Advance Care Planning for Critical Care - A Prelude to Breaking Barriers

NCT02797444 | Completed

• 1 other identifier: 106476
• Study Type: observational
• Target: 30
• Locations: 1 country
• Sites: 2

Brief Summary

Advance Care Planning (ACP) is a process of 'reflection and communication, in which a person with decision-making capacity makes decisions regarding their future health and/or personal care in the event that they become incapable of consenting to or refusing treatment' Most Canadians have not planned for end-of-life Care and are at risk of aggressive medical care that may not be compatible with their wishes. This study aims to systematically evaluate local barriers to making personal choices with regards to life support interventions that can be provided in the contemporary Intensive Care Unit.

Conditions

Advance Care Planning; End of Life Care

Outcome Measures

Primary Outcomes (1)

• Lay person perception and knowledge of various Critical Care interventions

  This is a qualitative study. The primary objective of this proposal is to assess public knowledge of Critical Care interventions (and their outcomes) from the perspective of making Advance Care Plans. Examples of such interventions include but are not limited to Cardiopulmonary resuscitation, mechanical ventilation, dialysis and artificial feeding. Outcomes involve lay person knowledge, beliefs and perceptions of Critical care from the perspective of making Advance Care Plans.

  1 year

Interventions

semi-structured interviews OTHER

Eligibility Criteria

• Age: 55 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Healthy lay persons living at home in London, ON.

You may qualify if:

• Members from the community who are i) \> 55 yrs of age, ii) living in London Middlesex community, iii) not housebound, iv) in apparent good health and iv) have the ability to make independent decisions for themselves

You may not qualify if:

• Factors that preclude a meaningful interview (such as cognitive impairment, aphasia, profound hearing impairment, language barriers) or anticipated emotional burden with the proposed topic.

Sponsors & Collaborators

• London Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph's: lead

Study Sites (2)

Dr. Ravi Taneja

London, Ontario, N6A 5A5, Canada

Location

London Health Sciences Centre

London, Ontario, N6A 5A5, Canada

Location

Related Publications (2)

• Teixeira AA, Hanvey L, Tayler C, Barwich D, Baxter S, Heyland DK; Canadian Researchers at End of Life Network (CARENET). What do Canadians think of advanced care planning? Findings from an online opinion poll. BMJ Support Palliat Care. 2015 Mar;5(1):40-7. doi: 10.1136/bmjspcare-2013-000473. Epub 2013 Oct 4.

  PMID: 24644188 BACKGROUND

• Taneja R, Faden LY, Schulz V, Rawal A, Miller K, Bishop KA, Lingard L. Advance care planning in community dwellers: A constructivist grounded theory study of values, preferences and conflicts. Palliat Med. 2019 Jan;33(1):66-73. doi: 10.1177/0269216318803487. Epub 2018 Oct 4. No abstract available.

  PMID: 30284950 DERIVED

Study Officials

• Ravi Taneja, MBBS

  London Health Sciences Centre

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: March 31, 2016
• First Posted: June 13, 2016
• Study Start: September 1, 2015
• Primary Completion: June 1, 2017
• Study Completion: June 1, 2017
• Last Updated: September 28, 2017

Record last verified: 2016-02

Data Sharing

• IPD Sharing: Will not share

Locations

CA (2)