NCT02593006

Brief Summary

STOP-JIA is a PCORI funded prospective observational study which compared the clinical effectiveness and impact on patient reported outcomes of 3 Childhood Arthritis \& Rheumatology Research Alliance (CARRA) consensus derived treatment strategies (CTPs) in new-onset polyarticular JIA (pJIA) patients to answer the critical question of when is the best time to begin biologic medications to achieve the optimal clinical and patient reported outcomes. Because the CARRA Registry will be used for data collection, all patients will be enrolled in the CARRA Registry. The standard of care treatments are chosen by the treating physician and patient/caregiver and are not randomized.

Trial Health

90
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
400

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Nov 2015

Longer than P75 for all trials

Geographic Reach
2 countries

55 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

October 29, 2015

Completed
1 day until next milestone

First Posted

Study publicly available on registry

October 30, 2015

Completed
2 days until next milestone

Study Start

First participant enrolled

November 1, 2015

Completed
3.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 30, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 30, 2019

Completed
1.4 years until next milestone

Results Posted

Study results publicly available

February 5, 2021

Completed
Last Updated

February 5, 2021

Status Verified

February 1, 2021

Enrollment Period

3.9 years

First QC Date

October 29, 2015

Results QC Date

December 12, 2019

Last Update Submit

February 4, 2021

Conditions

Keywords

Joint DiseasesJuvenile Arthritistreatmentbiologic therapycomparative effectiveness

Outcome Measures

Primary Outcomes (1)

  • Percentage of Participants With Clinically Inactive Disease (CID) Off Glucocorticoids

    This is a provisional criteria which describes a state of complete disease inactivity in Juvenile Idiopathic Arthritis (JIA). We will assess the proportion of patients achieving CID off glucocorticoids in each treatment arm.

    12 months after baseline

Secondary Outcomes (1)

  • Comparison of PROMIS Pain and Mobility Scores Between the 3 Consensus Treatment Plan Groups

    12 months after baseline

Eligibility Criteria

Age2 Years - 18 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)
Sampling MethodNon-Probability Sample
Study Population

Children with new onset, untreated Poly JIA enrolled in the CARRA Registry.

You may qualify if:

  • Age less than 19 at baseline (if 18 or older, agrees to be followed for at least one year)
  • Diagnosis of Arthritis per ACR definition.
  • Arthritis present in one joint for a least six weeks
  • At least 5 active joints at baseline
  • Contraception if sexually active (male and female)
  • May have any of the following:
  • RF+ polyarticular JIA
  • RF- polyarticular JIA
  • Extended oligoarticular JIA
  • Psoriatic JIA
  • Enthesitis related JIA
  • Undifferentiated JIA
  • Psoriasis
  • Sacroiliitis
  • Uveitis
  • +10 more criteria

You may not qualify if:

  • Features consistent with systemic JIA
  • Treatment with any medications for JIA aside from those listed above.
  • Known inflammatory bowel disease
  • Known celiac disease
  • Known Trisomy 21
  • History of or current malignancy
  • Concomitant serious active or recurrent chronic bacterial, fungal or viral infection
  • Significant organ system disorder limiting use of treatments for pJIA
  • Live vaccine within a month prior to baseline

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (55)

