NCT02034487

Brief Summary

To evaluate the phenotype and biochemical characteristics of boys referred for delayed puberty, to describe the frequency of associated co-morbidities and diseases, to evaluate the diagnostic criteria and the effect of testosterone treatment.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
451

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Jan 1990

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

January 1, 1990

Completed
23.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

February 1, 2013

Completed
8 months until next milestone

Study Completion

Last participant's last visit for all outcomes

October 1, 2013

Completed
3 months until next milestone

First Submitted

Initial submission to the registry

January 9, 2014

Completed
4 days until next milestone

First Posted

Study publicly available on registry

January 13, 2014

Completed
Last Updated

January 13, 2014

Status Verified

January 1, 2014

Enrollment Period

23.1 years

First QC Date

January 9, 2014

Last Update Submit

January 10, 2014

Conditions

Keywords

Delayed PubertyBoysHormonesPolymorphism, Genetic

Outcome Measures

Primary Outcomes (1)

  • Age at diagnosis in boys with delayed puberty.

    We will evaluate the mean age at diagnosis as well as the age distribution of newly diagnosed boys. These data are compared to age at onset and progression of normal puberty in contemporary healthy Danish boys.

    At first evaluation

Secondary Outcomes (1)

  • Selected secondary outcomes include clinical, auxological and biochemical parameters and association to specific genetic polymorphisms

    At first evaluation and during first 12 months of observation / treatment

Study Arms (1)

Boys with delayed puberty

Boys with no signs of puberty by an age that is -2 standard deviation below the population mean.

Other: retrospective data collection

Interventions

Boys with delayed puberty

Eligibility Criteria

Age13 Years - 20 Years
Sexmale
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)
Sampling MethodNon-Probability Sample
Study Population

The study population consisted of boys who were referred to be evaluated for delayed puberty at the Department of Growth and Reproduction between January 1990 and February 2013.

You may qualify if:

  • All boys identified in the period from January 1990 to February 2013

You may not qualify if:

  • Misclassified (other diagnoses)
  • Insufficient data
  • Lost to follow up

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Department of Growth and Reproduction, Rigshospitalet

Copenhagen, 2100, Denmark

Location

Related Publications (1)

  • Lawaetz JG, Hagen CP, Mieritz MG, Blomberg Jensen M, Petersen JH, Juul A. Evaluation of 451 Danish boys with delayed puberty: diagnostic use of a new puberty nomogram and effects of oral testosterone therapy. J Clin Endocrinol Metab. 2015 Apr;100(4):1376-85. doi: 10.1210/jc.2014-3631. Epub 2015 Jan 16.

Biospecimen

Retention: SAMPLES WITH DNA

serum and white cells

MeSH Terms

Conditions

Puberty, Delayed

Condition Hierarchy (Ancestors)

Gonadal DisordersEndocrine System Diseases

Study Officials

  • Anders Juul, PhD, DMSc

    Rigshospitalet, Denmark

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
RETROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
PhD, DMSc

Study Record Dates

First Submitted

January 9, 2014

First Posted

January 13, 2014

Study Start

January 1, 1990

Primary Completion

February 1, 2013

Study Completion

October 1, 2013

Last Updated

January 13, 2014

Record last verified: 2014-01

Locations