Community Cancer Centers Pilot Patient Survey

NCT00786656 | Completed

• 2 other identifiers: 99990902609-C-N026
• Study Type: observational
• Target: 3,955
• Locations: 1 country
• Sites: 1

Brief Summary

Background:

• Studies suggest that cancer patients diagnosed and treated in a facility with multi-specialty care and clinical research may live longer and have a better quality of life than patients treated elsewhere.
• The NCI Community Cancer Centers Pilot Program (NCCCP) is a 3-year program to test the concept of a national network of community cancer centers to expand cancer research and deliver the most advanced cancer care to Americans in their own communities.
• The pilot program includes a survey of cancer patients receiving care at the pilot sites. Objectives:
• To gain an understanding of the experiences of adult patients who receive services at the NCCCP pilot sites and assess if and how their experience changes over the study period. Data about the following are collected:
• Patients information needs and awareness of the NCCCP program
• Clinical trials experience
• Access to health care
• Perspectives on patient-provider communication
• Experiences with patient navigation, self-management, medical decision-making and survivorship
• Satisfaction with care and quality of life Eligibility:
• Patients 21 years or older at the time of diagnosis
• Treatment at the cancer center for at least 3 months since July 1, 2007 Design:
• Participants complete a 25-minute questionnaire covering the care they received at their cancer center, their experience with making medical appointments and how long they waited to see the doctor. The survey includes information on the following:
• Services at the cancer center
• Getting needed care
• Assistance for patients and their families
• Communication with the cancer care team
• Clinical trials
• Care after finishing treatment
• Evaluation of care
• Health and medical history
• Background information (demographics)

Conditions

Malignant Neoplasms; Cancer

Keywords

Navigation; Coordination; Cancer Care; Patient Experience; Cancer; Patient Survey

Outcome Measures

Primary Outcomes (1)

• Evaluation of NCCCP Pilot Program

Secondary Outcomes (1)

• Gain an understanding of the patients' perspective on the NCCCP Pilot Program and to assess how well health care and informational needs are being met.

Eligibility Criteria

• Age: 21 Years - 99 Years
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)

You may qualify if:

• Living patients who are listed on an NCCCP site s cancer registry
• Cancer patients age 21 years and older at the time of sampling
• Cancer patients who had 1 or more cancer treatment outpatient visits at their cancer center since July 1, 2007 for the first survey round and since July 1, 2009 for the second round of the survey.

You may not qualify if:

• Persons under the age of 21 at the time of sampling.
• Persons not in the cancer registry
• Cancer patients without at least 1 or more cancer treatment outpatient visits since July 1, 2007 for the first survey round and since July 1, 2009 for the second round of the survey.
• Cancer patients who are deceased at the time of sampling

Sponsors & Collaborators

• National Cancer Institute (NCI): lead

Study Sites (1)

Research Triangle Institute International

Research Triangle Park, North Carolina, 27709, United States

Location

MeSH Terms

Conditions

Neoplasms

Study Officials

• Irene P Prabhu Das, Ph.D.

  National Cancer Institute (NCI)

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: OTHER
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: NIH
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: November 5, 2008
• First Posted: November 6, 2008
• Study Start: November 3, 2008
• Study Completion: May 11, 2015
• Last Updated: December 17, 2019

Record last verified: 2015-05-11

Locations

US (1)