Taboo Perception of Incontinence, Depression and Cancer

NCT00939432 | Completed

• 1 other identifier: EK 453/2008
• Study Type: observational
• Target: 150
• Locations: 1 country
• Sites: 1

Brief Summary

Objective/study hypothesis To evaluate how much of a taboo UI is and how it compares to other medical conditions that may also pose a taboo issue like depression and cancer. Background Urinary incontinence (UI) is a highly prevalent condition with more than 200 million people worldwide being affected. While physical health does not necessarily have to be impaired much, restriction of social activities leads to isolation, a significant reduction in quality of life and will often bring about subsequent morbidity. Despite its prevalence, many patients suffering from UI go undiagnosed and untreated. Patients often hesitate to report the problem, and health care professionals often do not ask about it. In a study Minassian (2003) estimated that just one in four patients actively seeks medical attention. The reason for this may lie in the shame, embarrassment, and stigma associated with this condition, which in turn pose significant barriers to seeking professional treatment. Although mentioned by many narrative reviews and included in some epidemiological papers on UI, surprisingly we found no data addressing the taboo of UI exclusively. The aim of our study therefore was Methods/Design A 13-question self-administered questionnaire was developed and face validity tested by 2 of the authors (KH, EH). The anonymous questionnaire contained simple questions on gender and age and then asked yes/no questions on whether test persons knew people with UI, or suspected other people to be incontinent, if they would address this issue with the suspected person, and if they thought that UI was a taboo issue in the society. On a scale from 0 - 10 they were then asked to grade the amount of embarrassment and anxiety if they themselves were incontinent, compared to depression or cancer. A few questions on knowledge of the condition of UI and to whom test persons would turn to in case of UI concluded the short questionnaire, which took about 5 minutes to fill in. A convenience sample of 150 test persons from waiting areas of a teaching hospital and in private practices of general practitioners in Austria agreed to take part in the study, with an additional 10 persons (6.2%) declining after being informed about the subject. Data were analysed with the SPSS 10.0.5 software package using the U-test, Chi-square-test, Yates-correction, Fisher's exact test and Kolmogorov-Smirnov normality test where appropriate.

Conditions

Urinary Incontinence Awareness; Gender Differences

Keywords

incontinence; urinary; taboo; shame; embarrassment; treatment; depression; cancer

Outcome Measures

Primary Outcomes (1)

• Perception of given medical condition as a taboo issue

  single point in time

Secondary Outcomes (2)

• Knowledge of treatment options of incontinence

  single point in time

• Knowledge of friends or relatives with incontinence

  single point in time

Study Arms (3)

Gender

male/female

Age

18-100 years

Educational level

primary school, secondary school, university

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

A convenience sample of 150 test persons from waiting areas of a teaching hospital and in private practices of general practitioners in Austria agreed to take part in the study, with an additional 10 persons (6.2%) declining after being informed about the subject.

You may qualify if:

• \- Subjects older than 18 years willing to take part in study mentally capable to understand and fill in anonymous questionnaire

You may not qualify if:

• \- incomplete questionnaire

Sponsors & Collaborators

• Medical University of Vienna: lead

Study Sites (1)

Medical University of Vienna Austria

Vienna, Vienna, 1090, Austria

Location

MeSH Terms

Conditions

Depression; Neoplasms

Condition Hierarchy (Ancestors)

Behavioral Symptoms; Behavior

Study Design

• Study Type: observational
• Observational Model: ECOLOGIC OR COMMUNITY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER

Study Record Dates

• First Submitted: July 14, 2009
• First Posted: July 15, 2009
• Study Start: November 1, 2005
• Primary Completion: April 1, 2006
• Study Completion: April 1, 2007
• Last Updated: July 15, 2009

Record last verified: 2009-07

Locations

AU (1)