Where Culture Meets Genetics: Exploring Latinas Causal Attributions of Breast and Colon Cancer and Models of Disease Inheritance

NCT02767986 | Completed

• 2 other identifiers: 99991610616-HG-N106
• Study Type: observational
• Target: 22
• Locations: 1 country
• Sites: 1

Brief Summary

Background: Culture can affect the way a person thinks about illness. This can affect how they seek help for illness. It can also affect how they choose a treatment and follow it. This can lead to health disparities among certain groups of people. Breast and colon cancers are the most common cancers for Latinos. Even though they get these cancers at lower rates than other population groups, Latinos are more likely to be diagnosed with these cancers at advanced stages. Researchers want to study what Latina women immigrants believe causes breast and colon cancer and other factors they think play a role in disease. This understanding could lead to better interactions between Latinos and their doctors. Objective: To learn more about what Latina immigrants believe causes breast and colon cancer and other factors they think play a role in disease. Eligibility: Women ages 18 and older who: Were born in Latin America Speak Spanish Have never had breast, ovarian, or colon cancer Design: Participants will be interviewed in person or over the phone. This will take up to an hour. The interview will be recorded. Participants will answer questions about: Their family s cancer history What they think causes breast and colon cancer What they think plays a role in disease ...

Conditions

Colon Cancer; Breast Cancer

Keywords

Cultural Consensus; Natural History

Outcome Measures

Primary Outcomes (3)

• mental models of inheritance

  qualitative descriptions of women's understanding/thoughts about inheritance

  baseline

• causal attributions of colon cancer

  participants' free-lists of colon cancer causes

  baseline

• causal attributions of breast cancer

  participants' free-lists of breast cancer causes

  baseline

Study Arms (1)

Spanish-speaking Latinas

Women who speak Spanish as their primary language

Eligibility Criteria

• Age: 18 Years - 75 Years
• Sex: female
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Women who speak spanish as their primary language; living in the metropolitan Baltimore/Washington, DC region

You may qualify if:

• Are a woman, 18 years of age or older
• Have immigrated to the United States from Latin America
• Speak Spanish
• Are able to meet in-person in the metro Washington, DC area
• Puedes reunir los requisitos si:
• Eres mujer y tienes 18 a(SqrRoot) os de edad o m(SqrRoot)(Degree)s
• Has emigrado a los Estados Unidos desde Latinoam(SqrRoot)(Copyright)rica
• Hablas el espa(SqrRoot) ol con fluidez
• Puedes asistir en persona en la zona metropolitana de Washington, DC

You may not qualify if:

• NIH medical and research staff

Sponsors & Collaborators

• National Human Genome Research Institute (NHGRI): lead

Study Sites (1)

National Human Genome Research Institute (NHGRI)

Bethesda, Maryland, 20892, United States

Location

MeSH Terms

Conditions

Colonic Neoplasms; Breast Neoplasms

Condition Hierarchy (Ancestors)

Colorectal Neoplasms; Intestinal Neoplasms; Gastrointestinal Neoplasms; Digestive System Neoplasms; Neoplasms by Site; Neoplasms; Digestive System Diseases; Gastrointestinal Diseases; Colonic Diseases; Intestinal Diseases; Breast Diseases; Skin Diseases; Skin and Connective Tissue Diseases

Study Officials

• Lori Erby, Ph.D.

  National Human Genome Research Institute (NHGRI)

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: NIH
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: May 10, 2016
• First Posted: May 11, 2016
• Study Start: May 10, 2016
• Primary Completion: February 2, 2017
• Study Completion: February 2, 2017
• Last Updated: September 3, 2024

Record last verified: 2024-08

Data Sharing

• IPD Sharing: Will not share

Locations

US (1)