NCT01717456

Brief Summary

In previous studies at a university referral center the investigators demonstrated that a multicomponent conservative treatment for fecal incontinence was effective. The treatment combines patient education with medical management of diarrhea and constipation plus behavioral training. The purpose of this study is to determine whether this treatment is effective when delivered by home health care nurses to frail elderly patients.

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
31

participants targeted

Target at P25-P50 for not_applicable

Timeline
Completed

Started Jan 2013

Typical duration for not_applicable

Geographic Reach
1 country

1 active site

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

September 15, 2012

Completed
2 months until next milestone

First Posted

Study publicly available on registry

October 30, 2012

Completed
2 months until next milestone

Study Start

First participant enrolled

January 1, 2013

Completed
2.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 1, 2015

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

March 1, 2015

Completed
2 years until next milestone

Results Posted

Study results publicly available

February 17, 2017

Completed
Last Updated

February 17, 2017

Status Verified

February 1, 2017

Enrollment Period

2.2 years

First QC Date

September 15, 2012

Results QC Date

May 16, 2016

Last Update Submit

February 16, 2017

Conditions

Keywords

Fecal incontinenceFrail eldersHome health careNursePatient education

Outcome Measures

Primary Outcomes (2)

  • Fecal Incontinence Severity Index (FISI) at End of Treatment

    At the end of treatment, the FISI requires the patient to report the frequency of occurrence of 4 types of fecal incontinence (solid, liquid, mucus, and gas incontinence) in the past month. These four responses are multiplied by empirically derived patient weights and the values are added together. Range of scores is 0-61. Higher scores show more severe fecal incontinence.

    End of Treatment (Week 6)

  • Fecal Incontinence Severity Index (FISI) at Follow-Up (FU)

    At follow up 6 months after the end of treatment, the subject reports the frequency of occurrence of 4 types of fecal incontinence (solid, liquid, mucus, and gas incontinence) in the past month. These four responses are multiplied by empirically derived patient weights and the values are added together. Range is 0-61. No data is available to interpret the scale as mild, moderate, or severe fecal incontinence.

    6 months after (6-Week) treatment ends

Secondary Outcomes (23)

  • Adequate Relief of Fecal Incontinence at End of Treatment

    End of Treatment (Week 6)

  • Adequate Relief of Fecal Incontinence at Follow Up

    6 months after (6-Week) treatment ends

  • MHQ Severity Scale at End of Treatment

    End of Treatment (Week 6)

  • MHQ Severity Scale at Follow Up

    6 months after (6-Week) treatment ends

  • Zarit Caregiver Burden Scale at End of Treatment

    End of Treatment (Week 6)

  • +18 more secondary outcomes

Other Outcomes (7)

  • Cognitive Status at End of Treatment

    End of Treatment (Week 6)

  • Change in Ambulation From Baseline to End of Treatment

    Baseline, End of Treatment (Week 6)

  • Ability to Reach Toilet at End of Treatment

    End of Treatment (Week 6)

  • +4 more other outcomes

Study Arms (2)

Educational-Medical-Behavioral

ACTIVE COMPARATOR

Educational-Medical-Behavioral intervention includes education, fiber supplements \[Metamucil 1-4 packets (3.4-13.6 g)/day\], laxatives or anti-diarrheals \[Miralax 1-2 packets (17-34 g)/day or Imodium 0.5-2 tablets (1-4 mg)/day\], pelvic floor muscle exercises \[100 10-second squeezes/day\], tips on how to prevent fecal incontinence, daily diary, and protective pads or garments \[as needed\].

Other: EducationDietary Supplement: Fiber supplementsDrug: Laxatives or anti-diarrhealsBehavioral: Pelvic floor muscle exercisesBehavioral: Tips on how to prevent fecal incontinenceBehavioral: Daily diaryOther: Protective pads or garments

Standard Care

PLACEBO COMPARATOR

Standard care includes fiber supplements 1-4 packets (3.4-13.6 g)/day\], daily diary, and protective pads or garments \[as needed\].

Dietary Supplement: Fiber supplementsBehavioral: Daily diaryOther: Protective pads or garments

Interventions

Patient and caregiver will be taught which muscles are used in continence and defecation through the use of a training manual and anatomical drawings.

