NCT01624038

Brief Summary

The study hypothesis that treatment with Erythropoietin (EPO) combined with Human Erythropoietin (HUO) therapy will result in hematologic improvement in thalassemia intermedia patients. Second is to determine whether any of the following correlate with improved hematologic response: A decrease in hemolysis, as assayed by a decrease in LDH, compared to baseline levels,baseline Erythropoietin levels,baseline hemoglobin levels and baseline reticulocyte counts (or % circulating nucleated erythroblasts/100 WBCs). Goal: The aim is to assess the possibility of steady increase of hemoglobin levels in thalassemia intermedia patients by at least 1g/dl above baseline levels during therapy using Hydroxyurea and Erythropoietin, growth evaluation,quality of life (QoL) and decline transfusion requirements during study period. Also to report and compare adverse events with other published data regarding.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
40

participants targeted

Target at P25-P50 for phase_2

Timeline
Completed

Started Jun 2012

Shorter than P25 for phase_2

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

April 13, 2012

Completed
2 months until next milestone

Study Start

First participant enrolled

June 1, 2012

Completed
19 days until next milestone

First Posted

Study publicly available on registry

June 20, 2012

Completed
5 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2012

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2012

Completed
Last Updated

June 20, 2012

Status Verified

June 1, 2012

Enrollment Period

6 months

First QC Date

April 13, 2012

Last Update Submit

June 18, 2012

Conditions

Keywords

HydroxyureaErythropoitin therapyThalassemia intermedia

Outcome Measures

Primary Outcomes (1)

  • Change in baseline transfusion frequency with increase of pre-transfusion hemoglobin

    Decrease in baseline transfusion frequency with increase of pre-transfusion hemoglobin by calculation of transfusion index and mean hemoglobin level

    baseline and 6 month hemoglobin level and transfusion frequency

Secondary Outcomes (1)

  • Change in baseline quality of life assessment.

    baseline and 6 month QOL questionaire

Study Arms (2)

Hydroxyurea,blood transfusion

ACTIVE COMPARATOR

Hydroxyurea (Myers-Squibb, USA) was administered in dosages ranging from 15 up to 35 mg/kg/day orally over 7 days/week.

Drug: hydroxyurea, blood transfusion

Hydroxyurea, Epiao

EXPERIMENTAL

* Hydroxyurea (Myers-Squibb, USA) was administered in dosages ranging from 15 up to 35 mg/kg/day orally over 7 days/week. Hydroxyurea toxicity was defined as a white cell count of less than 2500/μL or a platelet count of less than 100,000/μL, in which case the drug was discontinued. White cell count and platelet count were determined on a monthly basis. Side effects such as nausea, vomiting, diarrhea, rashes, and malaise, experienced during the first 6 h after taking the HU will be considered as clinical toxicity. * Erythropiotien therapy (rHuEPO - Epiao) from 250 to 500 IU/kg rHuEPO subcutaneously three times a week.

Drug: Hydroxyurea ,Epiao

Interventions

Hydroxyurea (Myers-Squibb, USA) was administered in dosages ranging from 15 up to 35 mg/kg/day orally over 7 days/week. Erythropiotien therapy (rHuEPO - Epiao) from 250 to 500 IU/kg rHuEPO subcutaneously three times a week.

Hydroxyurea, Epiao

* Hydroxyurea was administered in dosages ranging from 15 up to 35 mg/kg/day orally over 7 days/week. Hydroxyurea toxicity was defined as a white cell count of less than 2500/μL or a platelet count of less than 100,000/μL, in which case the drug was discontinued.

Hydroxyurea,blood transfusion

Eligibility Criteria

Age3 Years - 18 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • Patients with thalassemia intermedia. Diagnosis based on genetic mutations, hemoglobin electrophoresis and characteristic clinical data at presentation.
  • Require different transfusion requirements and not transfusion dependent.
  • Have a baseline hemoglobin of less than or equal to 6-8g/dl.
  • Patients with normal renal and liver function.

You may not qualify if:

  • Evidence of active hepatitis (ALT \> 5 times above ULN).
  • Evidence of renal impairment (serum creatinine \> ULN).
  • Patients who are dependent on red blood cell transfusions.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

hematology clinic ,pediatrics hospital, Ain Shams University hospital

Cairo, Egypt

Location

Related Publications (1)

  • Elalfy MS, Adly AA, Ismail EA, Elhenawy YI, Elghamry IR. Therapeutic superiority and safety of combined hydroxyurea with recombinant human erythropoietin over hydroxyurea in young beta-thalassemia intermedia patients. Eur J Haematol. 2013 Dec;91(6):522-33. doi: 10.1111/ejh.12182. Epub 2013 Oct 5.

MeSH Terms

Conditions

beta-Thalassemia

Interventions

HydroxyureaBlood Transfusion

Condition Hierarchy (Ancestors)

ThalassemiaAnemia, Hemolytic, CongenitalAnemia, HemolyticAnemiaHematologic DiseasesHemic and Lymphatic DiseasesHemoglobinopathiesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Intervention Hierarchy (Ancestors)

UreaAmidesOrganic ChemicalsBiological TherapyTherapeutics

Study Officials

  • Mohsen S Elalfy, professor

    Ain Shams University

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Amira A M Adly, Asst. prof.

CONTACT

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NON RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
prof. Mohsen el alfy

Study Record Dates

First Submitted

April 13, 2012

First Posted

June 20, 2012

Study Start

June 1, 2012

Primary Completion

December 1, 2012

Study Completion

December 1, 2012

Last Updated

June 20, 2012

Record last verified: 2012-06

Locations