NCT00530751

Brief Summary

RATIONALE: Learning about the concerns that individuals may have about providing family medical history online for genetic risk assessment or research may help doctors plan future research. PURPOSE: This clinical trial is studying views on sharing family medical history in healthy women undergoing mammograms or breast evaluation.

Trial Health

35
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Geographic Reach
1 country

7 active sites

Status
withdrawn

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 1, 2007

Completed
7 months until next milestone

First Submitted

Initial submission to the registry

September 13, 2007

Completed
4 days until next milestone

First Posted

Study publicly available on registry

September 17, 2007

Completed
1 year until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2008

Completed
Last Updated

October 2, 2015

Status Verified

October 1, 2015

Enrollment Period

1.6 years

First QC Date

September 13, 2007

Last Update Submit

October 1, 2015

Conditions

Keywords

breast cancer

Outcome Measures

Primary Outcomes (2)

  • Participants' perspectives and concerns regarding online genetic risk assessment or research

  • Identification of directions for future research into the ethics of online genetic risk assessment or research

Interventions

Participants undergo a 45-60 minute interview to assess their attitudes and concerns about providing family medical history online for genetic risk assessment or research. Participants' feelings about whether or not to use an online genetic assessment tool (i.e., Genetic Risk Easy Assessment Tool \[GREAT\]) are explored.

Eligibility Criteria

Age18 Years+
Sexfemale
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Primary care center

DISEASE CHARACTERISTICS: * Healthy women undergoing mammograms or being evaluated for a breast concern at the University Hospitals Breast Center PATIENT CHARACTERISTICS: * Able to speak English PRIOR CONCURRENT THERAPY: * Not specified

Contact the study team to discuss eligibility requirements. They can help determine if this study is right for you.

Sponsors & Collaborators

Study Sites (7)

Mercy Cancer Center at Mercy Medical Center

Canton, Ohio, 44708, United States

Location

Geauga Regional Hospital

Chardonr, Ohio, 44024, United States

Location

Lake/University Ireland Cancer Center

Mentor, Ohio, 44060, United States

Location

Southwest General Health Center

Middleburg Heights, Ohio, 44130, United States

Location

UHHS Chagrin Highlands Medical Center

Orange Villager, Ohio, 44122, United States

Location

University Suburban Health Center

South Euclid, Ohio, 44121, United States

Location

UHHS Westlake Medical Center

Westlaker, Ohio, 44145, United States

Location

Related Links

MeSH Terms

Conditions

Breast Neoplasms

Interventions

Counseling

Condition Hierarchy (Ancestors)

Neoplasms by SiteNeoplasmsBreast DiseasesSkin DiseasesSkin and Connective Tissue Diseases

Intervention Hierarchy (Ancestors)

Mental Health ServicesBehavioral Disciplines and ActivitiesCommunity Health ServicesHealth ServicesHealth Care Facilities Workforce and Services

Study Officials

  • Christian Simon, PhD

    Ireland Cancer Center at University Hospitals Case Medical Center, Case Comprehensive Cancer Center

    STUDY CHAIR
0

Study Design

Study Type
observational
Observational Model
FAMILY BASED
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER

Study Record Dates

First Submitted

September 13, 2007

First Posted

September 17, 2007

Study Start

March 1, 2007

Primary Completion

October 1, 2008

Last Updated

October 2, 2015

Record last verified: 2015-10

Locations