NCT01851642

Brief Summary

The purpose of this study is to look at how Alpha-1-antitrypsin (AAT) deficiency and Cystic Fibrosis (CF) affect white blood cells in the lungs, called macrophages, and their ability to work.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
220

participants targeted

Target at P75+ for all trials

Timeline
88mo left

Started Aug 2007

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress72%
Aug 2007Jul 2033

Study Start

First participant enrolled

August 9, 2007

Completed
5.7 years until next milestone

First Submitted

Initial submission to the registry

April 25, 2013

Completed
15 days until next milestone

First Posted

Study publicly available on registry

May 10, 2013

Completed
19.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

July 20, 2032

Expected
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

July 20, 2033

Last Updated

November 6, 2025

Status Verified

November 1, 2025

Enrollment Period

25 years

First QC Date

April 25, 2013

Last Update Submit

November 5, 2025

Conditions

Keywords

MacrophageAlpha-1 Antitrypsin DeficiencyCystic Fibrosis

Outcome Measures

Primary Outcomes (1)

  • Evaluation of macrophage function.

    From every study participant, we will collect blood from a vein through the placement of an intravenous catheter (IV). We will complete various experiments that will allow us to see how well each participant's macrophage cells are working.

    On average, within 30 days from the time the blood is collected.

Secondary Outcomes (3)

  • Comparison of the amount of alpha-1 antitrypsin in the blood.

    On average, within 30 days from the time the blood was collected.

  • Comparison of the amount of an inflammatory marker in the blood, called C-reactive protein.

    On average, within 30 days from the time the blood is collected.

  • Evaluation of lung function.

    On average, within 30 days from the time the testing is completed.

Study Arms (3)

AAT Deficiency

Those diagnosed with Alpha-1 Antitrypsin (AAT) Deficiency. At every study visit, a history and physical exam (H\&P), blood draw, and pulmonary function testing (PFTs) with the use of an albuterol inhaler will be done.

Procedure: History and physical exam.Procedure: Blood draw.Procedure: Pulmonary function testing.Drug: Albuterol inhaler.

Cystic Fibrosis

Those diagnosed with Cystic Fibrosis (CF) with mutation Delta F508. At every study visit, a history and physical exam (H\&P), blood draw, and pulmonary function testing (PFTs) with the use of an albuterol inhaler will be done.

Procedure: History and physical exam.Procedure: Blood draw.Procedure: Pulmonary function testing.Drug: Albuterol inhaler.

Without Lung Disease Diagnosis

Those without the diagnosis of AAT Deficiency or CF. At every study visit, a history and physical exam (H\&P), blood draw, and pulmonary function testing (PFTs) with the use of an albuterol inhaler will be done.

Procedure: History and physical exam.Procedure: Blood draw.Procedure: Pulmonary function testing.Drug: Albuterol inhaler.

Interventions

At every study visit, participant's will be asked about their medical history and will have a physical exam.

Also known as: H&P
AAT DeficiencyCystic FibrosisWithout Lung Disease Diagnosis
Blood draw.PROCEDURE

At each study visit, participants will have an intravenous catheter (IV) placed in one of their veins and blood will be drawn from the IV for study testing.

Also known as: Phlebotomy
AAT DeficiencyCystic FibrosisWithout Lung Disease Diagnosis

At every study visit, participants will have their lung function assessed. This is done by blowing forcefully at least 3 times into a tube. Testing will be done two times; before and after the use of an Albuterol inhaler.

Also known as: PFTs
AAT DeficiencyCystic FibrosisWithout Lung Disease Diagnosis

At every study visit, participating subjects will take 2 puffs of an Albuterol inhaler after the first set of PFTs, but before the second set of PFTs. There will be at least a 30 minute period after the use of the Albuterol inhaler and the second set of PFTs.

Also known as: Ventolin, Proventil, Proventil-HFA, AccuNeb, Vospire, ProAir
AAT DeficiencyCystic FibrosisWithout Lung Disease Diagnosis

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Alpha-1 Antitrypsin (AAT) Deficient subjects, Cystic Fibrosis(CF) subjects with mutation Delta F508, and subjects without either diagnosis.

You may qualify if:

  • Signed informed consent
  • Male or female 18 years of age or older
  • Negative pregnancy test for women of childbearing potential
  • Hemoglobin \>12.5 g/dl measured on the day of participation
  • Negative urine nicotine test

You may not qualify if:

  • Pregnancy or breastfeeding
  • Weight \< 50 kg
  • History of anemia requiring blood transfusions, erythropoietin supplementation, or iron supplementation within the past 36 months
  • Known hemoglobin \<12.5 g/dl within the past 90 days
  • Systolic blood pressure \> 180 mmHg and/or diastolic blood pressure \>100 mmHg
  • Poor venous access
  • Large volume blood donation (\>200 ml or 7 ounces) within the previous 56 days (e.g. blood donation for the purposes of blood banking)
  • Clinically significant cardiac, hemostatic or neurological impairment or any other significant medical condition that, in the opinion of the investigator would affect subject safety (e.g., recent myocardial infarction, history of prolonged bleeding time, cerebral vascular accident, advanced cancer or uncontrolled medical condition)
  • Psychiatric or cognitive disturbance or illness that would affect subject safety
  • Current smoker

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Shands at the University of Florida

Gainesville, Florida, 32610, United States

RECRUITING

Related Publications (10)

  • Blank CA, Brantly M. Clinical features and molecular characteristics of alpha 1-antitrypsin deficiency. Ann Allergy. 1994 Feb;72(2):105-20; quiz 120-2.

