Study Stopped
Business objectives have changed
Connect® MM- The Multiple Myeloma Disease Registry
3 other identifiers
observational
3,011
2 countries
253
Brief Summary
The purpose of the Connect® MM Registry is to explore the natural history and real world management of patients with newly diagnosed symptomatic multiple myeloma (MM) and provide unique insights into the management of MM and the impact of this hematologic disorder on patients.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Sep 2009
Longer than P75 for all trials
253 active sites
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
September 1, 2009
CompletedFirst Submitted
Initial submission to the registry
March 4, 2010
CompletedFirst Posted
Study publicly available on registry
March 5, 2010
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 31, 2024
CompletedStudy Completion
Last participant's last visit for all outcomes
December 31, 2024
CompletedApril 13, 2026
April 1, 2026
15.3 years
March 4, 2010
April 8, 2026
Conditions
Keywords
Outcome Measures
Primary Outcomes (9)
Participant baseline demographics
Baseline
Participant medical history
Baseline
Participant Multiple Myeloma diagnosis information
Baseline
Participant Multiple Myeloma treatment history
Baseline
Multiple Myeloma-related supportive concomitant medications and procedures
Baseline, every 3-months up to 5 years (Cohort 3), or up to 16 years (Cohort 1 & 2), or date of early discontinuation
Occurance of second primary malignancy
Baseline, every 3-months up to 5 years (Cohort 3), or up to 16 years (Cohort 1 & 2), or date of early discontinuation
Number of participants enrolled in a clinical trial
Cohort 1 and 2 only
Baseline, every 3-months up to 16 years or date of early discontinuation
Lines of therapy prescribed
Baseline, every 3-months up to 5 years (Cohort 3), or up to 16 years (Cohort 1 & 2), or date of early discontinuation
Participant disease response assessment results
Baseline, every 3-months up to 5 years (Cohort 3), or up to 16 years (Cohort 1 & 2), or date of early discontinuation
Secondary Outcomes (16)
Participant socioeconomic status
Baseline
Participant EuroQol-5 Dimensions (EQ-5D) questionnaire results
Baseline, every 3-months up to 5 years (Cohort 3) or up to 16 years (Cohort 1 and 2), or date of early discontinuation
Participant Functional Assessment of Cancer Therapy - Multiple Myeloma (FACT-MM) questionnaire results
Baseline, every 3-months up to 5 years (Cohort 3) or up to 16 years (Cohort 1 and 2), or date of early discontinuation
Participant Visual Analogue Score (VAS) questionnaire results
Baseline, every 3-months up to 5 years (Cohort 3) or up to 16 years (Cohort 1 and 2), or date of early discontinuation
Participant participant survival status
Every 3-months up to 5 years (Cohort 3) or up to 16 years (Cohort 1 and 2), or date of early discontinuation
- +11 more secondary outcomes
Study Arms (3)
Cohort 1: Patients enrolled between Sep 2009 and Nov 2011
Newly diagnosed multiple myeloma patients enrolled between Sep 2009 and Nov 2011.
Cohort 2: Patients enrolled between December 2012 and mid-2016
Newly diagnosed multiple myeloma patients enrolled between Dec 2012 and mid-2016
Cohort 3: Patients enrolled from 2023
Relapsed/Refractory multiple myeloma patients receiving second-line therapy
Interventions
As prescribed by the treating physician
As prescribed by treating physician
Eligibility Criteria
Patients with newly diagnosed multiple myeloma and being treated in community or academic settings in the United States
You may qualify if:
- Cohort 1 and 2
- Newly diagnosed with symptomatic MM within 2 months of enrollment in Connect® MM registry
- Age ≥18 years
- Willing and able to provide signed informed consent
- Agrees to complete patient assessment questionnaires either alone or with minimal assistance from caregivers and/or trained site personnel
- Cohort 3
- Received 1L therapy for symptomatic active MM and subsequently has evidence of disease progression. Prior 1L MM treatment received, including anti-myeloma therapy, transplant, chemotherapy, radiation, and surgery, must be known.
- Initiated or intends to initiate 2L systemic therapy for MM after the first documented relapsed/refractory date (i.e. 1L PD).
- Enrollment date must be within 90 days of start date (or intended start date) of 2L systemic therapy.
You may not qualify if:
- Cohort 1 and 2
- \- None
- Cohort 3
- Patient's 1L MM treatment was for smoldering MM or MGUS, and not for symptomatic MM
- Currently active in any MM Registry, including but not limited to, the Connect® MM registry or another Celgene/BMS-Sponsored registry.
