NCT01454817

Brief Summary

The purpose of this study is to better understand symptoms and quality of life in patients with heart disease and implantable defibrillators (ICDs).

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
562

participants targeted

Target at P75+ for not_applicable quality-of-life

Timeline
Completed

Started Jun 2012

Longer than P75 for not_applicable quality-of-life

Geographic Reach
1 country

6 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

October 14, 2011

Completed
5 days until next milestone

First Posted

Study publicly available on registry

October 19, 2011

Completed
8 months until next milestone

Study Start

First participant enrolled

June 1, 2012

Completed
4.3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 1, 2016

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

September 1, 2016

Completed
Last Updated

October 10, 2016

Status Verified

October 1, 2016

Enrollment Period

4.3 years

First QC Date

October 14, 2011

Last Update Submit

October 7, 2016

Conditions

Keywords

Quality of LifeImplantable Cardiac DefibrillatorsICDs

Outcome Measures

Primary Outcomes (2)

  • Physical Symptoms

    physical symptoms of pain, shortness of breath, depression, anxiety

    every 3 months plus after hospitalizations for an average of 1 year

  • Psychological Symptoms

    Psychological symptoms of anxiety and depression

    every 3 months plus after hospitalizations for an average of 1 year

Secondary Outcomes (1)

  • Quality of Life

    every 3 months plus after hospitalizations for an average of 1 year

Study Arms (2)

Patients with ICDs

OTHER
Behavioral: Quality of life

Caregivers of Patients with ICDs

OTHER
Behavioral: Quality of life

Interventions

Quality of lifeBEHAVIORAL

Improving Quality of Life

Caregivers of Patients with ICDsPatients with ICDs

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Patients:
  • Patient has an ICD
  • Age \> 18
  • Fluent in English
  • Consistent and reliable access to a phone.
  • Caregivers of Patients:
  • Age \> 18
  • Fluent in English
  • Consistent and reliable access to a phone

You may not qualify if:

  • Not having an ICD

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (6)

University of Colorado - Denver

Denver, Colorado, 80045, United States

Location

Yale New-Haven Hospital

New Haven, Connecticut, 06510, United States

Location

Mayo Medical Center

Rochester, Minnesota, 55905, United States

Location

Icahn School of Medicine at Mount Sinai

New York, New York, 10029, United States

Location

Montefiore Medical Center

The Bronx, New York, 10023, United States

Location

Hospital of the University of Pennsylvania

Philadelphia, Pennsylvania, 19104, United States

Location

MeSH Terms

Interventions

Quality of Life

Intervention Hierarchy (Ancestors)

Health StatusDemographyEpidemiologic MeasurementsPublic HealthEnvironment and Public Health

Study Officials

  • Nathan Goldstein, MD

    Icahn School of Medicine at Mount Sinai

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
TRIPLE
Who Masked
PARTICIPANT, CARE PROVIDER, OUTCOMES ASSESSOR
Purpose
SUPPORTIVE CARE
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 14, 2011

First Posted

October 19, 2011

Study Start

June 1, 2012

Primary Completion

September 1, 2016

Study Completion

September 1, 2016

Last Updated

October 10, 2016

Record last verified: 2016-10

Locations