NCT00267462|Terminated
Hypertrophic Myopathy in Children
Retrospective Review of Hypertrophic Myopathy in Children
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Retrospective Review of Hypertrophic Myopathy in Children
Sponsor study identifier
observational
75
1 country
1
Study Start
January 1996
Date type not reportedThis date has not been verified as actual or estimated.
Primary Completion
Not reported
Date not reportedStudy Completion
Not reported
Date not reportedThe purpose of this study is to identify the patients seen in our practice who are seen with Hypertrophic Myopathy diagnosis in order to better understand the presenting characteristics of their disease, the diagnostic testing to determine the diagnosis, the methods used to follow the disease progression and management practices used in caring for these patients. The objectives of this data review will be an analysis to determine if there is a methodology that will foster improved diagnostic speed and accuracy, and determine the best management practices based on outcomes in these patients.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
Not reported
Date not reportedClick on a node to explore related trials.
Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
January 1996
Date type not reportedThis date has not been verified as actual or estimated.
December 19, 2005
Actual (reported)December 21, 2005
Actual (reported)Contact the study team to confirm eligibility.
Children's Healthcare of Atlanta
Atlanta, Georgia, 30322, United States
Kenneth J. Dooley, MD
Sibley Heart Center Cardiology at Children's Healthcare of Atlanta
First Submitted
December 19, 2005
First Posted
December 21, 2005
Study Start
January 1996
Date type not reportedThis date has not been verified as actual or estimated.
Last Updated
May 7, 2007
Record last verified: 2007-05
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Source: ClinicalTrials.gov.
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