- Currently enrolled or intending to enroll within 90 days in any interventional clinical trial in which any treatment is an investigational product that cannot be identified
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- Celgenelead
Study Sites (253)
The Cancer Center of Huntsville
Huntsville, Alabama, 35801, United States
DCH Health System
Tuscaloosa, Alabama, 35401, United States
US Oncology - Arizona Oncology Associates - Rudasill
Tucson, Arizona, 85704, United States
St. Edward Mercy Medical Center
Fort Smith, Arkansas, 72903, United States
Genesis Cancer Center
Hot Springs, Arkansas, 71913, United States
Clopton Clinic Hematology/Oncology
Jonesboro, Arkansas, 72401, United States
Little Rock Hematology Oncology Associates, PA
Little Rock, Arkansas, 72205, United States
Pacific Cancer Medical Center, Inc
Anaheim, California, 92801, United States
Alta Bates Summit Comprehensive Cancer Center
Berkeley, California, 94704, United States
Southbay Oncology Hematology Partners
Campbell, California, 95008, United States
Compassionate Cancer Care Medical Group (Corona)
Corona, California, 92879, United States
Southwest Cancer Care
Escondido, California, 92025, United States
Compassionate Cancer Care Medical Group (Fountain Valley)
Fountain Valley, California, 92708, United States
Virginia K. Crosson Cancer Center
Fullerton, California, 92835, United States
TORI - Antelope Valley Cancer Center
Lancaster, California, 93534, United States
Monterey Bay Oncology
Monterey, California, 94930, United States
TORI - North Valley Hematology/Oncology
Northridge, California, 91328, United States
Hematology Oncology Associates
Oakland, California, 94609, United States
Comprehensive Cancer Center
Palm Springs, California, 92262, United States
Bay Area Cancer Research Group, LLC
Pleasant Hill, California, 94523, United States
New Hope Cancer & Research Institute
Pomona, California, 91767, United States
Campassionate Cancer Care Medical Group (Riverside)
Riverside, California, 92501, United States
Capitol Hematology Oncology Medical Group - Sutter Roseville
Roseville, California, 95661, United States
TORI - Central Coast Medical Oncology
Santa Maria, California, 93454, United States
Redwood Regional Medical Group, Inc.
Santa Rosa, California, 95403, United States
Stockton Hematology Oncology Medical Group, Inc.
Stockton, California, 95204, United States
Institute for Myeloma and Bone Cancer Research
West Hollywood, California, 90069, United States
US Oncology- Rocky Mountain Cancer Center-Aurora
Aurora, Colorado, 80012, United States
US Oncology - Rocky Mountain Cancer Center-Boulder
Boulder, Colorado, 80303, United States
US Oncology- Rocky Mountain Cancer Center at the Pavillion
Colorado Springs, Colorado, 80907, United States
US Oncology - Rocky Mountain Cancer Center-Colorado Springs
Colorado Springs, Colorado, 80909, United States
US Oncology - Rocky Mountain Cancer Center-Midtown
Denver, Colorado, 80218, United States
US Oncology - Rocky Mountain Cancer Center-Rose
Denver, Colorado, 80220, United States
TORI - St. Mary's Advanced Medical Pavilion
Grand Junction, Colorado, 80501, United States
US Oncology - Rocky Mountain Cancer Center-Lakewood
Lakewood, Colorado, 80228, United States
US Oncology - Rocky Mountain Cancer Center-Littleton
Littleton, Colorado, 80120-4413, United States
US Oncology - Rocky Mountain Cancer Center-Sky Ridge
Lone Tree, Colorado, 80124, United States
US Oncology - Rocky Mountain Cancer Center-Longmont
Longmont, Colorado, 80501, United States
US Oncology - Rocky Mountain Cancer Center-Parker
Parker, Colorado, 80138, United States
US Oncology - Rocky Mountain Cancer Center-Thornton
Thornton, Colorado, 80260, United States
Medical Specialists of Fairfield
Fairfield, Connecticut, 06824, United States
Medical Oncology and Blood Disorders, LLP
Manchester, Connecticut, 06040, United States
Hospital of Central Connecticut
New Britain, Connecticut, 06050, United States
Hematology Oncology, PC
Stamford, Connecticut, 06902-3628, United States
Delaware Clinical & Laboratory Physicians, PA
Newark, Delaware, 19713, United States
Hematology Oncology Associates
Boynton Beach, Florida, 33426, United States
University Cancer Institute
Boynton Beach, Florida, 33426, United States
Collaborative Research Group
Boynton Beach, Florida, 33435, United States
Flora Research Associates
Coral Springs, Florida, 33065, United States
Archbold Cancer Center
Deerfield Beach, Florida, 33441, United States
Flora Research Associates
Deerfield Beach, Florida, 33441, United States
Broward Oncology Associates, PA
Fort Lauderdale, Florida, 33308, United States
Florida Cancer Specialists & Research Institute
