The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease

NCT02909543 | Unknown

• 1 other identifier: 51-2016
• Study Type: observational
• Target: 15
• Locations: 1 country
• Sites: 1

Brief Summary

This research will focus on young women between the ages of 18-38 who underwent a heart operation and their life experiences. This research will focus on these life events and the paradigm of these women being raised as "heart sick," and consequently lacking self-esteem (Frigiola, Bull, \& Wray, 2014; Hickey et al., 2012). Most qualitative studies focusing on the quality of life compare men and women, completely ignoring women's body image and the experience of womanhood (Hickey et al., 2012; Hövels-Gürich et al., 2007; Sarikouch, et al., 2013). This study aims to focus on women's stories about their life experiences and the influence of surgery(ies) on their daily life using an the qualitative phenomenological approach.

Conditions

Women With Congenital Heart Diseases

Outcome Measures

Primary Outcomes (1)

• Interview about the life experience of young women (age 18-38) who live with congenital heart disease and overwent an open heart operation.

  1day, at the time of the interview

Interventions

Observation and Interviwe OTHER

The research data will be conducted by using a semi structured interview of the participants in the study.

Eligibility Criteria

• Age: 18 Years - 38 Years
• Sex: female
• Healthy Volunteers: No
• Age Groups: Adult (18-64)
• Sampling Method: Non-Probability Sample

Study Population

This study aims to focus on women's stories about their life experiences and the influence of surgery(ies) on their daily life using an the qualitative phenomenological approach.

You may qualify if:

• Atrial septal defect or ASD,
• Ventricle septal defect or VSD,
• Tetralogy of Fallot or TOF
• Translocation of great arteries or TGA
• underwent heart operation
• Hebrew speakers that are able to understand the meanings of the questions and tell their life stories.

You may not qualify if:

• Non Hebrew speakers
• Did not underwent heart surgery.

Sponsors & Collaborators

• Hillel Yaffe Medical Center: lead

Study Sites (1)

Hillel Yaffe MC,

Hadera, Israel

RECRUITING

MeSH Terms

Interventions

Observation

Intervention Hierarchy (Ancestors)

Methods; Investigative Techniques

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: RETROSPECTIVE
• Sponsor Type: OTHER GOV
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: September 1, 2016
• First Posted: September 21, 2016
• Study Start: September 1, 2016
• Primary Completion: September 1, 2017
• Study Completion: October 1, 2017
• Last Updated: September 21, 2016

Record last verified: 2016-05

Locations

IL (1)