Educational-Medical-Behavioral
Fiber supplementsDIETARY_SUPPLEMENT

Patients and caregivers will be taught to use fiber supplements to normalize stool consistency if patient reports diarrhea or constipation. Fiber supplements will be in the form of Metamucil beginning with 3.4 grams per day and increasing up to 13.6 grams per day if needed to control stool consistency.

Educational-Medical-BehavioralStandard Care

Miralax at a dose of one packet (17 grams) daily may be used for constipation if unresponsive to fiber. Dose may be titrated up to two packets (34 grams) daily if needed. Imodium at a starting dose of 2 mg/day may be used for diarrhea if unresponsive to fiber. Dose of Imodium may be titrated down to 1 mg or up to 4 mg if needed.

Also known as: Miralax (polyethylene glycol), Imodium (loperamide)
Educational-Medical-Behavioral

Patients will be taught how to perform pelvic floor muscle contractions during digital rectal examination by a nurse. They will be asked to squeeze 100 times daily.

Educational-Medical-Behavioral

Examples of behavioral tips are "Walk, don't run to the toilet" and "Squeeze before you lift objects or sneeze".

Educational-Medical-Behavioral
Daily diaryBEHAVIORAL

Both groups will keep a daily diary, but amount of detail differs: Active comparator group records bowel accidents, bowel movements, Bristol Stool ratings of stool consistency, number of times they do pelvic floor exercises, study medications, and comments for the nurse to read. Placebo comparator group records only bowel accidents, bowel movements, and Bristol Stool scores.

Educational-Medical-BehavioralStandard Care

In both groups, patients will be permitted to use pads or protective garments to avoid embarrassment. They will be told that fecal leakage that is stopped by a pad or protective garment should still be recorded as fecal incontinence.

Also known as: Continence pads
Educational-Medical-BehavioralStandard Care

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Self-reported fecal incontinence at least once a month
  • Family caregiver available and willing to participate in treatment sessions and willing to assist patient with study procedures
  • Patients and caregivers willing to be interviewed by a research assistant in their home on three occasions
  • Onset of fecal incontinence more than 3 months previously (i.e., not transient fecal incontinence)

You may not qualify if:

  • Has a stoma or fecal incontinence status is unknown
  • Has fecal incontinence less than monthly
  • Severe cognitive impairment (response of 4 on OASIS question M1700)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

University of North Carolina at Chapel Hill

Chapel Hill, North Carolina, 27599-7080, United States

Location

MeSH Terms

Conditions

Fecal Incontinence

Interventions

Educational StatusLaxativesLoperamidepolyethylene glycol 3350Polyethylene GlycolsClothing

Condition Hierarchy (Ancestors)

Rectal DiseasesIntestinal DiseasesGastrointestinal DiseasesDigestive System Diseases

Intervention Hierarchy (Ancestors)

Socioeconomic FactorsPopulation CharacteristicsGastrointestinal AgentsTherapeutic UsesPharmacologic ActionsChemical Actions and UsesPiperidinesHeterocyclic Compounds, 1-RingHeterocyclic CompoundsEthylene GlycolsGlycolsAlcoholsOrganic ChemicalsPolymersMacromolecular SubstancesBiomedical and Dental MaterialsManufactured MaterialsTechnology, Industry, and Agriculture

Limitations and Caveats

Early termination leading to small numbers of subjects analyzed.

Results Point of Contact

Title
William E. Whitehead, PhD, Professor of Medicine
Organization
University of North Carolina at Chapel Hill

Study Officials

  • William E Whitehead, PhD

    University of North Carolina, Chapel Hill

    PRINCIPAL INVESTIGATOR

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
DOUBLE
Who Masked
PARTICIPANT, OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Professor of Medicine and Adjunct Professor of OBGYN

Study Record Dates

First Submitted

September 15, 2012

First Posted

October 30, 2012

Study Start

January 1, 2013

Primary Completion

March 1, 2015

Study Completion

March 1, 2015

Last Updated

February 17, 2017

Results First Posted

February 17, 2017

Record last verified: 2017-02

Data Sharing

IPD Sharing
Will not share

Insufficient data to be analyzed by an outside investigator.

Locations