Gainesville, Florida, 32605, United States
Memorial Cancer Institute
Hollywood, Florida, 33021, United States
US Oncology - Florida Cancer Institute - New Hope-Hudson
Hudson, Florida, 34667, United States
Integrated Community Oncology Network, LLC
Jacksonville, Florida, 32256, United States
Watson Clinic
Lakeland, Florida, 33805, United States
Cancer & Blood Disease Center
Lecanto, Florida, 34461, United States
Pasco Hernando Oncology Associates (Kumar)
New Port Richey, Florida, 34652, United States
US Oncology - Florida Cancer Institute - New Hope-New Port Richey
New Port Richey, Florida, 34655, United States
Sacred Heart Medical Oncology Group
Pensacola, Florida, 32504, United States
Cancer Care Centers of Brevard
Rockledge, Florida, 32955, United States
Florida Hospital Waterman-Lake County Oncology & Hematology
The Villages, Florida, 32159, United States
Cleveland Clinic Florida
Weston, Florida, 33331, United States
Phoebe Putney Memorial Hospital
Albany, Georgia, 31701, United States
Peachtree Hematology-Oncology Consultants
Atlanta, Georgia, 30318, United States
Georgia Cancer Specialists
Atlanta, Georgia, 30331, United States
Summit Cancer Care
Savannah, Georgia, 31404, United States
Straub Clinic and Hospital
Honolulu, Hawaii, 96813, United States
Cancer Care & Hematology Specialists of Chicagoland, PC
Arlington Heights, Illinois, 60005, United States
John H. Stroger, Jr. Hospital of Cook County
Chicago, Illinois, 60612, United States
Rush University Medical Center
Chicago, Illinois, 60612, United States
Univeristy of Chicago Medical Center, Section of Hematology/Oncology
Chicago, Illinois, 60637, United States
Elmhurst Memorial Hospital
Elmhurst, Illinois, 60126, United States
Northshore University Health System
Evanston, Illinois, 60201, United States
Ingalls Cancer Research Center
Harvey, Illinois, 60426, United States
Joliet Oncology
Joliet, Illinois, 60435, United States
Medical Arts Associates, Ltd
Moline, Illinois, 61265, United States
Oncology Specialists, S.C.
Niles, Illinois, 60714, United States
Illinois Cancer Care
Peoria, Illinois, 61615, United States
Orchard Research
Skokie, Illinois, 60076, United States
Carle Cancer Center
Urbana, Illinois, 61801, United States
Indiana Blood and Marrow Transplant, LLC
Beech Grove, Indiana, 46107, United States
St. Francis Cancer Research
Beech Grove, Indiana, 46107, United States
Center for Cancer Care @ Goshen Health Systems
Goshen, Indiana, 46526, United States
Indiana University Cancer Center Clinical Research Office
Indianapolis, Indiana, 46202, United States
Cancer Research-Munster
Munster, Indiana, 46321, United States
Cancer Care Center Inc.
New Albany, Indiana, 47150, United States
Oncology Hematology Associates of SW IN
Newburgh, Indiana, 47630, United States
Northern Indiana Cancer Research Consortium
South Bend, Indiana, 46601, United States
McFarland Clinic
Ames, Iowa, 50010, United States
Hematology Oncology Associates of the Quad Cities
Bettendorf, Iowa, 52722, United States
Iowa Blood and Cancer Care of PCI
Cedar Rapids, Iowa, 52402, United States
Siouxland Hematology-Oncology Associates, LLP
Sioux City, Iowa, 51101, United States
Cedar Valley Medical Specialists
Waterloo, Iowa, 50701, United States
Covenant Clinic
Waterloo, Iowa, 50702, United States
Cancer Center of Kansas, PA
Wichita, Kansas, 67214, United States
Baptist Hospital East
Louisville, Kentucky, 40207, United States
Mary Bird Perkins Cancer Center
Baton Rouge, Louisiana, 70809, United States
Alliance Hematology Oncology, PA
Westminster, Maryland, 21157, United States
Capecod Hospital/Davenport Mugar Cancer Center
Hyannis, Massachusetts, 02601, United States
Fallon Clinic
Worcester, Massachusetts, 01608, United States
Michigan State University/Bay Regional Medical Center
Bay City, Michigan, 48706, United States
Genesys Hurley Cancer Institute
Flint, Michigan, 48503, United States
Michigan State University/McLaren Regional Medical Center
Flint, Michigan, 48532, United States
West Michigan Cancer Center
Kalamazoo, Michigan, 49007, United States
Michigan State University/Breslin Cancer Center
Lansing, Michigan, 48910, United States
Michigan State University/Lapeer Regional Medical Center
Lapeer, Michigan, 48446, United States
Michigan State University/Mount Clemens Regional Medical Center
Mount Clemens, Michigan, 48043, United States
Newland Medical Associates
Novi, Michigan, 48375, United States
Michigan State University/Memorial Cancer Center
Owosso, Michigan, 48867, United States
Newland Medical Associates
Southfield, Michigan, 48075, United States
Duluth Clinic Cancer Center
Duluth, Minnesota, 55805, United States
Park Nicollet Institute - Louisiana Ave.
