Peer to Peer Mentoring: Facilitating Individuals With Early Inflammatory Arthritis to Manage Their Arthritis - Peer Mentor Training

NCT01054963 | Completed

• 1 other identifier: 419-2009
• Study Type: interventional
• Target: 10
• Locations: 1 country
• Sites: 1

Brief Summary

Inflammatory arthritis (IA) is a major cause of long-term disability. Peer support may be a solution to the common problem of delayed treatment. Early peer support may result in improved use of therapy, higher self-efficacy, reduced anxiety, and improved coping in the first two years post-diagnosis. This study involves the development and testing of a peer mentor training initiative as one part of an intervention study for people with early IA (EIA). Peer mentors will be trained and assessed to provide one-on-one support (information, emotional, feedback) to individuals who have recently been diagnosed with IA. This is one part of an intervention study. The other part is called Peer to Peer Mentoring: Facilitating Individuals with Early Inflammatory Arthritis to Manage their Arthritis - Peer Mentoring Program.

Conditions

Early Inflammatory Arthritis; Chronic Disease

Keywords

early inflammatory arthritis; chronic disease; peer support; peer mentor; peer counselling

Outcome Measures

Primary Outcomes (1)

• ability to provide informational, appraisal and emotional support

  0, 3, 6 months

Secondary Outcomes (1)

• confidence to provide informational, appraisal and emotional support

  0, 3, 6 months

Interventions

peer mentor training BEHAVIORAL

A quasi-experimental, before and after study design is proposed to obtain data for planning and implementing a larger-scale study. A training workshop for individuals with IA to become peer mentors will increase peer mentors' confidence and skills to provide one-on-one support to individuals with EIA. Using a combination of lectures, experiential learning and question/answer sessions, peer mentors will learn and practice informational, emotional, appraisal support techniques and skills (communication skills, problem-solving strategies, use of decision tools). Training will be conducted face-to-face, in small-group format by research team and others (2 sessions approx. 5 hours each), in a private meeting room at SHSC. Peer mentors will then provide support to individuals newly diagnosed with IA for 12 weeks (once per week) by telephone and /or face-to-face. Peer mentors will receive ongoing support from the research team (telephone, meetings).

Eligibility Criteria

• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Child (0-17), Adult (18-64), Older Adult (65+)

You may qualify if:

• To become a peer mentor are:
• Diagnosis of IA from a physician
• Disease duration more than 2 years and managing well
• Currently using medications (DMARDS/biologics) to treat arthritis
• Have completed an Arthritis Self-Management Program (ASMP) provided by The Arthritis Society and/or similar program and/or have sufficient knowledge and experience with teaching or providing mentoring support to an individual living with a chronic disease
• Able to participate in two approximately 5-hour training workshops
• Able to take part in ongoing assessment/evaluation activities (self-report questionnaire, interviews, observation, study activity log)
• Able to commit to the duration of the research study
• Willing to provide ongoing one-on-one support to an individual newly diagnosed with IA
• years of age or older
• Able to speak, understand, read and write English

Sponsors & Collaborators

• Sunnybrook Health Sciences Centre: lead
• Canadian Arthritis Network: collaborator

Study Sites (1)

Sunnybrook Health Sciences Centre

Toronto, Ontario, Canada

Location

Related Publications (1)

• Sandhu S, Veinot P, Embuldeniya G, Brooks S, Sale J, Huang S, Zhao A, Richards D, Bell MJ. Peer-to-peer mentoring for individuals with early inflammatory arthritis: feasibility pilot. BMJ Open. 2013 Mar 1;3(3):e002267. doi: 10.1136/bmjopen-2012-002267.

  PMID: 23457326 DERIVED

MeSH Terms

Conditions

Arthritis; Chronic Disease

Condition Hierarchy (Ancestors)

Joint Diseases; Musculoskeletal Diseases; Disease Attributes; Pathologic Processes; Pathological Conditions, Signs and Symptoms

Study Officials

• Mary J Bell, MD, FRCPC

  Division of Rheumatology, Sunnybrook Health Science Centre

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: NA
• Purpose: SUPPORTIVE CARE
• Intervention Model: SINGLE GROUP
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Rheumatologist

Study Record Dates

• First Submitted: January 21, 2010
• First Posted: January 22, 2010
• Study Start: January 1, 2010
• Primary Completion: September 1, 2011
• Study Completion: December 1, 2011
• Last Updated: December 29, 2011

Record last verified: 2011-12

Locations

CA (1)