NCT01088152

Brief Summary

Swedish celiac disease women living on a gluten-free diet for years report poorer subjective health and more bowel complaints than Swedish women of same age in general population. The investigators hypothesis is that the women participating in an education programme based on problem based learning will show higher degree of perceived health than the women receiving usual care.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
106

participants targeted

Target at P50-P75 for not_applicable

Timeline
Completed

Started Aug 2008

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Start

First participant enrolled

August 1, 2008

Completed
5 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 1, 2009

Completed
1.2 years until next milestone

Study Completion

Last participant's last visit for all outcomes

March 1, 2010

Completed
15 days until next milestone

First Submitted

Initial submission to the registry

March 16, 2010

Completed
1 day until next milestone

First Posted

Study publicly available on registry

March 17, 2010

Completed
Last Updated

March 17, 2010

Status Verified

January 1, 2001

Enrollment Period

5 months

First QC Date

March 16, 2010

Last Update Submit

March 16, 2010

Conditions

Keywords

Celiac diseaseEducationSwedenGluten-free diet

Outcome Measures

Primary Outcomes (1)

  • Subjective health and well-being

    Gastrointestinal symptoms and Psychological well-being

    6 months

Secondary Outcomes (1)

  • Gastrointestinal symptoms and Psychological well-being

    6 months

Study Arms (2)

Usual care of celiac disease women

ACTIVE COMPARATOR

Written information corresponding to that offered when seeking medical advice for celiac disease in primary care

Behavioral: Usual care of celiac disease women

Celiac School

EXPERIMENTAL

Structured education using problem-based learning at 10 sessions

Behavioral: Celiac school

Interventions

Celiac schoolBEHAVIORAL

Structured education of adult celiac patients at 10 sessions.

Also known as: Patient education, Counselling
Celiac School

Written information corresponding to that offered when seeking medical advice for well treated celiac disease in the primary care.

Also known as: Coeliac disease guidelines
Usual care of celiac disease women

Eligibility Criteria

Age20 Years+
Sexfemale
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Women aged 20 yrs or above with Celiac disease treated for at least five years

You may not qualify if:

  • Anticipated inability to comply the trial protocol

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Norrkoping Hospital,

Norrköping, S-601 82, Sweden

RECRUITING

Related Publications (4)

  • Hallert C, Sandlund O, Broqvist M. Perceptions of health-related quality of life of men and women living with coeliac disease. Scand J Caring Sci. 2003 Sep;17(3):301-7. doi: 10.1046/j.1471-6712.2003.00228.x.

    PMID: 12919466BACKGROUND
  • Sverker A, Hensing G, Hallert C. 'Controlled by food'- lived experiences of coeliac disease. J Hum Nutr Diet. 2005 Jun;18(3):171-80. doi: 10.1111/j.1365-277X.2005.00591.x.

    PMID: 15882379BACKGROUND
  • Midhagen G, Hallert C. High rate of gastrointestinal symptoms in celiac patients living on a gluten-free diet: controlled study. Am J Gastroenterol. 2003 Sep;98(9):2023-6. doi: 10.1111/j.1572-0241.2003.07632.x.

    PMID: 14499782BACKGROUND
  • Roos S, Karner A, Hallert C. Psychological well-being of adult coeliac patients treated for 10 years. Dig Liver Dis. 2006 Mar;38(3):177-80. doi: 10.1016/j.dld.2006.01.004. Epub 2006 Feb 7.

    PMID: 16461026BACKGROUND

MeSH Terms

Conditions

Celiac Disease

Interventions

Patient Education as TopicCounseling

Condition Hierarchy (Ancestors)

Malabsorption SyndromesIntestinal DiseasesGastrointestinal DiseasesDigestive System DiseasesMetabolic DiseasesNutritional and Metabolic Diseases

Intervention Hierarchy (Ancestors)

Health EducationPreventive Health ServicesHealth ServicesHealth Care Facilities Workforce and ServicesMental Health ServicesBehavioral Disciplines and ActivitiesCommunity Health Services

Study Officials

  • Claes Hallert, MD, PhD

    Norrkoping Hospitalö

    STUDY DIRECTOR

Central Study Contacts

Lisa Jacobsson, MSc RN

CONTACT

Claes Hallert, MD,PhD

CONTACT

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER GOV

Study Record Dates

First Submitted

March 16, 2010

First Posted

March 17, 2010

Study Start

August 1, 2008

Primary Completion

January 1, 2009

Study Completion

March 1, 2010

Last Updated

March 17, 2010

Record last verified: 2001-01

Locations