Saint Louis Park, Minnesota, 55426, United States
Jackson Oncology Associates
Jackson, Mississippi, 39202, United States
St. Louis Cancer Care, LLP
Chesterfield, Missouri, 63017, United States
Capitol Comprehensive Cancer Care Clinic
Jefferson City, Missouri, 65109, United States
St. Joseph Oncology
Saint Joseph, Missouri, 64507, United States
St. John's Medical Research Institute
Springfield, Missouri, 65807, United States
University Hematology Oncology, Inc.
St Louis, Missouri, 63110, United States
Washington University in St. Louis, Division of Oncology, Section of Bone Marrow Transplantation & Leukemia
St Louis, Missouri, 63110, United States
Hematology Oncology Consultants, Inc
St Louis, Missouri, 63136, United States
St. John's Mercy Medical Center
St Louis, Missouri, 63141, United States
Montana Cancer Institute Foundation
Missoula, Montana, 59802, United States
Nebraska Hematology Oncology, PC
Lincoln, Nebraska, 68506, United States
Southeast Nebraska Hematology & Oncology Consultants, PC
Lincoln, Nebraska, 68510, United States
TORI - Comprehensive Cancer Centers of NV
Henderson, Nevada, 89052, United States
Southern Nevada Cancer Research Foundation
Las Vegas, Nevada, 89106, United States
VA Sierra Nevada Healthcare System
Reno, Nevada, 89502, United States
Essex Oncology of North Jersey, PA
Belleville, New Jersey, 07109, United States
The Center for Cancer and Hematologic Disease
Cherry Hill, New Jersey, 08003, United States
Drs. Forte, Schleider, Attas & Condemi, PA
Englewood, New Jersey, 07432, United States
Hematology-Oncology Associates of Northern NJ dba Carol G. Simon
Morristown, New Jersey, 07962, United States
Steeplechase Cancer Center
Somerville, New Jersey, 08876, United States
US Oncology - New York Oncology Hematology, PC-Albany
Albany, New York, 12206, United States
US Oncology - Albany Medical Cancer Center
Albany, New York, 12208, United States
US Oncology - Amsterdam Community Cancer Program
Amsterdam, New York, 12010, United States
Jonah Cancer Care Center & ECMC
Buffalo, New York, 14215, United States
US Oncology - Cavell Cancer Treatment Program
Hudson, New York, 12534, United States
Broome Oncology
Johnson City, New York, 13790, United States
Arena Oncology Associates, PC
Lake Success, New York, 11042, United States
US Oncology - New York Oncology Hematology, PC-Latham
Latham, New York, 12110-0610, United States
US Oncology - New York Oncology Hematology, PC-Rexford
Rexford, New York, 12148, United States
SUNY Upstate Medical University - Adult Program
Syracuse, New York, 14222, United States
Bronx River Medical Associates
The Bronx, New York, 10467, United States
Eastchester Center for Cancer Care
The Bronx, New York, 10469, United States
US Oncology - Troy Cancer Treatment Program
Troy, New York, 12180, United States
US Oncology - Cancer Centers of North Carolina - Cary
Cary, North Carolina, 27518, United States
DUMC Division of Cellular Therapy/ABMT
Durham, North Carolina, 27705, United States
Carolina Oncology Specialists, PA
Hickory, North Carolina, 28602, United States
Emerywood Hematology/Oncology
High Point, North Carolina, 27262, United States
US Oncology - Cancer Centers of North Carolina - Falls
Raleigh, North Carolina, 27614, United States
Legacy Pharma Research
Bismarck, North Dakota, 58501, United States
Med Center One
Bismarck, North Dakota, 58501, United States
Roger Maris Cancer Center
Fargo, North Dakota, 58122, United States
Summa Health System - Cancer Research Office
Akron, Ohio, 44304, United States
Gabrail Cancer Center Research
Canton, Ohio, 44718, United States
Cleveland VA Medical Center
Cleveland, Ohio, 44106, United States
Mid Ohio Oncology/Hematology, Inc
Columbus, Ohio, 43219, United States
Hematology Oncology Center, Inc
Elyria, Ohio, 44035, United States
Lawrence M. Stallings MD LTD dba Trilogy Cancer Care
Wooster, Ohio, 44691, United States
US Oncology - Willamette Valley Cancer Institute - Eugene
Eugene, Oregon, 97401-8122, United States
US Oncology - Willamette Valley Cancer Institute - Springfield
Springfield, Oregon, 97477, United States
Oncology Hematology of Lehigh Valley
Bethlehem, Pennsylvania, 18015, United States
Geisinger Medical Center
Danville, Pennsylvania, 17822, United States
Consultants in Medical Oncology and Hematology, PC
Drexel Hill, Pennsylvania, 19026, United States
Andrews and Patel Associates
Harrisburg, Pennsylvania, 17111, United States
US Oncology - Medical Oncology Associates (Nahar)
