NCT00345800

Brief Summary

To monitor for endocrine changes in response to treatment of cataplexy with Xyrem, to focus on the hypothalamic pituitary axis and to confirm the safety of Xyrem on potential endocrine changes.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
25

participants targeted

Target at P25-P50 for phase_1

Timeline
Completed

Started Apr 2006

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

April 10, 2006

Completed
3 months until next milestone

First Submitted

Initial submission to the registry

June 28, 2006

Completed
1 day until next milestone

First Posted

Study publicly available on registry

June 29, 2006

Completed
1.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 22, 2008

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

January 22, 2008

Completed
14.2 years until next milestone

Results Posted

Study results publicly available

April 8, 2022

Completed
Last Updated

April 8, 2022

Status Verified

February 1, 2022

Enrollment Period

1.8 years

First QC Date

June 28, 2006

Results QC Date

February 8, 2018

Last Update Submit

February 9, 2022

Conditions

Keywords

Endocrine Evaluation cataplexysodium oxybate (xyrem)

Outcome Measures

Primary Outcomes (3)

  • The Insulin-like Growth Factor 1 (IGF-1) Measured in Fasting Conditions at Baseline (Visit 2)

    An assay of IGF-1 was done from blood sampled about 10 hours after bedtime on Visit 2.

    Baseline (Visit 2) - approximately 1 day

  • The Insulin-like Growth Factor 1 (IGF-1) Measured in Fasting Conditions After 1 Month of Treatment (Visit 3)

    An assay of IGF-1 was done from blood sampled about 10 hours postdose on Visit 3.

    After 1 month of treatment (Visit 3)

  • The Insulin-like Growth Factor 1 (IGF-1) Measured in Fasting Conditions After 3 Months of Treatment (Visit 4)

    An assay of IGF-1 was done from blood sampled about 10 hours postdose on Visit 4.

    After 3 months of treatment (Visit 4)

Secondary Outcomes (33)

  • The Circadian Rhythm of the Growth Hormone (GH) Measured at Baseline (Visit 2)

    Baseline (Visit 2) - approximately 1 day

  • The Circadian Rhythm of the Growth Hormone (GH) Measured at Visit 3

    Visit 3 (approximately 1 month)

  • The Circadian Rhythm of the Growth Hormone (GH) Measured at Visit 4

    Visit 4 (approximately 3 months)

  • Cortisol Measured at Baseline (Visit 2)

    Baseline (Visit 2) - approximately 1 day

  • Cortisol Measured at Visit 3

    Visit 3 (approximately 1 month)

  • +28 more secondary outcomes

Study Arms (1)

Sodium Oxybate

EXPERIMENTAL

* Active Substance: Sodium Oxybate * Pharmaceutical form: Oral Solution * Concentration: 500 mg/mL oral solution from 4.5 to 9 g/day divided into two equal doses during 12 weeks * Route of administration: Oral

Drug: Sodium Oxybate (Xyrem)

Interventions

* Active Substance: Sodium Oxybate * Pharmaceutical form: Oral Solution * Concentration: 500 mg/mL oral solution from 4.5 to 9 g/day divided into two equal doses during 12 weeks * Route of administration: Oral

Also known as: Xyrem
Sodium Oxybate

Eligibility Criteria

Age18 Years - 65 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Narcoleptic patients with cataplexy

You may not qualify if:

  • Subjects not diagnosed with narcolepsy with cataplexy

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Unknown Facility

Liège, Belgium

Location

Related Links

MeSH Terms

Conditions

Narcolepsy

Interventions

Sodium Oxybate

Condition Hierarchy (Ancestors)

Disorders of Excessive SomnolenceSleep Disorders, IntrinsicDyssomniasSleep Wake DisordersNervous System DiseasesMental Disorders

Intervention Hierarchy (Ancestors)

HydroxybutyratesButyratesAcids, AcyclicCarboxylic AcidsOrganic ChemicalsHydroxy Acids

Results Point of Contact

Title
UCB
Organization
Cares

Study Officials

  • UCB Cares

    +1 844 599 2273 (UCB)

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restriction Type
GT60
Restrictive Agreement
Yes

Study Design

Study Type
interventional
Phase
phase 1
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

June 28, 2006

First Posted

June 29, 2006

Study Start

April 10, 2006

Primary Completion

January 22, 2008

Study Completion

January 22, 2008

Last Updated

April 8, 2022

Results First Posted

April 8, 2022

Record last verified: 2022-02

Locations