NCT02519036

Brief Summary

This study tested the safety, tolerability, pharmacokinetics and pharmacodynamics of multiple ascending doses of ISIS 443139 administered intrathecally to adult participants with early manifest Huntington's Disease.

Trial Health

90
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
46

participants targeted

Target at P50-P75 for phase_1

Timeline
Completed

Started Aug 2015

Typical duration for phase_1

Geographic Reach
3 countries

9 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

August 1, 2015

Completed
5 days until next milestone

Study Start

First participant enrolled

August 6, 2015

Completed
4 days until next milestone

First Posted

Study publicly available on registry

August 10, 2015

Completed
2.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

November 8, 2017

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

November 8, 2017

Completed
1.6 years until next milestone

Results Posted

Study results publicly available

May 31, 2019

Completed
Last Updated

May 31, 2019

Status Verified

May 1, 2019

Enrollment Period

2.3 years

First QC Date

August 1, 2015

Results QC Date

May 6, 2019

Last Update Submit

May 30, 2019

Conditions

Keywords

Huntington's DiseaseHTTRxEarly Manifest Huntington's Disease

Outcome Measures

Primary Outcomes (1)

  • Number of Participants With Treatment-related Adverse Events (TEAEs)

    An adverse event (AE) was any unfavorable and unintended sign (including an abnormal laboratory finding, for example), symptom, or disease temporally associated with the study or use of investigational drug product, whether or not the AE was considered related to the investigational drug product. An AE was to be regarded as a TEAE if it was present prior to receiving the first dose of Study Drug and subsequently worsened or was not present prior to receiving the first dose of Study Drug but subsequently appeared.

    Up to approximately 28 weeks

Secondary Outcomes (1)

  • Observed Cerebrospinal Fluid (CSF) Concentration for ISIS 443139

    Days 1, 29, 57, 85, and 113 or 141

Other Outcomes (6)

  • Maximum Plasma Concentration (Cmax) for ISIS 443139

    Days 1 and 85

  • Time to Maximum Plasma Concentration (Tmax) for ISIS 443139

    Days 1 and 85

  • Change From Baseline in CSF Mutant Huntingtin (fM) Protein Concentration

    Baseline to Final Assessment (Day 85 or 113)

  • +3 more other outcomes

Study Arms (6)

ISIS 443139 10 mg

EXPERIMENTAL

Participants received ISIS 443139, 10 milligrams (mg), by intrathecal injection, on Study Days 1, 29, 57, and 85.

Drug: ISIS 443139 10 mg

ISIS 443139 30 mg

EXPERIMENTAL

Participants received ISIS 443139, 30 mg, by intrathecal injection, on Study Days 1, 29, 57, and 85.

Drug: ISIS 443139 30 mg

ISIS 443139 60 mg

EXPERIMENTAL

Participants received ISIS 443139, 60 mg, by intrathecal injection, on Study Days 1, 29, 57, and 85.

Drug: ISIS 443139 60 mg

ISIS 443139 90 mg

EXPERIMENTAL

Participants received ISIS 443139, 90 mg, by intrathecal injection, on Study Days 1, 29, 57, and 85.

Drug: ISIS 443139 90 mg

ISIS 443139 120 mg

EXPERIMENTAL

Participants received ISIS 443139, 120 mg, by intrathecal injection, on Study Days 1, 29, 57, and 85.

Drug: ISIS 443139 120 mg

Placebo

PLACEBO COMPARATOR

Participants received placebo, by intrathecal injection, on Study Days 1, 29, 57, and 85.

Other: Placebo

Interventions

ISIS 443139, 10 mg, was administered by intrathecal injection, on Study Days 1, 29, 57, and 85.

Also known as: IONIS HTTRx
ISIS 443139 10 mg

ISIS 443139, 30 mg, was administered by intrathecal injection, on Study Days 1, 29, 57, and 85.

Also known as: IONIS HTTRx
ISIS 443139 30 mg

ISIS 443139, 60 mg, was administered by intrathecal injection, on Study Days 1, 29, 57, and 85.

Also known as: IONIS HTTRx
ISIS 443139 60 mg

ISIS 443139, 90 mg, was administered by intrathecal injection, on Study Days 1, 29, 57, and 85.

Also known as: IONIS HTTRx
ISIS 443139 90 mg

ISIS 443139, 120 mg, was administered by intrathecal injection, on Study Days 1, 29, 57, and 85.

