Use of Online Communications to Support Patients and Their Families in the Hospice Unit
1 other identifier
interventional
20
0 countries
N/A
Brief Summary
The increasing awareness of the importance of palliative care has led, in Israel, to the 2005 Law for the Rights of Persons with Terminal Illness. Still, problems of accessibility to palliative care remain unresolved. The use of e-health services is likely to expand the ability of the medical, psychosocial and nursing staff to reach patients who are either living in the periphery, are unable to make clinic visits or whose family members are housebound in order to be caregivers. This exploratory research is designed to explore the issues, barriers and advantages of e-health care through the perspective of the palliative care staff members, the patients themselves and their caregiving family members.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at below P25 for not_applicable
Started Jun 2015
Typical duration for not_applicable
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
June 1, 2015
CompletedFirst Submitted
Initial submission to the registry
June 10, 2015
CompletedFirst Posted
Study publicly available on registry
June 26, 2015
CompletedPrimary Completion
Last participant's last visit for primary outcome
May 1, 2016
CompletedStudy Completion
Last participant's last visit for all outcomes
May 1, 2017
CompletedJune 26, 2015
June 1, 2015
11 months
June 10, 2015
June 25, 2015
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
SWAT - The social work assessment tool
Tool to assess the quality of social work psychosocial services
One year
Secondary Outcomes (5)
EIS (Emotional Intimacy Scale)
6 month
SLDS (Satisfaction with cancer scale)
6 month
the will to live question
6 month
ZBI (Zarit burden scale),
6 month
attitudes toward use of e-therapy questionnaire.
6 month
Study Arms (1)
Intervention group: All dyads are in the intervention arm.
EXPERIMENTALInterventions
e-health services (e.g. by use of SKYPE) to the psychosocial needs of patients and their families who are getting services through home hospice care. In addition, the attitudes of the hospice staff will be investigated to the use of e-health methods.
Eligibility Criteria
You may qualify if:
- Patient currently receiving care from the home hospice unit,
- over the age of 18,
- able to give informed consent,
- with a computer that can use SKYPE or a smartphone,
- speaking a language of the psychosocial staff person (Hebrew, English, Russian, Arabic).
You may not qualify if:
- Brain tumors,
- dementia,
- speech disturbance,
- refusal to participate,
- language other than the four spoken by psychosocial staff members,
- inability to use technology or lack of computer in the home.
Contact the study team to confirm eligibility.
Sponsors & Collaborators
MeSH Terms
Interventions
Intervention Hierarchy (Ancestors)
Central Study Contacts
Study Design
- Study Type
- interventional
- Phase
- not applicable
- Allocation
- NON RANDOMIZED
- Masking
- NONE
- Purpose
- SUPPORTIVE CARE
- Intervention Model
- SINGLE GROUP
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR INVESTIGATOR
- PI Title
- Prof.
Study Record Dates
First Submitted
June 10, 2015
First Posted
June 26, 2015
Study Start
June 1, 2015
Primary Completion
May 1, 2016
Study Completion
May 1, 2017
Last Updated
June 26, 2015
Record last verified: 2015-06