NCT02823210

Brief Summary

Myeloproliferative neoplasms (MPN) are clonal hematopoietic disorders sharing a common natural evolution: a chronic phase, characterized by a major risk of vascular events, followed by an accelerated phase eventually leading to transformation to acute leukemia. MPN include polycythemia vera, essential thrombocythemia, primary myelofibrosis, and rarer entities. During the past years, CML became a paradigm for targeted therapy and personalized cancer medicine. For other MPNs, the discovery of the JAK2V617F mutation followed by many other mutations, opened similar perspectives. However, several questions remain to be answered in MPNs regarding the clinical implication of these major scientific discoveries: what is the clinical impact of JAK2V617F and other molecular biomarkers on the risks of complications and progression? Can these new biomarkers be used in the perspective of a personalized therapy of MPNs? his project will focus on the qualification of a series of known mutations as biomarkers in MPNs based on large multicenter cohorts of patients with well-annotated samples

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
300

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Jun 2016

Typical duration for all trials

Geographic Reach
1 country

2 active sites

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

June 1, 2016

Completed
29 days until next milestone

First Submitted

Initial submission to the registry

June 30, 2016

Completed
6 days until next milestone

First Posted

Study publicly available on registry

July 6, 2016

Completed
2.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 1, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

June 1, 2019

Completed
Last Updated

March 29, 2018

Status Verified

March 1, 2018

Enrollment Period

3 years

First QC Date

June 30, 2016

Last Update Submit

March 27, 2018

Conditions

Outcome Measures

Primary Outcomes (1)

  • cumulative incidence or progression

    inclusion

Secondary Outcomes (4)

  • Disease phenotype according to WHO classification

    3 years

  • Treatment response/resistance

    3 years

  • Mean life-years gained

    3 years

  • Quality-adjusted life years gained

    3 years

Eligibility Criteria

Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Philadelphia-negative Myeloproliferative neoplasms (MPN)

You may qualify if:

  • Patients suffering from Myeloproliferative neoplasms (MPN) diagnosed between 2005 and 2013
  • Sample DNA diagnostics available: 500 mcg
  • Untreated or treated with hydroxyurea, ruxolitinib, alpha interferon,
  • Patient has given his(her) own consent for the use of the sample for research on the pathology and genetic analyzes

You may not qualify if:

  • Refused to participate
  • Patient treated with another molecule that hydroxyurea, ruxolitinib, or alpha interferon

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (2)

Centre d'Investigations Cliniques

Paris, 75010, France

RECRUITING

Centre d'Investigations Cliniques

Paris, 75010, France

RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Molecular markers include mutations in JAK2, MPL, TET2, LNK, CBL, IDH1/2, DNMT3A, EZH2, ASXL1, SF3B1, SRSF2, NRAS/KRAS, and TP53

MeSH Terms

Conditions

Myeloproliferative Disorders

Condition Hierarchy (Ancestors)

Bone Marrow DiseasesHematologic DiseasesHemic and Lymphatic Diseases

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
RETROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

June 30, 2016

First Posted

July 6, 2016

Study Start

June 1, 2016

Primary Completion

June 1, 2019

Study Completion

June 1, 2019

Last Updated

March 29, 2018

Record last verified: 2018-03

Locations