Swiss Hemophilia Registry
1 other identifier
observational
900
1 country
19
Brief Summary
The Swiss Hemophilia Registry will collect data on the prophylactic and therapeutic use of factor concentrates in patients with hemophilia and other severe bleeding disorders in Switzerland.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started May 2015
Longer than P75 for all trials
19 active sites
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
May 1, 2015
CompletedFirst Submitted
Initial submission to the registry
July 26, 2015
CompletedFirst Posted
Study publicly available on registry
July 30, 2015
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 1, 2025
CompletedStudy Completion
Last participant's last visit for all outcomes
December 1, 2025
CompletedOctober 27, 2022
October 1, 2022
10.6 years
July 26, 2015
October 25, 2022
Conditions
Outcome Measures
Primary Outcomes (1)
Number of incidence of disease and inhibitor development
Demographics, Comorbidties, factor consumption for prophylaxis, bleeding and surgery, inhibito develeopment
1 year
Interventions
Eligibility Criteria
Patients with hemophilia and other severe bleeding disorders
You may qualify if:
- Diagnosis of hemophilia or other severe bleeding disorders. Signed inform consent
You may not qualify if:
- None
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (19)
Kantonsspital Aarau Zentrum für Onkologie/Hämatologie und Transfusionsmedizin
Aarau, 5001, Switzerland
Kinderklinik
Aarau, 5001, Switzerland
Universitätsspital Basel Diagnostische Hämatologie
Basel, 4031, Switzerland
Universitätskinderspital beider Basel (UKBB) Abteilung Onkologie/Hämatologie
Basel, 4056, Switzerland
Ospedale San Giovanni
Bellinzona, 6500, Switzerland
Servizio di Ematologia Ospedale Regionale di Bellinzona e Valli
Bellinzona, 6500, Switzerland
Inselspital, Universitätsspital Bern Poliklinik für Hämatologie
Bern, 3010, Switzerland
Kantonspital Graubünden
Chur, 7000, Switzerland
Unité d'Hémostase HUG
Geneva, 1211, Switzerland
Unité d'Oncologie-Hématologie pédiatrique, Hôpital des Enfants HUG
Geneva, 1211, Switzerland
Centre Hospitalier Universitaire Vaudois Service d'Hématologie
Lausanne, 1011, Switzerland
Policlinique d'onco-hématologie péd., CHUV
Lausanne, 1011, Switzerland
Kantonsspital Luzern Abteilung Hämatologie
Lucerne, 6000, Switzerland
Kinderspital Luzern
Lucerne, 6000, Switzerland
Ostschweizer Kinderspital St. Gallen
Sankt Gallen, 9006, Switzerland
Kantonspital St. Gallen
Sankt Gallen, 9007, Switzerland
Kinder und Erwachsenenzentrum Sion Service Régional Valaisan de Transfusion Sanguine CRS
Sion, 1950, Switzerland
University Children's Hospital
Zurich, 8032, Switzerland
University Hospital Zürich
Zurich, 8090, Switzerland
MeSH Terms
Conditions
Interventions
Condition Hierarchy (Ancestors)
Intervention Hierarchy (Ancestors)
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- COHORT
- Time Perspective
- PROSPECTIVE
- Target Duration
- 10 Years
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
July 26, 2015
First Posted
July 30, 2015
Study Start
May 1, 2015
Primary Completion
December 1, 2025
Study Completion
December 1, 2025
Last Updated
October 27, 2022
Record last verified: 2022-10