A Study of Survivorship Service Capacities Among Health Care Agencies in New York City

NCT00578162 | Completed

• 1 other identifier: 05-048
• Study Type: observational
• Target: N/A
• Locations: 1 country
• Sites: 1

Brief Summary

To describe the range of services available to cancer survivors in the NYC area. To determine organizations' need for assistance to enhance services for survivors.

Conditions

All Cancers

Keywords

Cancer; Survivors

Outcome Measures

Primary Outcomes (1)

• To determine agencies' need for assistance to enhance services for survivors.

  2 years

Study Arms (1)

1

Data about participating agencies will be collected by electronic survey. Agencies will be identified using the NYSDOH's existing mailing list of care facilities located in the five boroughs of New York City, referral databases and resource guides created by the American Cancer Society (ACS), the New York Hospital Directory.

Behavioral: we will screen potential agencies using our CALL SCRIPT and our AGENCY SCREENER

Interventions

we will screen potential agencies using our CALL SCRIPT and our AGENCY SCREENER BEHAVIORAL

A cancer care facility or 'agency' is the study's unit of analysis. Data about participating agencies will be collected by electronic survey. Agencies will be identified using the NYSDOH's existing mailing list of care facilities located in the five boroughs of New York City, referral databases and resource guides created by the American Cancer Society (ACS), the New York Hospital Directory

1

Eligibility Criteria

• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Child (0-17), Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

We assume that the collective network of cancer care and support services can be represented with data from no more than 300 New York City agencies, across all five boroughs. Theseagencies would include hospitals, clinical diagnostic centers, and community-based organizations.

You may qualify if:

• To be eligible to participate in the study, an agency must:
• Be a current provider of either:
• General health services (GHS), such as primary care, health education and wellness, mental health services, home health care, palliative care, or cancer screening and diagnosis;
• Cancer-specific medical treatments (CMT), such as cancer surgery, radiation, chemotherapy, hormonal therapy; experimental therapies; cancer pain and symptom management; rehabilitation services; post-treatment monitoring and surveillance; or prophylactic treatments, such as chemoprevention; or
• Any type of specialized 'post-cancer' or 'after-cancer' medical care or support services (SMC) (i.e., psychotherapeutic, relationship and family, psycho-educational,wellness and quality of life)
• Be located within the five boroughs of New York City
• Have been serving cancer patients for 12 months or longer, and
• Be willing and able to identify an English-speaking representative, 21 years of age or older as its designated key informant.

You may not qualify if:

• We will limit this study to provider agencies such as hospitals, diagnostic centers, clinics, health and human service agencies, and grassroots community organizations and public service settings that offer programs for cancer survivors. Independent practitioners or private practice settings will not be surveyed. Our survey questions are intended for major health services organizations and are not appropriate for private practices settings.
• We will use our screening questionnaire to determine where or not a given agency should be included or excluded from the study AGENCY SCREENER.

Sponsors & Collaborators

• Memorial Sloan Kettering Cancer Center: lead
• NYS DEPT HEALTH CANCER SVC PRO: collaborator

Study Sites (1)

Memorial Sloan-Kettering Cancer Center

New York, New York, 10065, United States

Location

Related Links

• Memorial Sloan-Kettering Web Site

MeSH Terms

Conditions

Neoplasms

Study Officials

• David Loundsbury, PhD

  Memorial Sloan Kettering Cancer Center

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: December 19, 2007
• First Posted: December 21, 2007
• Study Start: April 1, 2005
• Primary Completion: April 1, 2009
• Study Completion: April 1, 2009
• Last Updated: January 9, 2012

Record last verified: 2012-01

Locations

US (1)