Mechanisms of Health Literacy and Information Accessibility in the Deaf

NCT03093779 | Completed

• 1 other identifier: HUM00104423
• Study Type: observational
• Target: 901
• Locations: 1 country
• Sites: 3

Brief Summary

The purpose of this proposal is to examine the attitudes, knowledge, and skills related to health information that influence health literacy among Deaf individuals.The study team will also examine frequently overlooked potential predictors of health literacy, including cognitive abilities, resilience, and self-efficacy. To achieve the study objectives, researchers will conduct an explanatory sequential mixed methods design using extensive quantitative data collection procedures, namely, cross-sectional surveys and measures that will identify predictors and moderators of health literacy with Deaf and hearing subjects. These results will inform the subsequent qualitative assessment using elicitation interviews that will help explain the quantitative results, and elucidate how and why Deaf individuals access and understand health information. A community advisory board consisting of Deaf community members will provide oversight to the proposal that will be led by multiple Deaf investigators, including the PI. The Deaf community, due to communication barriers, relative social marginalization, and their reliance on visual learning, provides a unique insight into how health information is distributed and disseminated visually. Findings may be applicable to other individuals with hearing loss who navigate and cope with life more visually than the typical hearing person. This will be critical to determine more accurately the effect of visual learning and existing online health information on health literacy.

Conditions

Hearing Loss; Health Literacy

Keywords

Hearing Loss; Deaf; Health Literacy; Health Information; Visual Learning

Outcome Measures

Primary Outcomes (1)

• Health Literacy

  Use of the American Sign Language- Newest Vital Sign and the English version of the Newest Vital Sign will be used to assess health literacy. Scores range from 0-6 with 5-6 considered to be adequate health literacy.

  5 minutes in a single data assessment

Study Arms (2)

Deaf

Individuals who are deaf and use sign language to communicate.

Other: Health Information Assessment

Hearing

Individuals with no hearing loss and who communicate in spoken English.

Other: Health Information Assessment

Interventions

Health Information Assessment OTHER

Assess how hearing loss and health literacy alters the ability to access and comprehend online health information

Deaf; Hearing

Eligibility Criteria

• Age: 18 Years - 70 Years
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

450 Deaf ASL users and 450 Hearing native English speakers

You may qualify if:

• Deaf American Sign Language Users:
• \- deaf persons who use sign language and live in Flint, Michigan, Rochester NY, and Chicago, IL metropolitan areas.
• Hearing, English speakers:
• \- hearing persons who speak fluent English and live in Flint, Michigan, Rochester NY, and Chicago, IL metropolitan areas.

You may not qualify if:

• Those who have cognitive impairment (e.g., due to dementia, delirium or intoxication).
• Those who unable to consent to the study.
• Individuals with limited vision will be excluded if they are unable to effectively use a PC (i.e., function vision at 20-200 or worse).

Sponsors & Collaborators

• University of Michigan: lead
• Rochester Institute of Technology: collaborator
• Sinai Health System: collaborator
• Hurley Medical Center: collaborator
• Boston University: collaborator

Study Sites (3)

Mount Sinai Hospital

Chicago, Illinois, 60608, United States

Location

Hurley Medical Center

Flint, Michigan, 48503, United States

Location

Rochester Institute of Technology/National Technical Institute for the Deaf

Rochester, New York, 14623, United States

Location

Related Publications (3)

• McKee MM, Hauser PC, Champlin S, Paasche-Orlow M, Wyse K, Cuculick J, Buis LR, Plegue M, Sen A, Fetters MD. Deaf Adults' Health Literacy and Access to Health Information: Protocol for a Multicenter Mixed Methods Study. JMIR Res Protoc. 2019 Oct 9;8(10):e14889. doi: 10.2196/14889.

  PMID: 31599730 BACKGROUND

• Champlin S, Cuculick J, Hauser PC, Wyse K, McKee MM. Using Gaze Tracking as a Research Tool in the Deaf Health Literacy and Access to Health Information Project: Protocol for a Multisite Mixed Methods Study and Preliminary Results. JMIR Res Protoc. 2021 Sep 7;10(9):e26708. doi: 10.2196/26708.

  PMID: 34491211 BACKGROUND

• Panko TL, Contreras J, Postl D, Mussallem A, Champlin S, Paasche-Orlow MK, Hill J, Plegue MA, Hauser PC, McKee M. The Deaf Community's Experiences Navigating COVID-19 Pandemic Information. Health Lit Res Pract. 2021 Apr;5(2):e162-e170. doi: 10.3928/24748307-20210503-01. Epub 2021 Jun 22.

  PMID: 34213997 RESULT

MeSH Terms

Conditions

Hearing Loss; Spatial Learning

Condition Hierarchy (Ancestors)

Hearing Disorders; Ear Diseases; Otorhinolaryngologic Diseases; Sensation Disorders; Neurologic Manifestations; Nervous System Diseases; Signs and Symptoms; Pathological Conditions, Signs and Symptoms; Spatial Behavior; Behavior

Study Officials

• Michael McKee, MD, MPH

  University of Michigan

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Assistant Professor of Family Medicine

Study Record Dates

• First Submitted: March 22, 2017
• First Posted: March 28, 2017
• Study Start: December 9, 2016
• Primary Completion: August 30, 2021
• Study Completion: August 30, 2021
• Last Updated: October 6, 2021

Record last verified: 2021-09

Locations

US (3)