Rare Diseases Clinical Research Network
67
9
10
45
Key Highlights
Risk & Performance
Pipeline Risk Assessment
Pipeline Risk Assessment
Based on historical performance
Moderate Risk
Score: 45/100
7.5%
5 terminated/withdrawn out of 67 trials
90.0%
+3.5% vs industry average
4%
3 trials in Phase 3/4
29%
13 of 45 completed trials have results
Key Signals
Enrollment Performance
Analytics
Activity Timeline
Global Presence
Clinical Trials (67)
The Assessment of Prednisone In Remission Trial - Centers of Excellence Approach
Role: collaborator
A National Registry For Pulmonary Alveolar Proteinosis
Role: collaborator
A Natural History Study of the Gangliosidoses
Role: collaborator
Role of Oxidative Stress and Inflammation in Type 1 Gaucher Disease (GD1)
Role: collaborator
Natural History and Advanced Genetic Study of Pyruvate Dehydrogenase Complex Deficiencies
Role: collaborator
The Natural History of Mucolipidosis Type IV
Role: collaborator
One-Time DNA Study for Vasculitis
Role: collaborator
Natural History Evaluation of Charcot Marie Tooth Disease (CMT) Types CMT1B, CMT2A, CMT4A, CMT4C, and Others
Role: collaborator
Natural History and Structural Functional Relationships in Fabry Renal Disease Treatment Outcomes(Changes)in Fabry Renal Disease Study
Role: collaborator
AVTX-801 D-galactose Supplementation in SLC35A2-CDG
Role: collaborator
Krabbe Disease Global Patient Registry
Role: collaborator
Safety and Durability of Sirolimus for Treatment of LAM
Role: collaborator
Longitudinal Study of Bone Disease in Children with Mucopolysaccharidoses (MPS) I, II, and VI
Role: collaborator
The Assessment of Prednisone In Remission Trial (TAPIR) - Patient Centric Approach
Role: collaborator
Longitudinal Study of Urea Cycle Disorders
Role: collaborator
Assessment of Safety of Air Travel in Patients With Pulmonary Langerhans Cell Histiocytosis
Role: collaborator
Assessment of Safety of Air Travel in Patients With Birt-Hogg-Dube Syndrome
Role: collaborator
Extension Study of Intrathecal Enzyme Replacement for Cognitive Decline in MPS I
Role: collaborator
Characteristics of Episodic Ataxia Syndrome
Role: collaborator
Nitric Oxide Supplementation on Neurocognitive Functions in Patients With ASLD
Role: collaborator