Alzheimer's Disease Treatment and Illness Perceptions Survey (TIPS) II
3 other identifiers
observational
210
1 country
1
Brief Summary
The TIPS Study, or Treatment and Illness Perceptions Survey, is a study funded by the national Alzheimer's Association to learn more about differences between African Americans' and Whites' attitudes, beliefs, and experiences related to Alzheimer's disease (AD). The study involves a one-time 30-minute telephone survey in which participants are asked about a range of topics related to AD, including their personal experiences, their beliefs about the disease's symptoms and risk factors, and their attitude toward possible future treatment options. Information from the survey will be used to develop more culturally sensitive health education and healthcare services for persons with AD.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started Jan 2003
Typical duration for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
January 1, 2003
CompletedFirst Submitted
Initial submission to the registry
April 24, 2003
CompletedFirst Posted
Study publicly available on registry
April 28, 2003
CompletedPrimary Completion
Last participant's last visit for primary outcome
September 1, 2005
CompletedStudy Completion
Last participant's last visit for all outcomes
September 1, 2005
CompletedDecember 11, 2009
February 1, 2008
2.7 years
April 24, 2003
December 10, 2009
Conditions
Keywords
Eligibility Criteria
You may qualify if:
- Three groups of participants are sought to take part in the survey:
- primary caregivers(current or former) of persons with AD, or related memory disorders
- adult children and siblings of people with AD or related memory disorders
- adults age 40 and older without immediate family history of AD or related memory disorders
You may not qualify if:
- Not fluent in English
- Cognitive impairment that would preclude responding to a 30-minute telephone survey
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
Boston University School of Medicine, Alzheimer's Disease Center
Boston, Massachusetts, 02118, United States
Related Publications (3)
Roberts JS, Connell CM. Illness representations among first-degree relatives of people with Alzheimer disease. Alzheimer Dis Assoc Disord. 2000 Jul-Sep;14(3):129-136,Discussion 127-8. doi: 10.1097/00002093-200007000-00003.
PMID: 10994653BACKGROUNDRoberts JS. Anticipating response to predictive genetic testing for Alzheimer's disease: a survey of first-degree relatives. Gerontologist. 2000 Feb;40(1):43-52. doi: 10.1093/geront/40.1.43.
PMID: 10750312BACKGROUNDRoberts JS, Connell CM, Cisewski D, Hipps YG, Demissie S, Green RC. Differences between African Americans and whites in their perceptions of Alzheimer disease. Alzheimer Dis Assoc Disord. 2003 Jan-Mar;17(1):19-26. doi: 10.1097/00002093-200301000-00003.
PMID: 12621316BACKGROUND
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- STUDY DIRECTOR
Scott Roberts, PhD
Boston University Alzheimer's Disease Center
Study Design
- Study Type
- observational
- Time Perspective
- PROSPECTIVE
- Sponsor Type
- OTHER
Study Record Dates
First Submitted
April 24, 2003
First Posted
April 28, 2003
Study Start
January 1, 2003
Primary Completion
September 1, 2005
Study Completion
September 1, 2005
Last Updated
December 11, 2009
Record last verified: 2008-02