Tailored Internet Information Supply for Patients

NCT00746408 | Unknown DMC

• 1 other identifier: GW Diss 3000490
• Study Type: observational
• Target: 500
• Locations: 1 country
• Sites: 1

Brief Summary

Medical expert systems in combination with portal searching meta-search engines are exploited to provide reliable patient-tailored information. A prototype of a web-based information system has been developed and is to be evaluated. Its aim is to answer the decisive question whether expert system guided internet meta-search provides a better information supply for patients seeking health information online then this is possible by using ordinary search engines or health portals. The research does neither investigate the influence of ethical nor legal aspects of internet health information supply.

Conditions

Headache

Keywords

Internet; Information supply; Tailoring; Patient empowerment; Headaches; Consumer Health Information; Information Services; Information Storage and Retrieval; Information Systems

Outcome Measures

Primary Outcomes (1)

• Conformity of self-diagnosis and medical diagnosis

  After medical diagnoses has been received

Study Arms (4)

Main 1

Insurants of the health insurance company BARMER using the prototype to receive expert system guided tailored internet information about the type of headache they suffer from.

Other: Expert system guided tailored information

Main 2

Insurants of the health insurance company BARMER using search engines and portals to gather internet information about the type of headache they suffer from.

Online 1

Internet users using the prototype to receive expert system guided tailored internet information about the type of headache they suffer from.

Other: Expert system guided tailored information

Online 2

Internet users using search engines and portals to gather internet information about the type of headache they suffer from.

Interventions

Expert system guided tailored information OTHER

The prototype is realised by a web-based information system. The HTML web-interface guides the user through the search process by querying the information demand. This is done by an integrated expert system. The expert system uses a rule based inference to determine an internal diagnosis. Based on this internal diagnosis the system searches quality labeled websites and presents relevant information to the user.

Main 1; Online 1

Eligibility Criteria

• Age: 18 Years - 75 Years
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Probability Sample

Study Population

All German speaking adults in the German-speaking part of Europe who suffer at least occasionally from headaches and have not been examined (concerning these headaches) by a physician yet. * The population of the main study is narrowed down to a heterogeneous group of insurants of a health insurance company. * The population of the online study is self-selecting.

You may qualify if:

• Age between 18 and 75
• Suffers at least occasionally from headaches
• Has internet access
• Has not obtained a medical diagnosis (concerning this headache) by a physician, yet

You may not qualify if:

• Age under 18
• Age over 75
• Does never suffer from headaches
• Has no internet access
• Has already gotten a medical diagnosis for her/his headaches

Sponsors & Collaborators

• Health & Life Sciences University, Tryol: lead
• Bremen University of Applied Sciences: collaborator

Study Sites (1)

Health & Life Sciences University (UMIT)

Hall in Tyrol, Tyrol, 6060, Austria

RECRUITING

Related Publications (20)

• Eysenbach G, Powell J, Kuss O, Sa ER. Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. JAMA. 2002 May 22-29;287(20):2691-700. doi: 10.1001/jama.287.20.2691.

  PMID: 12020305 BACKGROUND

• Andrew ME, Penzien DB, Rains JC, Knowlton GE, McAnulty RD. Development of a computer application for headache diagnosis: the Headache Diagnostic System. Int J Biomed Comput. 1992 Jul;31(1):17-24. doi: 10.1016/0020-7101(92)90050-3.

  PMID: 1644498 BACKGROUND

• Baur C, Deering MJ. Proposed frameworks to improve the quality of health web sites: review. MedGenMed. 2000 Sep 26;2(3):E35. No abstract available.

  PMID: 11104481 BACKGROUND

• Bessell TL, McDonald S, Silagy CA, Anderson JN, Hiller JE, Sansom LN. Do Internet interventions for consumers cause more harm than good? A systematic review. Health Expect. 2002 Mar;5(1):28-37. doi: 10.1046/j.1369-6513.2002.00156.x.

  PMID: 11906539 BACKGROUND

• Bindels R, Winkens RA, van Wersch JW, Pop P, Hasman A. Comparing assessment of appropriateness of diagnostic tests between a human expert and an automated reminder system. Stud Health Technol Inform. 2000;77:239-43.

  PMID: 11187550 BACKGROUND

• Birru MS, Monaco VM, Charles L, Drew H, Njie V, Bierria T, Detlefsen E, Steinman RA. Internet usage by low-literacy adults seeking health information: an observational analysis. J Med Internet Res. 2004 Sep 3;6(3):e25. doi: 10.2196/jmir.6.3.e25.

  PMID: 15471751 BACKGROUND

• Buchanan BG, Moore JD, Forsythe DE, Carenini G, Ohlsson S, Banks G. An intelligent interactive system for delivering individualized information to patients. Artif Intell Med. 1995 Apr;7(2):117-54. doi: 10.1016/0933-3657(94)00029-r.

  PMID: 7647838 BACKGROUND

• Bull FC, Kreuter MW, Scharff DP. Effects of tailored, personalized and general health messages on physical activity. Patient Educ Couns. 1999 Feb;36(2):181-92. doi: 10.1016/s0738-3991(98)00134-7.

