NCT01465061

Brief Summary

With the rise of usage of the internet, online social networks have recently been gaining popularity. Joining these groups can be beneficial to patients with chronic medical illness, such as psoriasis.This was a cross-sectional online survey of psoriasis patients in the Philippines who are members of online support groups. The survey was conducted for a period of three months.The purpose of the research project was to describe the demographics, disease characteristics, activities and benefits of online support groups to Filipino patients with psoriasis. The extent to which members experience empowering processes and outcomes was also evaluated.

Trial Health

100
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
124

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Feb 2011

Shorter than P25 for all trials

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Start

First participant enrolled

February 1, 2011

Completed
4 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 1, 2011

Completed
2 months until next milestone

Study Completion

Last participant's last visit for all outcomes

August 1, 2011

Completed
3 months until next milestone

First Submitted

Initial submission to the registry

October 26, 2011

Completed
9 days until next milestone

First Posted

Study publicly available on registry

November 4, 2011

Completed
Last Updated

November 4, 2011

Status Verified

November 1, 2011

Enrollment Period

4 months

First QC Date

October 26, 2011

Last Update Submit

November 1, 2011

Conditions

Keywords

Online social networkPsoriasisFilipino

Outcome Measures

Primary Outcomes (2)

  • Demographic profile of online support users

    The sociodemographic profile of the respondents such as age (mean, range), sex, civil status, level of formal education, employment status were described.

    3 months

  • Disease characteristics of online support users

    The overall health status (poor, average, good), psoriasis severity (mild, moderate, severe), duration of illness of online support groups were evaluated.

    3 months

Secondary Outcomes (3)

  • Activities performed and extent of participation of online support users

    3 months

  • Empowering processes and outcomes experienced by online support group members

    3 months

  • Correlation of variables

    3 months

Study Arms (1)

Online support user

Behavioral: Online support group

Interventions

Joining online support group

Also known as: Online social network, virtual online community
Online support user

Eligibility Criteria

Sexall
Healthy VolunteersYes
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Members of virtual psoriasis local support networks (Yahoo-based Psoriasis Philippine Online Community, Inc. and Facebook Psoriasis Online Support Group) will be the main subjects of the study.

You may qualify if:

  • diagnosis of psoriasis
  • individuals who are willing to complete the online survey
  • proficiency in English
  • membership in an online psoriasis support network

You may not qualify if:

  • nonmembers
  • unwilling to participate in the study

Contact the study team to confirm eligibility.

Sponsors & Collaborators

MeSH Terms

Conditions

Psoriasis

Condition Hierarchy (Ancestors)

Skin Diseases, PapulosquamousSkin DiseasesSkin and Connective Tissue Diseases

Study Officials

  • Charlene U Ang-Tiu, MD

    University of the Philippines-Philippine General Hospital Section of Dermatology

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
ECOLOGIC OR COMMUNITY
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Dermatology resident

Study Record Dates

First Submitted

October 26, 2011

First Posted

November 4, 2011

Study Start

February 1, 2011

Primary Completion

June 1, 2011

Study Completion

August 1, 2011

Last Updated

November 4, 2011

Record last verified: 2011-11