    PMID: 8109800BACKGROUND
  • Yoshida A, Lieberman J, Gaidulis L, Ewing C. Molecular abnormality of human alpha1-antitrypsin variant (Pi-ZZ) associated with plasma activity deficiency. Proc Natl Acad Sci U S A. 1976 Apr;73(4):1324-8. doi: 10.1073/pnas.73.4.1324.

    PMID: 1083527BACKGROUND
  • Jeppsson JO. Amino acid substitution Glu leads to Lys alpha1-antitrypsin PiZ. FEBS Lett. 1976 Jun 1;65(2):195-7. doi: 10.1016/0014-5793(76)80478-4. No abstract available.

    PMID: 1084290BACKGROUND
  • Lomas DA, Evans DL, Finch JT, Carrell RW. The mechanism of Z alpha 1-antitrypsin accumulation in the liver. Nature. 1992 Jun 18;357(6379):605-7. doi: 10.1038/357605a0.

    PMID: 1608473BACKGROUND
  • Perlmutter DH. Liver injury in alpha1-antitrypsin deficiency: an aggregated protein induces mitochondrial injury. J Clin Invest. 2002 Dec;110(11):1579-83. doi: 10.1172/JCI16787. No abstract available.

    PMID: 12464659BACKGROUND
  • Hidvegi T, Schmidt BZ, Hale P, Perlmutter DH. Accumulation of mutant alpha1-antitrypsin Z in the endoplasmic reticulum activates caspases-4 and -12, NFkappaB, and BAP31 but not the unfolded protein response. J Biol Chem. 2005 Nov 25;280(47):39002-15. doi: 10.1074/jbc.M508652200. Epub 2005 Sep 23.

    PMID: 16183649BACKGROUND
  • Kaufman RJ. Orchestrating the unfolded protein response in health and disease. J Clin Invest. 2002 Nov;110(10):1389-98. doi: 10.1172/JCI16886. No abstract available.

    PMID: 12438434BACKGROUND
  • Oda Y, Okada T, Yoshida H, Kaufman RJ, Nagata K, Mori K. Derlin-2 and Derlin-3 are regulated by the mammalian unfolded protein response and are required for ER-associated degradation. J Cell Biol. 2006 Jan 30;172(3):383-93. doi: 10.1083/jcb.200507057.

    PMID: 16449189BACKGROUND
  • Seager Danciger J, Lutz M, Hama S, Cruz D, Castrillo A, Lazaro J, Phillips R, Premack B, Berliner J. Method for large scale isolation, culture and cryopreservation of human monocytes suitable for chemotaxis, cellular adhesion assays, macrophage and dendritic cell differentiation. J Immunol Methods. 2004 May;288(1-2):123-34. doi: 10.1016/j.jim.2004.03.003.

    PMID: 15183091BACKGROUND
  • Newman BH. Donor reactions and injuries from whole blood donation. Transfus Med Rev. 1997 Jan;11(1):64-75. doi: 10.1016/s0887-7963(97)80011-9.

    PMID: 9031492BACKGROUND

Related Links

Biospecimen

Retention: SAMPLES WITH DNA

Whole blood and plasma.

MeSH Terms

Conditions

alpha 1-Antitrypsin DeficiencyCystic Fibrosis

Interventions

Health Records, PersonalRestraint, PhysicalBlood Specimen CollectionPhlebotomyRespiratory Physiological PhenomenaAlbuterolProcaterol

Condition Hierarchy (Ancestors)

Liver DiseasesDigestive System DiseasesLung DiseasesRespiratory Tract DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesSubcutaneous EmphysemaEmphysemaPathologic ProcessesPathological Conditions, Signs and SymptomsPancreatic DiseasesInfant, Newborn, Diseases

Intervention Hierarchy (Ancestors)

Medical RecordsRecordsData CollectionEpidemiologic MethodsInvestigative TechniquesBehavior ControlTherapeuticsImmobilizationSpecimen HandlingClinical Laboratory TechniquesDiagnostic Techniques and ProceduresDiagnosisPuncturesSurgical Procedures, OperativeCirculatory and Respiratory Physiological PhenomenaEthanolaminesAmino AlcoholsAlcoholsOrganic ChemicalsAminesPhenethylaminesEthylaminesHydroxyquinolinesQuinolinesHeterocyclic Compounds, 2-RingHeterocyclic Compounds, Fused-RingHeterocyclic Compounds

Study Officials

  • Karina Serban, MD

    University of Florida, College of Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Allison E. Faunce, B.A.

CONTACT

Michelle Owens, RN, BSN

CONTACT

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

April 25, 2013

First Posted

May 10, 2013

Study Start

August 9, 2007

Primary Completion (Estimated)

July 20, 2032

Study Completion (Estimated)

July 20, 2033

Last Updated

November 6, 2025

Record last verified: 2025-11

Data Sharing

IPD Sharing
Will share

Enrolled subjects may request a copy of their clinical testing done while enrolled in the clinical trial. All other data used for publication purposes will be de-identified.

Time Frame
This study is a tissue data bank study and data will not be shared with the public
Access Criteria
This is no sharing of data in this tissue banking study, so no share access will be used

Locations