Kingston, Pennsylvania, 18704, United States
Lancaster Cancer Center
Lancaster, Pennsylvania, 17605, United States
The Western Pennsylvania Hospital
Pittsburgh, Pennsylvania, 15224, United States
UPCI Hillman Cancer Center
Pittsburgh, Pennsylvania, 15232, United States
Berks Hematology Oncology Associates
Reading, Pennsylvania, 19612, United States
Hematology & Oncology Associates of Rhode Island
Cranston, Rhode Island, 02920, United States
Charleston Hematology Oncology Associates, PA
Charleston, South Carolina, 29403, United States
US Oncology - Cancer Centers of the Carolinas - Easley
Easley, South Carolina, 29640, United States
US Oncology - Cancer Centers of the Carolinas - Butternut
Greenville, South Carolina, 29605, United States
US Oncology - Cancer Centers of the Carolinas - West Faris
Greenville, South Carolina, 29605, United States
US Oncology - Cancer Centers of the Carolinas - Eastside
Greenville, South Carolina, 29615, United States
SC Cancer Specialists, PA
Hilton Head Island, South Carolina, 29926, United States
US Oncology - Cancer Center of the Carolinas - Seneca
Seneca, South Carolina, 29672, United States
US Oncology - Cancer Centers of the Carolinas - Spartanburg
Spartanburg, South Carolina, 29307, United States
Sanford Clinic
Sioux Falls, South Dakota, 57104, United States
Avera Cancer Institute
Sioux Falls, South Dakota, 57105, United States
Family Cancer Center, PLLC
Collierville, Tennessee, 38017, United States
SCRI
Nashville, Tennessee, 37203, United States
US Oncology - Texas Cancer Center - Abilene (South)
Abilene, Texas, 79606, United States
US Oncology - Texas Oncology, PA - Amarillo
Amarillo, Texas, 79106, United States
US Oncology - Texas Oncology - Arlington South
Arlington, Texas, 76014, United States
US Oncology - Texas Oncology - Midtown
Austin, Texas, 78705, United States
US Oncology - Texas Oncology Cancer Center
Austin, Texas, 78731, United States
US Oncology - South Austin Cancer Center
Austin, Texas, 78745, United States
US Oncology - Texas Oncology North Austin
Austin, Texas, 78758, United States
Austin Cancer Centers
Austin, Texas, 78759, United States
US Oncology - Southwest Regional Cancer Center - North
Austin, Texas, 78759, United States
US Oncology - Texas Oncology, PA - Bedford
Bedford, Texas, 76022, United States
St. Joseph Regional Cancer Center
Bryan, Texas, 77802, United States
US Oncology - Texas Oncology Cedar Park
Cedar Park, Texas, 78613, United States
Scott & White Clinic
College Station, Texas, 77802, United States
South Texas Institute of Cancer
Corpus Christi, Texas, 78405, United States
Coastal Bend Cancer Center
Corpus Christi, Texas, 78463, United States
US Oncology - Texas Cancer Center at Medical City
Dallas, Texas, 75230, United States
US Oncology -Texas Oncology, PA - Dallas
Dallas, Texas, 75231, United States
US Oncology - El Paso Cancer Treatment Ctr
El Paso, Texas, 79902, United States
US Oncology - Texas Oncology, PA - Forth Worth
Fort Worth, Texas, 76104, United States
US Oncology - Southwest Forth Worth Cancer Center
Fort Worth, Texas, 76132, United States
US Oncology - Texas Oncology, PA - Garland
Garland, Texas, 75042, United States
US Oncology - Texas Oncology - Grapevine
Grapevine, Texas, 76051, United States
MD Anderson Cancer Center
Houston, Texas, 77030, United States
The Methodist Hospital Research Institute-AOCT
Houston, Texas, 77030, United States
Southlake Oncology dba Las Colinas Hematology Oncology
Irving, Texas, 75063, United States
US Oncology - San Antonio Tumor & Blood Clinic - Kerrville
Kerrville, Texas, 78028, United States
US Oncology - Texas Oncology - Kyle
Kyle, Texas, 78640, United States
US Oncology - Longview Cancer Center
Longview, Texas, 75601, United States
Joe Arrington Cancer Research and Treatment Center
Lubbock, Texas, 79410, United States
US Oncology - Allison Cancer Center
Midland, Texas, 79701, United States
US Oncology - Texas Oncology - Odessa
Odessa, Texas, 79761, United States
US Oncology - North Texas Regional Cancer Center
Plano, Texas, 75075, United States
US Oncology - Texas Oncology Plano West Cancer Center
Plano, Texas, 75093, United States
US Oncology - Texas Oncology Seton Williamson
Round Rock, Texas, 78665, United States
US Oncology - Texas Oncology - Round Rock Cancer Center
Round Rock, Texas, 78681, United States
US Oncology - Cancer Care Centers of South Texas
San Antonio, Texas, 78217, United States
US Oncology - HOAST - Medical Dr.
