NCT00119951

Brief Summary

The purpose of this study is to assess the impact of participation in the Association of Cancer Online Resources (ACOR) mailing lists on chronic disease management for cancer patients, we are focusing on several priority areas. These include factors that influence the use of online interventions over time and the effects of patient-provider interactions on the use of eHealth interventions (as well as vice versa). We also are breaking new ground in a number of important methodological areas related to online survey research. Our specific aims are:

  1. 1.Conduct a qualitative analysis of a 10% sample of messages (approximately 5,200) obtained over 5 months from 9 ACOR lists to develop a comprehensive set of potential chronic disease management outcomes and a fuller understanding of the issues and themes that characterize list participation. The content analysis will identify important themes and issues in the messages. These themes and issues will help in survey refinement and ground our proposed quantitative survey questionnaire items. Survey analyses will also be enriched by the qualitative data. Finally, the qualitative analysis will stand as an independent body of work.
  2. 2.Conduct a web-based survey of at least 1,680 new ACOR mailing list patient members and approximately 1,680 non-patient subscribers to assess the positive and negative effects of participation in ACOR lists at one month and four months after joining the list and completing a baseline survey.
  3. 3.Disseminate study findings to ACOR leadership, participants and the larger online community.
  4. 4.Develop a plan to convert the findings into training, recommendations, tools and policies to improve list processes. We aim to answer real world, practical questions using methodology that is at once rigorous, practical and ethical. The components are inter-related and complementary.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
3,360

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Sep 2003

Typical duration for all trials

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

September 1, 2003

Completed
1.8 years until next milestone

First Submitted

Initial submission to the registry

July 6, 2005

Completed
8 days until next milestone

First Posted

Study publicly available on registry

July 14, 2005

Completed
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

August 1, 2006

Completed
Last Updated

August 3, 2007

Status Verified

August 1, 2007

First QC Date

July 6, 2005

Last Update Submit

August 2, 2007

Conditions

Cancer

Keywords

Behavioral

Interventions

Participation on the ACOR ListservBEHAVIORAL

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Eligibility is based on joining one of 15 ACOR mailing lists over a 1 ½ year accrual period. We defined eligible persons as:
  • New patient/survivor subscribers aged 18 and over, have had cancer, and joined a participating mailing list within the past 10 days; or
  • Ongoing patient/survivor subscribers aged 18 and over, have had cancer, and have been a member of a participating list for more than 10 days; or
  • Caregiver subscribers aged 18 and over and care for a cancer patient or survivor in any capacity (actively or passively).

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

The University of North Carolina at Chapel Hill

Chapel Hill, North Carolina, 27599, United States

Location

Related Publications (3)

  • Rimer BK, Lyons EJ, Ribisl KM, Bowling JM, Golin CE, Forlenza MJ, Meier A. How new subscribers use cancer-related online mailing lists. J Med Internet Res. 2005 Jul 1;7(3):e32. doi: 10.2196/jmir.7.3.e32.

    PMID: 15998623RESULT

  • Michael Bowling J, Rimer BK, Lyons EJ, Golin CE, Frydman G, Ribisl KM. Methodologic challenges of e-health research. Eval Program Plann. 2006 Nov;29(4):390-6. doi: 10.1016/j.evalprogplan.2006.08.011. Epub 2006 Oct 20.

    PMID: 17950867RESULT

  • Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res. 2007 May 14;9(2):e12. doi: 10.2196/jmir.9.2.e12.

    PMID: 17513283RESULT

MeSH Terms

Conditions

NeoplasmsBehavior

Study Officials

  • Barbara K Rimer, DrPH

    University of North Carolina, Chapel Hill

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
DEFINED POPULATION
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER

Study Record Dates

First Submitted

July 6, 2005

First Posted

July 14, 2005

Study Start

September 1, 2003

Study Completion

August 1, 2006

Last Updated

August 3, 2007

Record last verified: 2007-08

Locations

US(1)