IConquerMS™ - a Patient-Powered Research Network for Multiple Sclerosis
iCMS
1 other identifier
observational
20,000
1 country
1
Brief Summary
iConquerMS™ is a research initiative developed by and for people with multiple sclerosis (MS) to contribute their health data and ideas to advance and accelerate research into MS. iConquerMS welcomes adults with MS and others interested in advancing MS research, children and teens with MS and their family members (via iConquerMS Kids \& Teens) and MS caregivers (via iConquerMS Caregivers) to participate.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Nov 2014
Longer than P75 for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
November 1, 2014
CompletedFirst Submitted
Initial submission to the registry
June 25, 2015
CompletedFirst Posted
Study publicly available on registry
July 1, 2015
CompletedPrimary Completion
Last participant's last visit for primary outcome
October 1, 2030
ExpectedStudy Completion
Last participant's last visit for all outcomes
October 1, 2036
February 18, 2025
February 1, 2025
15.9 years
June 25, 2015
February 14, 2025
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Number of people with multiple sclerosis who experience health-related quality-of-life changes
1 year
Study Arms (1)
People diagnosed with Multiple Sclerosis
Eligibility Criteria
Primary cohort is people with multiple sclerosis.
You may qualify if:
- years of age or older at the time of informed consent or under 21 with parental consent and participant assent.
You may not qualify if:
- Unwilling or unable to provide informed consent.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- Accelerated Cure Project for Multiple Sclerosislead
- Patient-Centered Outcomes Research Institutecollaborator
- Ogilvycollaborator
- Arizona State Universitycollaborator
Study Sites (1)
Accelerated Cure Project
Waltham, Massachusetts, 02451, United States
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- COHORT
- Time Perspective
- OTHER
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
June 25, 2015
First Posted
July 1, 2015
Study Start
November 1, 2014
Primary Completion (Estimated)
October 1, 2030
Study Completion (Estimated)
October 1, 2036
Last Updated
February 18, 2025
Record last verified: 2025-02