San Antonio, Texas, 78229, United States
US Oncology - San Antonio Tumor & Blood Clinic - M. Oak
San Antonio, Texas, 78258-3912, United States
US Oncology - Texas Oncology - San Marcos
San Marcos, Texas, 78666, United States
Scott & White Healthcare Department of Research
Temple, Texas, 76508, United States
ETMC dba Blood and Cancer Center - East Texas
Tyler, Texas, 75701, United States
ETMC dba Tyler Hematology Oncology
Tyler, Texas, 75701, United States
US Oncology - Texas Oncology Cancer Care and Research Center
Waco, Texas, 76712, United States
US Oncology - Texoma Cancer Center
Wichita Falls, Texas, 76310, United States
Central Utah Clinic
American Fork, Utah, 84003, United States
Northern Utah Associates
Ogden, Utah, 84403, United States
University of Utah - Huntsman Cancer Institute
Salt Lake City, Utah, 84112, United States
US Oncology - Arlington Fairfax Hematology Oncology
Arlington, Virginia, 22205, United States
US Oncology - Fairfax-Northern VA Hem-Onc PC
Fairfax, Virginia, 22031, United States
US Oncology - Fairfax Northern Virginia Hematology-Oncology, PC-Gainesville
Gainesville, Virginia, 20155, United States
US Oncology - Fairfax-Northern Virgina Hem-Onc, PC-Leesburg
Leesburg, Virginia, 20176, United States
US Oncology - Shenandoah Oncology - Winchester
Winchester, Virginia, 22601, United States
US Oncology - Fairfax-Northern Virginia Hem-Onc, PC-Woodbridge
Woodbridge, Virginia, 22191, United States
Peace Health Medical Group
Bellingham, Washington, 98226, United States
US Oncology - Puget Sound Cancer Center-Edmonds
Edmonds, Washington, 98133, United States
Providence Everett Medical Center
Everett, Washington, 98201, United States
Columbia Basin Hematology and Oncology
Kennewick, Washington, 99337, United States
US Oncology - Puget Sound Cancer Center-Seattle
Seattle, Washington, 98133, United States
US Oncology - Cancer Care Northwest - Sherman
Spokane, Washington, 99202, United States
Medical Oncology Associates PS
Spokane, Washington, 99208, United States
Providence St. Mary Regional Cancer Center
Walla Walla, Washington, 99362, United States
US Oncology - Yakima Valley Memorial Hospital/North Star Lodge
Yakima, Washington, 98902, United States
West Virginia University - Clinical Trials Research Unit
Morgantown, West Virginia, 26506, United States
Fox Valley Hematology & Oncology
Appleton, Wisconsin, 54915, United States
St. Vincent Hospital/Green Bay Oncology
Green Bay, Wisconsin, 54301, United States
CMS Water Tower Medical Commons Medical Oncology #100
Milwaukee, Wisconsin, 53211, United States
Waukesha Memorial Hospital
Waukesha, Wisconsin, 53188, United States
Auxilio Cancer Center
San Juan, 00918, Puerto Rico
Related Publications (16)
Rifkin RM, Jagannath S, Durie BGM, Narang M, Terebelo HR, Gasparetto CJ, Toomey K, Hardin JW, Wagner L, Parikh K, Abouzaid S, Srinivasan S, Kitali A, Zafar F, Abonour R. Treatment Outcomes and Health Care Resource Utilization in Patients With Newly Diagnosed Multiple Myeloma Receiving Lenalidomide-only Maintenance, Any Maintenance, or No Maintenance: Results from the Connect MM Registry. Clin Ther. 2018 Jul;40(7):1193-1202.e1. doi: 10.1016/j.clinthera.2018.05.017. Epub 2018 Jul 23.