  PMID: 10223022 BACKGROUND

• Eysenbach G, Kohler C, Yihune G, Lampe K, Cross P, Brickley D. A metadata vocabulary for self- and third-party labeling of health web-sites: Health Information Disclosure, Description and Evaluation Language (HIDDEL). Proc AMIA Symp. 2001:169-73.

  PMID: 11825174 BACKGROUND

• Gagliardi A, Jadad AR. Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination. BMJ. 2002 Mar 9;324(7337):569-73. doi: 10.1136/bmj.324.7337.569.

  PMID: 11884320 BACKGROUND

• Jadad AR, Gagliardi A. Rating health information on the Internet: navigating to knowledge or to Babel? JAMA. 1998 Feb 25;279(8):611-4. doi: 10.1001/jama.279.8.611.

  PMID: 9486757 BACKGROUND

• Kopec D, Shagas G, Selman J, Reinharth D, Tamang S. Development of an expert system for differentiating tension type headaches from migraines. Stud Health Technol Inform. 2004;103:81-92.

  PMID: 15747909 BACKGROUND

• Norman CD, Skinner HA. eHealth Literacy: Essential Skills for Consumer Health in a Networked World. J Med Internet Res. 2006 Jun 16;8(2):e9. doi: 10.2196/jmir.8.2.e9.

  PMID: 16867972 BACKGROUND

• Olesen J. The International Classification of Headache Disorders. Headache. 2008 May;48(5):691-3. doi: 10.1111/j.1526-4610.2008.01121.x.

  PMID: 18471112 BACKGROUND

• Olesen J. International Classification of Headache Disorders, Second Edition (ICHD-2): current status and future revisions. Cephalalgia. 2006 Dec;26(12):1409-10. doi: 10.1111/j.1468-2982.2006.01214.x. No abstract available.

  PMID: 17116090 BACKGROUND

• De Simone R, Coppola G, Ranieri A, Bussone G, Cortelli P, D'Amico D, d'Onofrio F, Manzoni GC, Marano E, Perini F, Torelli P, Beneduce L, Ciccarelli G, Mea E, Penza P, Ripa P, Sancisi E, Bonavita V. Validation of AIDA Cefalee, a computer-assisted diagnosis database for the management of headache patients. Neurol Sci. 2007 May;28 Suppl 2:S213-6. doi: 10.1007/s10072-007-0779-z.

  PMID: 17508173 BACKGROUND

• Walji M, Sagaram S, Sagaram D, Meric-Bernstam F, Johnson C, Mirza NQ, Bernstam EV. Efficacy of quality criteria to identify potentially harmful information: a cross-sectional survey of complementary and alternative medicine web sites. J Med Internet Res. 2004 Jun 29;6(2):e21. doi: 10.2196/jmir.6.2.e21.

  PMID: 15249270 BACKGROUND

• Wilkins ST, Navarro FH. Has the Web really empowered health care consumers? The truth is customers may not have changed as much as we think. Mark Health Serv. 2001 Fall;21(3):5-9.

  PMID: 11525141 BACKGROUND

• Winker MA, Flanagin A, Chi-Lum B, White J, Andrews K, Kennett RL, DeAngelis CD, Musacchio RA. Guidelines for medical and health information sites on the internet: principles governing AMA web sites. American Medical Association. JAMA. 2000 Mar 22-29;283(12):1600-6. doi: 10.1001/jama.283.12.1600.

  PMID: 10735398 BACKGROUND

• Woolf SH, Krist AH, Johnson RE, Wilson DB, Rothemich SF, Norman GJ, Devers KJ. A practice-sponsored Web site to help patients pursue healthy behaviors: an ACORN study. Ann Fam Med. 2006 Mar-Apr;4(2):148-52. doi: 10.1370/afm.522.

  PMID: 16569718 BACKGROUND

Related Links

• The study website
• University of Applied Sciences Bremen, Germany

MeSH Terms

Conditions

Headache; Patient Participation

Condition Hierarchy (Ancestors)

Pain; Neurologic Manifestations; Signs and Symptoms; Pathological Conditions, Signs and Symptoms; Patient Acceptance of Health Care; Treatment Adherence and Compliance; Health Behavior; Behavior

Study Officials

• Wilfried Honekamp, MSc & Dipl.-Inform.

  Health & Life Sciences University Tyrol, Austria

  PRINCIPAL INVESTIGATOR

• Herwig Ostermann, Dr.

  Health & Life Sciences University Tyrol, Austria

  STUDY DIRECTOR

• Roland Staudinger, Prof.

  Health & Life Sciences University Tyrol, Austria

  STUDY CHAIR

Central Study Contacts

Wilfried Honekamp, MSc & Dipl.-Inform.

CONTACT

+49 (0) 178 1604553; wilfried.honekamp@umit.at

Study Design

• Study Type: observational
• Observational Model: CASE CONTROL
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER

Study Record Dates

• First Submitted: September 2, 2008
• First Posted: September 4, 2008
• Study Start: January 1, 2009
• Primary Completion: September 1, 2009
• Study Completion: September 1, 2009
• Last Updated: June 16, 2009

Record last verified: 2009-06

Locations

AU (1)