Quality of Life in Patients Who Have Undergone Previous Treatment for Primitive Neuroectodermal Tumors
Study of Outcome of Children Previously Enrolled in European Trials of Treatment for Primitive Neuroectodermal Tumour (PNET)
3 other identifiers
observational
N/A
2 countries
21
Brief Summary
RATIONALE: Questionnaires that measure quality of life may improve the ability to plan treatment for patients with primitive neuroectodermal tumors. PURPOSE: This phase III trial is studying quality of life in patients who have undergone previous treatment for primitive neuroectodermal tumors.
Trial Health
Trial Health Score
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21 active sites
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Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
June 1, 2002
CompletedFirst Submitted
Initial submission to the registry
January 16, 2006
CompletedFirst Posted
Study publicly available on registry
January 18, 2006
CompletedSeptember 20, 2013
April 1, 2006
January 16, 2006
September 19, 2013
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Quality of life (QOL) as measured by QOL questionnaire
Secondary Outcomes (1)
Quality of survival compared among children undergoing different treatments by Health Utilities Index
Interventions
Eligibility Criteria
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Sponsors & Collaborators
Study Sites (21)
Our Lady's Hospital for Sick Children
Dublin, 12, Ireland
Birmingham Children's Hospital
Birmingham, England, B4 6NH, United Kingdom
Institute of Child Health at University of Bristol
Bristol, England, BS2 8AE, United Kingdom
Addenbrooke's Hospital at Cambridge University Hospitals NHS Foundation Trust
Cambridge, England, CB2 2QQ, United Kingdom
Leeds Cancer Centre at St. James's University Hospital
Leeds, England, LS9 7TF, United Kingdom
Leicester Royal Infirmary
Leicester, England, LE1 5WW, United Kingdom
Royal Liverpool Children's Hospital, Alder Hey
Liverpool, England, L12 2AP, United Kingdom
Royal London Hospital
London, England, E1 1BB, United Kingdom
Great Ormond Street Hospital for Children NHS Trust
London, England, WC1N 3JH, United Kingdom
Central Manchester and Manchester Children's University Hospitals NHS Trust
Manchester, England, M27 4HA, United Kingdom
Sir James Spence Institute of Child Health
Newcastle upon Tyne, England, NE1 4LP, United Kingdom
Queen's Medical Centre
Nottingham, England, NG7 2UH, United Kingdom
Oxford Radcliffe Hospital
Oxford, England, 0X3 9DU, United Kingdom
Children's Hospital - Sheffield
Sheffield, England, S10 2TH, United Kingdom
Southampton General Hospital
Southampton, England, SO16 6YD, United Kingdom
Royal Marsden NHS Foundation Trust - Surrey
Sutton, England, SM2 5PT, United Kingdom
Royal Belfast Hospital for Sick Children
Belfast, Northern Ireland, BT12 6BE, United Kingdom
Royal Aberdeen Children's Hospital
Aberdeen, Scotland, AB25 2ZG, United Kingdom
Royal Hospital for Sick Children
Edinburgh, Scotland, EH9 1LF, United Kingdom
Royal Hospital for Sick Children
Glasgow, Scotland, G3 8SJ, United Kingdom
Childrens Hospital for Wales
Cardiff, Wales, CF14 4XW, United Kingdom
MeSH Terms
Conditions
Interventions
Condition Hierarchy (Ancestors)
Intervention Hierarchy (Ancestors)
Study Officials
- STUDY CHAIR
Colin Kennedy
University Hospital Southampton NHS Foundation Trust