PMID: 30007443BACKGROUNDShah JJ, Abonour R, Gasparetto C, Hardin JW, Toomey K, Narang M, Srinivasan S, Kitali A, Zafar F, Flick ED, Rifkin RM. Analysis of Common Eligibility Criteria of Randomized Controlled Trials in Newly Diagnosed Multiple Myeloma Patients and Extrapolating Outcomes. Clin Lymphoma Myeloma Leuk. 2017 Sep;17(9):575-583.e2. doi: 10.1016/j.clml.2017.06.013. Epub 2017 Jun 17.
PMID: 28886839BACKGROUNDTerebelo HR, Abonour R, Gasparetto CJ, Toomey K, Durie BGM, Hardin JW, Jagannath S, Wagner L, Narang M, Flick ED, Srinivasan S, Yue L, Kitali A, Agarwal A, Rifkin RM; CONNECT MM Registry Investigators. Development of a prognostic model for overall survival in multiple myeloma using the Connect(R) MM Patient Registry. Br J Haematol. 2019 Dec;187(5):602-614. doi: 10.1111/bjh.16139. Epub 2019 Aug 5.
PMID: 31382320BACKGROUNDRifkin RM, Abonour R, Terebelo H, Shah JJ, Gasparetto C, Hardin J, Srinivasan S, Ricafort R, Nagarwala Y, Durie BG. Connect MM Registry: The Importance of Establishing Baseline Disease Characteristics. Clin Lymphoma Myeloma Leuk. 2015 Jun;15(6):368-76. doi: 10.1016/j.clml.2014.12.002. Epub 2014 Dec 11.
PMID: 25617035RESULTRifkin RM, Abonour R, Shah JJ, Mehta J, Narang M, Terebelo H, Gasparetto C, Toomey K, Hardin JW, Lu JJ, Kenvin L, Srinivasan S, Knight R, Nagarwala Y, Durie BG. Connect MM(R) - the Multiple Myeloma Disease Registry: incidence of second primary malignancies in patients treated with lenalidomide. Leuk Lymphoma. 2016 Sep;57(9):2228-31. doi: 10.3109/10428194.2015.1132419. Epub 2016 Jan 13. No abstract available.
PMID: 26766599RESULTTerebelo H, Srinivasan S, Narang M, Abonour R, Gasparetto C, Toomey K, Hardin JW, Larkins G, Kitali A, Rifkin RM, Shah JJ. Recognition of early mortality in multiple myeloma by a prediction matrix. Am J Hematol. 2017 Sep;92(9):915-923. doi: 10.1002/ajh.24796. Epub 2017 Jul 19.
PMID: 28543165RESULTJagannath S, Abonour R, Durie BGM, Gasparetto C, Hardin JW, Narang M, Terebelo HR, Toomey K, Wagner L, Srinivasan S, Kitali A, Yue L, Flick ED, Agarwal A, Rifkin RM. Heterogeneity of Second-Line Treatment for Patients With Multiple Myeloma in the Connect MM Registry (2010-2016). Clin Lymphoma Myeloma Leuk. 2018 Jul;18(7):480-485.e3. doi: 10.1016/j.clml.2018.04.007. Epub 2018 May 4.
PMID: 29844008RESULTJagannath S, Abonour R, Durie BGM, Narang M, Terebelo HR, Gasparetto CJ, Toomey K, Hardin JW, Wagner L, Agarwal A, Srinivasan S, Kitali A, Flick ED, Sturniolo M, Rifkin RM. Impact of post-ASCT maintenance therapy on outcomes in patients with newly diagnosed multiple myeloma in Connect MM. Blood Adv. 2018 Jul 10;2(13):1608-1615. doi: 10.1182/bloodadvances.2018017186.
PMID: 29986853RESULTAbonour R, Wagner L, Durie BGM, Jagannath S, Narang M, Terebelo HR, Gasparetto CJ, Toomey K, Hardin JW, Kitali A, Gibson CJ, Srinivasan S, Swern AS, Rifkin RM. Impact of post-transplantation maintenance therapy on health-related quality of life in patients with multiple myeloma: data from the Connect(R) MM Registry. Ann Hematol. 2018 Dec;97(12):2425-2436. doi: 10.1007/s00277-018-3446-y. Epub 2018 Jul 29.
