NCT01422187

Brief Summary

This is a multi-center trial to further extend the assessment of the safety and efficacy of taliglucerase alfa in adult subjects (≥18 years old) with Gaucher disease who have enrolled in Protocol PB-06-003. Subjects will continue to receive an intravenous (IV) infusion of taliglucerase alfa every two weeks. The duration of treatment will be a maximum of 21 months or until taliglucerase alfa is commercially available to the subject at the discretion of the Sponsor.

Trial Health

100
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
19

participants targeted

Target at below P25 for phase_3

Timeline
Completed

Started Aug 2011

Typical duration for phase_3

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

August 1, 2011

Completed
21 days until next milestone

First Submitted

Initial submission to the registry

August 22, 2011

Completed
1 day until next milestone

First Posted

Study publicly available on registry

August 23, 2011

Completed
2.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

May 1, 2014

Completed
4 months until next milestone

Study Completion

Last participant's last visit for all outcomes

September 1, 2014

Completed
1.3 years until next milestone

Results Posted

Study results publicly available

December 14, 2015

Completed
Last Updated

April 19, 2023

Status Verified

April 1, 2023

Enrollment Period

2.8 years

First QC Date

August 22, 2011

Results QC Date

November 6, 2015

Last Update Submit

April 18, 2023

Conditions

Keywords

enzyme replacement therapy

Outcome Measures

Primary Outcomes (1)

  • Spleen Volume

    Spleen volume measured by MRI

    60 months

Secondary Outcomes (3)

  • Liver Volume

    60 months

  • Platelet Count

    60 months

  • Hemoglobin

    60 months

Study Arms (2)

Taliglucerase alfa 30 units/kg

EXPERIMENTAL

Subjects randomized to receive 30 units/kg

Drug: Taliglucerase alfa

Taliglucerase alfa 60 units/kg

EXPERIMENTAL

Subjects randomized to 60 units/kg

Drug: Taliglucerase alfa

Interventions

Taliglucerase infusion every two weeks for 21 months

Taliglucerase alfa 30 units/kgTaliglucerase alfa 60 units/kg

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Successfully completed Protocol PB-06-001 and enrolled in Protocol PB-06-003
  • The subject signs an informed consent

You may not qualify if:

  • Currently taking another investigational drug for any condition.
  • Presence of any medical, emotional, behavioral or psychological condition that in the judgment of the Investigator would interfere with the subject's compliance with the requirements of the study.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Related Publications (1)

  • Zimran A, Duran G, Giraldo P, Rosenbaum H, Giona F, Petakov M, Terreros Munoz E, Solorio-Meza SE, Cooper PA, Varughese S, Alon S, Chertkoff R. Long-term efficacy and safety results of taliglucerase alfa through 5years in adult treatment-naive patients with Gaucher disease. Blood Cells Mol Dis. 2019 Sep;78:14-21. doi: 10.1016/j.bcmd.2016.07.002. Epub 2016 Jul 18.

MeSH Terms

Conditions

Gaucher Disease

Interventions

taliglucerase alfa

Condition Hierarchy (Ancestors)

SphingolipidosesLysosomal Storage Diseases, Nervous SystemBrain Diseases, Metabolic, InbornBrain Diseases, MetabolicBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesMetabolism, Inborn ErrorsGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesLipidosesLipid Metabolism, Inborn ErrorsLysosomal Storage DiseasesMetabolic DiseasesNutritional and Metabolic DiseasesLipid Metabolism Disorders

Results Point of Contact

Title
Glen Park
Organization
Target Health Inc.

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
interventional
Phase
phase 3
Allocation
RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR
Expanded Access
Yes

Study Record Dates

First Submitted

August 22, 2011

First Posted

August 23, 2011

Study Start

August 1, 2011

Primary Completion

May 1, 2014

Study Completion

September 1, 2014

Last Updated

April 19, 2023

Results First Posted

December 14, 2015

Record last verified: 2023-04