NCT01099982

Brief Summary

Hypothesis: Tissue and serum samples collected from end-stage heart failure patients receiving left ventricular assist device implantation (LVAD) or heart transplantation will provide information regarding the basic science of heart disease. Tissue and serum samples collected from a limited numbers of "healthy controls" (donor grafts that were not utilized for heart transplantation) will serve as a comparator in research database projects. Design: This is a registry project; there are no investigational treatments, drug or procedures associated with participation in registry activities. This project is an organized functional data and tissue data gathering and storing (database) endeavor with specific focus on the functional, structural, and molecular aspects of heart failure. Data collection will not immediately influence the course of treatment for any patient.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
300

participants targeted

Target at P75+ for all trials

Timeline
20mo left

Started Sep 2008

Longer than P75 for all trials

Geographic Reach
1 country

3 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress91%
Sep 2008Jan 2028

Study Start

First participant enrolled

September 1, 2008

Completed
1.6 years until next milestone

First Submitted

Initial submission to the registry

April 6, 2010

Completed
2 days until next milestone

First Posted

Study publicly available on registry

April 8, 2010

Completed
17.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 1, 2028

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

January 1, 2028

Last Updated

July 15, 2025

Status Verified

July 1, 2025

Enrollment Period

19.3 years

First QC Date

April 6, 2010

Last Update Submit

July 9, 2025

Conditions

Keywords

Congestive Heart FailureLeft Ventricular Assist DeviceLVADMyocardiumRemodelingMicrovasculatureFibrosisCardiac Transplant

Outcome Measures

Primary Outcomes (1)

  • Change in myocardial function

    Myocardial function, measured by left ventricular ejection fraction, will be assessed pre-LVAD implant (baseline) and compared with myocardial function assessed at 3 months post-LVAD implant

    baseline and 3 months

Study Arms (2)

Advanced Heart Failure Therapy Group

Patients diagnosed with end stage heart failure undergoing either VAD implantation or heart transplantation.

Normal Hearts Group

Control samples will be obtained from individuals undergoing other types of cardiac surgery during which it is routine to discard some tissue intraoperatively.

Eligibility Criteria

Age13 Years+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Either gender, ≥ 13 years of age, any ethnicity, diagnosed with end stage heart failure undergoing either VAD implantation or heart transplantation. Control samples will be obtained from individuals undergoing other types of cardiac sugery during which it is routine to discard some tissue intraoperatively.

You may qualify if:

  • \>18 years of age diagnosed with heart failure undergoing either LVAD implantation or heart transplantation
  • to 18 years of age, specifically, older children with heart failure whose body mass index is large enough to accommodate and LVAD

You may not qualify if:

  • Neither patient nor patient representative understands spoken English
  • Neither patient nor patient's personal representative is willing to give written consent for participation.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (3)

Intermountain Medical Center

Murray, Utah, 84157, United States

RECRUITING

University of Utah Health Sciences Center

Salt Lake City, Utah, 84132, United States

RECRUITING

VA Salt Lake City Health Care System

Salt Lake City, Utah, 84148, United States

RECRUITING

Related Publications (1)

  • Gatsiou A, Tual-Chalot S, Napoli M, Ortega-Gomez A, Regen T, Badolia R, Cesarini V, Garcia-Gonzalez C, Chevre R, Ciliberti G, Silvestre-Roig C, Martini M, Hoffmann J, Hamouche R, Visker JR, Diakos N, Wietelmann A, Silvestris DA, Georgiopoulos G, Moshfegh A, Schneider A, Chen W, Guenther S, Backs J, Kwak S, Selzman CH, Stamatelopoulos K, Rose-John S, Trautwein C, Spyridopoulos I, Braun T, Waisman A, Gallo A, Drakos SG, Dimmeler S, Sperandio M, Soehnlein O, Stellos K. The RNA editor ADAR2 promotes immune cell trafficking by enhancing endothelial responses to interleukin-6 during sterile inflammation. Immunity. 2023 May 9;56(5):979-997.e11. doi: 10.1016/j.immuni.2023.03.021. Epub 2023 Apr 25.

Biospecimen

Retention: SAMPLES WITH DNA

Serum and myocardial tissue.

MeSH Terms

Conditions

Heart FailureFibrosis

Condition Hierarchy (Ancestors)

Heart DiseasesCardiovascular DiseasesPathologic ProcessesPathological Conditions, Signs and Symptoms

Study Officials

  • Stavros Drakos, M.D., Ph.D.

    University of Utah Health Sciences Center & VA Salt Lake City Health Care System

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Stavros Drakos, M.D., Ph.D.

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Principal Investigator

Study Record Dates

First Submitted

April 6, 2010

First Posted

April 8, 2010

Study Start

September 1, 2008

Primary Completion (Estimated)

January 1, 2028

Study Completion (Estimated)

January 1, 2028

Last Updated

July 15, 2025

Record last verified: 2025-07

Locations