NCT02272192

Brief Summary

A multi-site randomized study of intensive treatment for toddlers with autism involving a three-site collaborative network plus a data coordinating center to evaluate the effects of intervention intensity and intervention style delivered for 12 months, on the progress of very young children with ASD ages 12-30 months old and their families, and the effect of children's developmental rates and autism severity on their response to intervention.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
87

participants targeted

Target at P50-P75 for not_applicable

Timeline
Completed

Started Mar 2013

Longer than P75 for not_applicable

Geographic Reach
1 country

3 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 1, 2013

Completed
1.6 years until next milestone

First Submitted

Initial submission to the registry

October 20, 2014

Completed
2 days until next milestone

First Posted

Study publicly available on registry

October 22, 2014

Completed
4.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

July 1, 2019

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

July 1, 2019

Completed
Last Updated

January 6, 2020

Status Verified

January 1, 2020

Enrollment Period

6.3 years

First QC Date

October 20, 2014

Last Update Submit

January 2, 2020

Conditions

Keywords

autismautism spectrum disorderintensive interventionearly interventionEarly Start Denver Model

Outcome Measures

Primary Outcomes (1)

  • Expressive Communication Composite Score

    We used Time 4 means and standard deviations (SDs)s from several measures to compute a z score. The mean of a Z score is always 0 and z scores range from -3 to +3. For this composite a higher score reveals more mature developmental skills. Data from the following measures were used in this composite score: a weighted frequency of intentional communication measured within a 15 minute communication sample; number of different root words measured within the communication sample; the expressive language age equivalent score from he Mullen Scales of Early learning (MSEL); the expressive communication age equivalent scores from the Vineland 2 Adaptive Behavior Scale 2(VABS2); the expressive raw score from the MacArthur Bates Communicative Developmental Inventories; the expressive social communication abilities composite score from the PDD Behavior Inventory; and the expressive language raw score from the PDD Behavior Inventory

    two years

Secondary Outcomes (3)

  • Autism Severity Composite Score

    two years

  • Receptive Language Composite Score

    two years

  • Nonverbal Development Composite Score

    two years

Study Arms (4)

ESDM15 hr/week

EXPERIMENTAL

Children receive 15 hours a week of 1:1 intervention at home plus parent coaching using the Early Start Denver Model and following its manual

Behavioral: Early Start Denver Model (ESDM)

ESDM 25 hr/week

EXPERIMENTAL

Children receive 25 hours a week of 1:1 intervention at home plus parent coaching using the Early Start Denver Model and following its manual

Behavioral: Early Start Denver Model (ESDM)

EIBI 15 hr/week

EXPERIMENTAL

Children receive 15 hours per week of 1:1 intervention at home plus parent training using Early Intensive Behavioral Intervention (EIBI) and following the Manual "A Work in Progress"

Behavioral: Early Intensive Behavioral Intervention (EIBI)

EIBI 25 hr/week

EXPERIMENTAL

Children receive 25 hours per week of 1:1 intervention at home plus parent training using EIBI and following the Manual "A Work in Progress"

Behavioral: Early Intensive Behavioral Intervention (EIBI)

Interventions

The Early Start Denver Model (ESDM) is a comprehensive developmental and behavioral early intervention approach for children with autism, ages 12 to 48 months. The program encompasses a developmental curriculum that defines the skills to be taught at any given time and a set of teaching procedures based in applied behavioral analysis to deliver this content. The teaching format focuses on trained therapists delivering the intervention 1:1 by engaging reciprocally with children in typical toddler activities involving play or daily routines, adding additional structure for children who need it to progress well. Progress data is collected throughout each session and used to make decisions about teaching approaches.

Also known as: Naturalistic developmental-behavioral intervention (NDBI)
ESDM 25 hr/weekESDM15 hr/week

EIBI is a one-to-one instructional approach based in applied behavior analysis used to teach skills in a planned, controlled, and systematic manner. Each trial or teaching opportunity has a definite beginning and end, thus the descriptor discrete trial. Within DTT, the use of antecedents and consequences is carefully planned and implemented. Positive praise and/or tangible rewards are used to reinforce desired skills or behaviors. Trial by trial data collection is an important part of DTT and supports decision making by providing teachers/practitioners with information about beginning skill level, progress and challenges, skill acquisition and maintenance, and generalization of learned skills or behaviors.

Also known as: ABA, DTT, Lovaas method
EIBI 15 hr/weekEIBI 25 hr/week

Eligibility Criteria

Age15 Months - 30 Months
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)

You may qualify if:

  • months of age at time of assessment;
  • ambulatory and without impairments affecting hand use;
  • meets criteria for Autistic Spectrum Disorder on the APA Diagnostic and Statistical Manual, 5th revision criteria and on the Autism Diagnostic Observation Schedule for Toddlers:
  • clinical consensus of ASD diagnosis by 2 independent staff (including a licensed psychologist) based on observation as well as record review;
  • developmental quotient of \>35 on Mullen Scales of Early Learning;
  • normal hearing and vision screen;
  • caregiver agreement to comply with all project requirements, including regular videotaping at home with provided equipment.

You may not qualify if:

  • English not a primary language spoken at home;
  • absence at 2 or more appointments without prior notice during the intake assessment;
  • more than 10 hours per week of 1:1 ABA based treatment;
  • other health or genetic conditions (i.e. fragile X syndrome, seizures, prematurity).

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (3)

UC Davis MIND Institute

Sacramento, California, 95817, United States

Location

Vanderbilt University

Nashville, Tennessee, 37240, United States

Location

University of Washington Autism Center

Seattle, Washington, 98195, United States

Location

Related Publications (1)

  • Rogers SJ, Yoder P, Estes A, Warren Z, McEachin J, Munson J, Rocha M, Greenson J, Wallace L, Gardner E, Dawson G, Sugar CA, Hellemann G, Whelan F. A Multisite Randomized Controlled Trial Comparing the Effects of Intervention Intensity and Intervention Style on Outcomes for Young Children With Autism. J Am Acad Child Adolesc Psychiatry. 2021 Jun;60(6):710-722. doi: 10.1016/j.jaac.2020.06.013. Epub 2020 Aug 24.

MeSH Terms

Conditions

Autism Spectrum DisorderAutistic Disorder

Condition Hierarchy (Ancestors)

Child Development Disorders, PervasiveNeurodevelopmental DisordersMental Disorders

Study Officials

  • Sally J Rogers, Ph.D.

    UC Davis MIND Institute

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 20, 2014

First Posted

October 22, 2014

Study Start

March 1, 2013

Primary Completion

July 1, 2019

Study Completion

July 1, 2019

Last Updated

January 6, 2020

Record last verified: 2020-01

Data Sharing

IPD Sharing
Will share

All de-identified data will be uploaded into NDAR as soon as primary papers are published. All demographic data are uploaded into NDAR as they are collected.

Shared Documents
STUDY PROTOCOL, SAP, ICF, CSR
Time Frame
All de-identified data will be uploaded into NDAR as soon as primary papers are published. All demographic data are uploaded into NDAR as they are collected.
Access Criteria
as per NDAR procedures
More information

Locations