Also known as: IONIS HTTRx
ISIS 443139 120 mg
PlaceboOTHER

Placebo was administered by intrathecal injection, on Study Days 1, 29, 57, and 85.

Placebo

Eligibility Criteria

Age25 Years - 65 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Diagnosed with early manifest Huntington's disease
  • Male or female, aged 25 to 65 years, inclusive, at the time of informed consent
  • Able and willing to meet all study requirements, including travel to Study Center and participation in all procedures and measurements at study visits
  • Have a trial partner who is reliable, competent and at least 18 years of age, is willing to accompany the participant to select trial visits and to be available to the Study Center by phone if needed
  • Able to tolerate MRI scans, blood draws and lumbar punctures
  • Reside within 4 hours travel of the Study Center

You may not qualify if:

  • Recent treatment with another investigational drug, biological agent, or device
  • Prior treatment with an antisense oligonucleotide \[including small interfering ribonucleic acid (siRNA)\]
  • Any history of gene therapy or cell transplantation or any other experimental brain surgery
  • Presence of an implanted shunt for the drainage of cerebrospinal fluid (CSF) or an implanted central nervous system (CNS) catheter
  • History of post-lumbar-puncture headache of moderate or severe intensity and/or blood patch
  • Malignancy within 5 years of Screening, except for basal or squamous cell carcinoma of the skin or carcinoma in situ of the cervix that has been successfully treated
  • Hospitalization for any major medical or surgical procedure involving general anesthesia within 12 weeks of Screening or planned during the study

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (9)

University of British Columbia

Vancouver, British Columbia, V6T 2B5, Canada

Location

Charite University Berlin

Berlin, 10117, Germany

Location

Ruhr-University of Bochum

Bochum, 44791, Germany

Location

Ulm University Hospital

Ulm, 89081, Germany

Location

University Hospitals Birmingham

Birmingham, B15 2TH, United Kingdom

Location

Cambridge University Hospital

Cambridge, CB2 0PY, United Kingdom

Location

University Hospital of Wales

Cardiff, CF14 4XN, United Kingdom

Location

University College London

London, WC1N 3BG, United Kingdom

Location

University of Manchester, St. Mary's Hospital

Manchester, M13 9WL, United Kingdom

Location

Related Publications (3)

  • Rodrigues FB, Ferreira JJ, Wild EJ. Huntington's Disease Clinical Trials Corner: June 2019. J Huntingtons Dis. 2019;8(3):363-371. doi: 10.3233/JHD-199003.

  • Tabrizi SJ, Leavitt BR, Landwehrmeyer GB, Wild EJ, Saft C, Barker RA, Blair NF, Craufurd D, Priller J, Rickards H, Rosser A, Kordasiewicz HB, Czech C, Swayze EE, Norris DA, Baumann T, Gerlach I, Schobel SA, Paz E, Smith AV, Bennett CF, Lane RM; Phase 1-2a IONIS-HTTRx Study Site Teams. Targeting Huntingtin Expression in Patients with Huntington's Disease. N Engl J Med. 2019 Jun 13;380(24):2307-2316. doi: 10.1056/NEJMoa1900907. Epub 2019 May 6.

  • Rodrigues FB, Wild EJ. Huntington's Disease Clinical Trials Corner: February 2018. J Huntingtons Dis. 2018;7(1):89-98. doi: 10.3233/JHD-189001.

Related Links

MeSH Terms

Conditions

Huntington Disease

Interventions

HTT(RX)

Condition Hierarchy (Ancestors)

Basal Ganglia DiseasesBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesDementiaChoreaDyskinesiasMovement DisordersHeredodegenerative Disorders, Nervous SystemNeurodegenerative DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesCognition DisordersNeurocognitive DisordersMental Disorders

Limitations and Caveats

There are no limitations or caveats for this study.

Results Point of Contact

Title
Ionis Pharmaceuticals, Inc.
Organization
Ionis Pharmaceuticals, Inc.

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 1
Allocation
RANDOMIZED
Masking
QUADRUPLE
Who Masked
PARTICIPANT, CARE PROVIDER, INVESTIGATOR, OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 1, 2015

First Posted

August 10, 2015

Study Start

August 6, 2015

Primary Completion

November 8, 2017

Study Completion

November 8, 2017

Last Updated

May 31, 2019

Results First Posted

May 31, 2019

Record last verified: 2019-05

Locations