PMID: 30056582RESULTJagannath S, Rifkin RM, Gasparetto CJ, Toomey K, Durie BGM, Hardin JW, Terebelo HR, Wagner L, Narang M, Ailawadhi S, Omel JL, Srinivasan S, He M, Ung B, Kitali A, Flick ED, Agarwal A, Abonour R; CONNECT MM Registry Investigators. Treatment Journeys of Patients With Newly Diagnosed Multiple Myeloma (NDMM): Results From The Connect MM Registry. Clin Lymphoma Myeloma Leuk. 2020 May;20(5):272-276. doi: 10.1016/j.clml.2019.10.002. Epub 2019 Oct 14. No abstract available.
PMID: 32144027RESULTAilawadhi S, Jagannath S, Lee HC, Narang M, Rifkin RM, Terebelo HR, Durie BGM, Toomey K, Hardin JW, Gasparetto CJ, Wagner L, Omel JL, He M, Yue L, Flick ED, Agarwal A, Abonour R; Connect MM Registry Investigators. Association between race and treatment patterns and survival outcomes in multiple myeloma: A Connect MM Registry analysis. Cancer. 2020 Oct 1;126(19):4332-4340. doi: 10.1002/cncr.33089. Epub 2020 Jul 24.
PMID: 32706404RESULTAbonour R, Rifkin RM, Gasparetto C, Toomey K, Durie BGM, Hardin JW, Terebelo HR, Jagannath S, Narang M, Ailawadhi S, Omel JL, Lee HC, Srinivasan S, Kitali A, Agarwal A, Wagner L; CONNECT MM Registry Investigators. Effect of initial treatment on health-related quality of life in patients with newly diagnosed multiple myeloma without immediate stem cell transplant intent: results from the Connect(R) MM Registry. Br J Haematol. 2021 Apr;193(1):93-100. doi: 10.1111/bjh.17131. Epub 2020 Oct 29.
PMID: 33118614RESULTAilawadhi S, Lee HC, Omel J, Toomey K, Hardin JW, Gasparetto CJ, Jagannath S, Rifkin RM, Durie BGM, Narang M, Terebelo HR, Joshi P, Jou YM, Mouro J, Yu E, Abonour R. Impact of lenalidomide-bortezomib-dexamethasone induction on patients with newly diagnosed multiple myeloma and renal impairment: Results from the Connect(R) MM Registry. Blood Cancer J. 2024 Nov 11;14(1):198. doi: 10.1038/s41408-024-01177-6.
PMID: 39528478DERIVEDLee HC, Ramasamy K, Weisel K, Abonour R, Hardin JW, Rifkin RM, Ailawadhi S, Terebelo HR, Durie BGM, Tang D, Joshi P, Liu L, Jou YM, Che M, Hernandez G, Narang M, Toomey K, Gasparetto C, Wagner LI, Jagannath S. Treatment Patterns, Survival, Quality of Life, and Healthcare Resource Use Among Patients With Triple-Class Refractory Multiple Myeloma in US Clinical Practice: Findings From the Connect MM Disease Registry. Clin Lymphoma Myeloma Leuk. 2023 Feb;23(2):112-122. doi: 10.1016/j.clml.2022.11.008. Epub 2022 Nov 23.
PMID: 36567211DERIVEDEngelhardt M, Ihorst G, Singh M, Rieth A, Saba G, Pellan M, Lebioda A. Real-World Evaluation of Health-Related Quality of Life in Patients With Multiple Myeloma From Germany. Clin Lymphoma Myeloma Leuk. 2021 Feb;21(2):e160-e175. doi: 10.1016/j.clml.2020.10.002. Epub 2020 Oct 24.
PMID: 33218965DERIVEDAilawadhi S, Jagannath S, Narang M, Rifkin RM, Terebelo HR, Toomey K, Durie BGM, Hardin JW, Gasparetto CJ, Wagner L, Omel JL, Kumar V, Yue L, Kitali A, Agarwal A, Abonour R; Connect MM Registry Investigators. Connect MM Registry as a national reference for United States multiple myeloma patients. Cancer Med. 2020 Jan;9(1):35-42. doi: 10.1002/cam4.2656. Epub 2019 Nov 7.
PMID: 31701679DERIVED
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- STUDY DIRECTOR
Bristol-Myers Squibb
Bristol-Myers Squibb
Study Design
- Study Type
- observational
- Observational Model
- COHORT
- Time Perspective
- PROSPECTIVE
- Target Duration
- 16 Years
- Sponsor Type
- INDUSTRY
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
March 4, 2010
First Posted
March 5, 2010
Study Start
September 1, 2009
Primary Completion
December 31, 2024
Study Completion
December 31, 2024
Last Updated
April 13, 2026
Record last verified: 2026-04