Access, Use and Opinions of Physiotherapy and Rehabilitation Services of People With Progressive MS in the UK.

NCT02559765 | Completed

• 1 other identifier: 200140102
• Study Type: observational
• Target: 1,298
• Locations: 1 country
• Sites: 1

Brief Summary

This survey will investigate the views of people with progressive MS in terms of physiotherapy services. In particular the study will examine the proportion of people with progressive MS on the MS register who use physiotherapy services, how worthwhile they think it is for them and how they would like their physiotherapy to be delivered. This survey will also explore how physiotherapy services for people with progressive MS varies across the UK and what other types of rehabilitation services are currently used by people with progressive MS.

Conditions

Progressive Multiple Sclerosis

Keywords

physiotherapy; progressive multiple sclerosis; rehabilitation; rehabilitation services

Outcome Measures

Primary Outcomes (3)

• Number of participants with access to physiotherapy for their MS. Questionnaire

  Questionnaire has the following options: yes, no. Participant may choose one.

  three months

• Number of participants that use physiotherapy for their MS. Questionnaire

  Questionnaire has the following options: yes, no. Participant may choose one.

  three months

• What is the participants' perceived efficacy of physiotherapy for their MS? Questionnaire

  Nominal scale of: very harmful, harmful, neither harmful nor beneficial, beneficial, very beneficial Participant may choose one.

  three months

Secondary Outcomes (27)

• Most common referral process. Questionnaire

  three months

• Most common provider of physiotherapy to the participant. Questionnaire

  three months

• Most common physiotherapy intervention received for participant's MS. Questionnaire

  three months

• Most common pattern of physiotherapy appointments. Questionnaire

  three months

• Most common expected waiting time from referral to receiving physiotherapy appointment. Questionnaire

  three months

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

People with progressive multiple sclerosis and registered on the UK MS Register

You may qualify if:

• Have a form of progressive MS
• Be registered on the UK MS Register

You may not qualify if:

• Have relapsing remitting MS
• Be under 18 years of age

Sponsors & Collaborators

• University of Glasgow: lead
• NHS Ayrshire and Arran: collaborator
• AKM: collaborator

Study Sites (1)

The University of Glasgow

Glasgow, G12 8LL, United Kingdom

Location

MeSH Terms

Conditions

Multiple Sclerosis, Chronic Progressive

Condition Hierarchy (Ancestors)

Multiple Sclerosis; Demyelinating Autoimmune Diseases, CNS; Autoimmune Diseases of the Nervous System; Nervous System Diseases; Demyelinating Diseases; Autoimmune Diseases; Immune System Diseases; Chronic Disease; Disease Attributes; Pathologic Processes; Pathological Conditions, Signs and Symptoms

Study Officials

• Evan Campbell, MRes

  The University of Glasgow

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Research physiotherapist

Study Record Dates

• First Submitted: September 21, 2015
• First Posted: September 24, 2015
• Study Start: August 1, 2015
• Primary Completion: November 1, 2015
• Study Completion: November 1, 2015
• Last Updated: May 13, 2016

Record last verified: 2016-05

Locations

GB (1)