NCT00026884

Brief Summary

Selected individuals suspected of having or with prior biopsy proof of malignant disease will be seen in the Urologic Oncology Branch, NCI. Blood samples may be collected at the time of the initial visit and at periodic intervals during the course of the disease. These samples will be stored in the tissue bank of the Urologic Oncology Branch. Aliquots of malignant and normal tissue will be collected at the time of surgery and stored in the tissue bank, Urologic Oncology Branch, NCI. These materials will be used in the research efforts of the Urologic Oncology Branch, NCI....

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
5,950

participants targeted

Target at P75+ for all trials

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 12, 1998

Completed
3.7 years until next milestone

First Submitted

Initial submission to the registry

November 14, 2001

Completed
1 day until next milestone

First Posted

Study publicly available on registry

November 15, 2001

Completed
Last Updated

May 1, 2026

Status Verified

April 23, 2026

First QC Date

November 14, 2001

Last Update Submit

April 30, 2026

Conditions

Keywords

SerumCollection of TissueMalignant DiseaseMolecular BasisGenome SequencingNatural History

Outcome Measures

Primary Outcomes (7)

  • Investigate quality of life in men who have prostate cancer.

    Prostate cancer participants that have improvement in quality of life

    on-going

  • Investigate molecular genetic basis of urologic malignancies

    Investigate molecular genetic basis of urologic malignancies

    on-going

  • Investigate cellular/biochemical response to existing and novel therapeutic agents.

    Collection of blood, urine, saliva, and/or benign and malignant tissue

    on-going

  • Examine protein expression and bioimmunoassays investigating potential genetic markers.

    Detection and expression analysis of gene(s)

    on-going

  • Determine the molecular genetic differences between normal and tumorigenic tissues.

    Molecular genetic differences between normal and tumorigenic tissues

    on-going

  • Collection of benign and malignant tissue from individuals with rare inherited conditions associated with an increased risk for kidney cancer.

    Collection of blood, urine, saliva, and/or benign and malignant tissue

    on-going

  • Collection of benign and malignant tissue from individuals with known or suspected cancer.

    Collection of blood, urine, saliva, and/or benign and malignant tissue

    on-going

Study Arms (2)

Family Members

Family members (related by blood) of participants who have or are suspected of having a malignant disease or an inherited genitourinary malignant disorder

Participants

Participants with biopsy-proven malignant diseases; or participants suspected of having a malignant disease; or participants who have or who are suspected of having an inherited genitourinary malignant disorder

Eligibility Criteria

Age2 Years+
Sexall
Healthy VolunteersYes
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

1\. Individuals with biopsy-proven malignant disease 2. Individuals suspected of having malignant disease 3. Individuals with known or suspected urologic malignant disorders who have clinically indicated urologic or non-urologic surgical lesion 4. Family members of individuals suspected of having an inherited genitourinary malignancy 5. Family members of individuals with a DNA variant

You may qualify if:

  • Individuals with biopsy-proven malignant disease
  • Individuals suspected of having a malignant disease
  • Individuals who have or are suspected of having an inherited genitourinary malignant disorder
  • Participants must be \>= 2 years of age
  • A relative (related by blood) of an individual with a confirmed or suspected diagnosis of a malignant disease or an inherited genitourinary malignant disorder.
  • All participants and parents/guardians, for children younger than 18 years of age, must sign an informed consent document indicating their understanding of the investigational nature and the risks of this study before any protocol related studies are performed.

You may not qualify if:

  • Individuals whose co-morbidities preclude surgical intervention.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

National Institutes of Health Clinical Center

Bethesda, Maryland, 20892, United States

RECRUITING

Related Publications (1)

  • Merriman KM, Harmon SA, Belue MJ, Yilmaz EC, Blake Z, Lay NS, Phelps TE, Merino MJ, Parnes HL, Law YM, Gurram S, Wood BJ, Choyke PL, Pinto PA, Turkbey B. Comparison of MRI-Based Staging and Pathologic Staging for Predicting Biochemical Recurrence of Prostate Cancer After Radical Prostatectomy. AJR Am J Roentgenol. 2023 Dec;221(6):773-787. doi: 10.2214/AJR.23.29609. Epub 2023 Jul 5.

Related Links

MeSH Terms

Conditions

NeoplasmsNeoplastic Syndromes, HereditaryKidney NeoplasmsUrinary Bladder Neoplasms

Condition Hierarchy (Ancestors)

Genetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesUrologic NeoplasmsUrogenital NeoplasmsNeoplasms by SiteFemale Urogenital DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital DiseasesKidney DiseasesUrologic DiseasesMale Urogenital DiseasesUrinary Bladder Diseases

Study Officials

  • W. Marston Linehan, M.D.

    National Cancer Institute (NCI)

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Deborah A Nielsen, R.N.

CONTACT

W. Marston Linehan, M.D.

CONTACT

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
NIH
Responsible Party
SPONSOR

Study Record Dates

First Submitted

November 14, 2001

First Posted

November 15, 2001

Study Start

March 12, 1998

Last Updated

May 1, 2026

Record last verified: 2026-04-23

Data Sharing

IPD Sharing
Will share

All IPD recorded in the medical record will be shared with intramural investigators upon request. @@@@@@In addition, all large scale genomic sequencing data will be shared with subscribers to dbGaP.

Shared Documents
STUDY PROTOCOL, SAP, ICF
Time Frame
Clinical data available during the study and indefinitely.@@@@@@Genomic data are available once genomic data are uploaded per protocol GDS plan for as long as database is active.
Access Criteria
Clinical data will be made available via subscription to BTRIS and with the permission of the study PI.@@@@@@Genomic data are made available via dbGaP through requests to the data custodians.

Locations