University of Alabama at Birmingham

Birmingham, Alabama, 35233, United States

Location

Stanford University Medical Center

Palo Alto, California, 94304, United States

Location

Rady Children's Hospital-San Diego

San Diego, California, 92123, United States

Location

University of California at San Francisco Medical Center

San Francisco, California, 94143, United States

Location

Children's Hospital Colorado

Aurora, Colorado, 80045, United States

Location

Connecticut Children's Medical Center

Hartford, Connecticut, 06106, United States

Location

University of Florida Shand's Children's Hospital

Gainesville, Florida, 32608, United States

Location

Emory Children's Center

Atlanta, Georgia, 30322, United States

Location

Georgia Regents University Medical Center

Augusta, Georgia, 30912, United States

Location

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, 60611, United States

Location

University of Chicago Medical Center

Chicago, Illinois, 60637, United States

Location

Indiana University School of Medicine

Indianapolis, Indiana, 46202, United States

Location

University of Iowa Hospitals and Clinics

Iowa City, Iowa, 52242, United States

Location

University of Kansas Medical Center

Kansas City, Kansas, 66160, United States

Location

University of Louisville School of Medicine

Louisville, Kentucky, 40202, United States

Location

Tufts Medical Center

Boston, Massachusetts, 02111, United States

Location

Boston Children's Hospital

Boston, Massachusetts, 02115, United States

Location

Baystate Medical Center, High Street Health Center

Springfield, Massachusetts, 01105, United States

Location

University of Michigan Medical Center

Ann Arbor, Michigan, 48109, United States

Location

University of Minnesota

Minneapolis, Minnesota, 55455, United States

Location

Mayo Clinic

Rochester, Minnesota, 55902, United States

Location

Children's Mercy Hospital

Kansas City, Missouri, 64108, United States

Location

Saint Louis University School of Medicine

St Louis, Missouri, 63104, United States

Location

Saint Louis Children's Hospital

St Louis, Missouri, 63110, United States

Location

HackensackUniversity Medical Center

Hackensack, New Jersey, 07601, United States

Location

Goryeb Children's Hospital

Morristown, New Jersey, 07960, United States

Location

Pediatric Specialty Center at Saint Barnabas

West Orange, New Jersey, 07052, United States

Location

Albany Medical College

Albany, New York, 12208, United States

Location

Cohen Children's Medical Center of New York

Lake Success, New York, 11042, United States

Location

New York University Langone Medical Center

New York, New York, 10016, United States

Location

Hospital for Special Surgery

New York, New York, 10021, United States

Location

Columbia University Medical Center

New York, New York, 10032, United States

Location

Children's Hospital at Montefiore

The Bronx, New York, 10467, United States

Location

Levine Children's Hospital

Charlotte, North Carolina, 28203, United States

Location

Duke Children's Hospital & Health Center

Durham, North Carolina, 27705, United States

Location

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, 45229, United States

Location

MetroHealth Medical Center

Cleveland, Ohio, 044109, United States

Location

UH Rainbow Babies and Children's Hospital

Cleveland, Ohio, 44106, United States

Location

Clevland Clinic Foundation

Cleveland, Ohio, 44195, United States

Location

Nationwide Children's Hospital

Columbus, Ohio, 43205, United States

Location

Randall Children's Hospital at Legacy Emanuel

Portland, Oregon, 97227, United States

Location

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104, United States

Location

St. Christopher's Hospital for Children

Philadelphia, Pennsylvania, 19134, United States

Location

Children's Hospital of Pittsburgh of UPMC

Pittsburgh, Pennsylvania, 15224, United States

Location

Medical University of South Carolina Children's Hospital

Charleston, South Carolina, 29425, United States

Location

Monroe Carell Jr. Children's Hospital at Vanderbilt

Nashville, Tennessee, 37232, United States

Location

University of Texas Southwestern Medical Center Dallas

Dallas, Texas, 75390, United States

Location

Baylor College of Medicine Pediatric Immunology, Allergy and Rheumatology

Houston, Texas, 77030-2399, United States

Location

University of Utah Hospitals and Clinics

Salt Lake City, Utah, 84112, United States

Location

University of Vermont Medical Center

Burlington, Vermont, 05401, United States

Location

Seattle Children's Hospital

Seattle, Washington, 98105, United States

Location

University of Wisconsin-American Family Children's Hospital

Madison, Wisconsin, 53792, United States

Location

University of Calgary- Alberta Children's Hospital

Calgary, Alberta, AB T3B, Canada

Location

IWK Health Center

Halifax, Nova Scotia, NS B3K 6R8, Canada

Location

The Hospital for Sick Children

Toronto, Ontario, M5G 1X8, Canada

Location

Related Publications (2)

  • Kimura Y, Schanberg LE, Tomlinson GA, Riordan ME, Dennos AC, Del Gaizo V, Murphy KL, Weiss PF, Natter MD, Feldman BM, Ringold S; CARRA STOP-JIA Investigators. Optimizing the Start Time of Biologics in Polyarticular Juvenile Idiopathic Arthritis: A Comparative Effectiveness Study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans. Arthritis Rheumatol. 2021 Oct;73(10):1898-1909. doi: 10.1002/art.41888. Epub 2021 Sep 3.

  • Ong MS, Ringold S, Kimura Y, Schanberg LE, Tomlinson GA, Natter MD; CARRA Registry Investigators. Improved Disease Course Associated With Early Initiation of Biologics in Polyarticular Juvenile Idiopathic Arthritis: Trajectory Analysis of a Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans Study. Arthritis Rheumatol. 2021 Oct;73(10):1910-1920. doi: 10.1002/art.41892. Epub 2021 Aug 27.

Related Links

MeSH Terms

Conditions

Arthritis, JuvenileJoint Diseases

Condition Hierarchy (Ancestors)

ArthritisMusculoskeletal DiseasesRheumatic DiseasesConnective Tissue DiseasesSkin and Connective Tissue DiseasesAutoimmune DiseasesImmune System Diseases

Results Point of Contact

Title
Yukiko Kimura MD
Organization
Hackensack University Medical Center

Study Officials

  • Yukiko Kimura, MD

    Hackensack Meridian Health

    PRINCIPAL INVESTIGATOR
  • Sarah Ringold, MD

    Seattle Children's Hospital

    PRINCIPAL INVESTIGATOR

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 29, 2015

First Posted

October 30, 2015

Study Start

November 1, 2015

Primary Completion

September 30, 2019

Study Completion

September 30, 2019

Last Updated

February 5, 2021

Results First Posted

February 5, 2021

Record last verified: 2021-02

Data Sharing

IPD Sharing
Will share

Key outcome data, treatment data and baseline characteristics will be shared with other researchers upon request and are subject to the CARRA data and sample sharing policy (https://carragroup.org/UserFiles/file/CARRA-DATA-SAMPLE-SHARING-POLICY-04November2016.pdf). Documentation of appropriate IRB/ethics board approval will be required.

Shared Documents
STUDY PROTOCOL, SAP, ICF, CSR, ANALYTIC CODE
Time Frame
IPD will be available for requests through the CARRA data and sample request portal once the PCORI Final Research Report has been approved and is publicly available. There is no time limit.
Access Criteria
Investigators may request data through the CARRA data and sample share request portal. Inquiries may be sent to research@carragroup.org.

Locations