sep 28;8(9):e023377. doi: 10.1136/bmjopen-2018-023377.

    PMID: 30269073BACKGROUND
  • Jordan S, Banner T, Gabe-Walters M, Mikhail JM, Panes G, Round J, Snelgrove S, Storey M, Hughes D; Medicines' Management Group, Swansea University. Nurse-led medicines' monitoring in care homes, implementing the Adverse Drug Reaction (ADRe) Profile improvement initiative for mental health medicines: An observational and interview study. PLoS One. 2019 Sep 11;14(9):e0220885. doi: 10.1371/journal.pone.0220885. eCollection 2019.

Related Links

MeSH Terms

Conditions

DementiaCognitive Dysfunction

Condition Hierarchy (Ancestors)

Brain DiseasesCentral Nervous System DiseasesNervous System DiseasesNeurocognitive DisordersMental DisordersCognition Disorders

Results Point of Contact

Title
sue jordan
Organization
swansea university

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Prof Susan Jordan

Study Record Dates

First Submitted

March 22, 2017

First Posted

April 12, 2017

Study Start

March 1, 2017

Primary Completion

March 30, 2018

Study Completion

March 30, 2018

Last Updated

June 24, 2020

Results First Posted

June 24, 2020

Record last verified: 2020-06

Data Sharing

IPD Sharing
Will not share

Individual participant data, will not be shared \& participants not identified. The investigators aim to publish the outcomes in 2018. Swansea university website.

Available IPD Datasets

Publications Access

Locations