NCT02378857

Brief Summary

Cross-sectional study of a national cohort of adolescents with univentricular congenital heart defects and Fontan type palliation.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
76

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Mar 2015

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

February 27, 2015

Completed
2 days until next milestone

Study Start

First participant enrolled

March 1, 2015

Completed
3 days until next milestone

First Posted

Study publicly available on registry

March 4, 2015

Completed
4.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

April 26, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

April 26, 2019

Completed
Last Updated

August 13, 2019

Status Verified

August 1, 2019

Enrollment Period

4.2 years

First QC Date

February 27, 2015

Last Update Submit

August 12, 2019

Conditions

Keywords

Univentricular heart defectFontan circulation

Outcome Measures

Primary Outcomes (4)

  • Hemodynamic status

    Status as found by invasive and non-invasive assessment

    Current at time of inclusion

  • Structural and functional hepatic changes

    Status as found by non-invasive assessment

    Current at time of inclusion

  • Cardio-pulmonary function and functional reserve

    Status as found by non-invasive assessment

    Current at time of inclusion

  • Quality of life and psycho-social outcome

    Status as found by questionnaire

    Current at time of inclusion

Study Arms (2)

Patient group

Adolescents (15-18 years of age) With univentricular heart defects and Fontan type palliation.

Control group

Age- and gender-matched healthy individuals

Eligibility Criteria

Age15 Years - 18 Years
Sexall
Healthy VolunteersYes
Age GroupsChild (0-17), Adult (18-64)
Sampling MethodNon-Probability Sample
Study Population

All adolescents i Norway with univentricular heart defects and Fontan type palliation

You may qualify if:

  • age, heart defect, heart surgery and type of palliation/correction, informed consent

You may not qualify if:

  • non-consenting, contraindications or increased risk to perform study tests (i.e. metal parts prohibiting MRI, motoric impairment prohibiting CPET)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Oslo University Hospital, Rikshospitalet, Department of Paediatric Cardiology

Oslo, 0424, Norway

Location

Related Publications (1)

  • Moller T, Klungerbo V, Diab S, Holmstrom H, Edvardsen E, Grindheim G, Brun H, Thaulow E, Kohn-Luque A, Rosner A, Dohlen G. Circulatory Response to Rapid Volume Expansion and Cardiorespiratory Fitness in Fontan Circulation. Pediatr Cardiol. 2022 Apr;43(4):903-913. doi: 10.1007/s00246-021-02802-y. Epub 2021 Dec 17.

Biospecimen

Retention: SAMPLES WITHOUT DNA

EDTA, citrate and serum samples for analysis for vitamin status, biochemical analysis, inflammation markers and organ specific markers.

MeSH Terms

Conditions

Heart Defects, Congenital

Condition Hierarchy (Ancestors)

Cardiovascular AbnormalitiesCardiovascular DiseasesHeart DiseasesCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Study Officials

  • Thomas Moller, MD PhD

    Oslo University Hospital, University of Oslo

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Senior consultant pediatric cardiologist, MD PhD

Study Record Dates

First Submitted

February 27, 2015

First Posted

March 4, 2015

Study Start

March 1, 2015

Primary Completion

April 26, 2019

Study Completion

April 26, 2019

Last Updated

August 13, 2019

Record last verified: 2019-08

Data Sharing

IPD Sharing
Will not share

Locations